Health—General & Rehabilitative



Oakton, VA


To ensure that all individuals with Down syndrome and their families receive the support necessary to participate in, contribute to and achieve fulfillment of life in their community.

* Help families adjust to the birth of a child with Down syndrome;
* Provide individuals with Down syndrome and their families with educational, financial, medical and social support and resources;
* Provide social and educational events for individuals with Down syndrome and their families to meet, interact and learn;
* Increase community awareness of the capabilities and contributions of individuals with Down syndrome;
* Provide financial support to families in need with camp and conference scholarship;
* Support local organizations that provide services to individuals with Down syndrome.

Ruling Year


Executive Director

Mrs Mary C Ford

Main Address

10467 White Granite Drive Suite 320

Oakton, VA 22124 USA


Down Syndrome, Social Support, Families, Education





Cause Area (NTEE Code)

Alliance/Advocacy Organizations (E01)

IRS Filing Requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Programs + Results

What we aim to solve New!

DSANV plans to grow to increase member engagement and to expand its its reach to serve an even larger number of individuals with Down syndrome, and their families, in Northern Virginia.

Our programs

What are the organization's current programs, how do they measure success, and who do the programs serve?

SOURCE: Self-reported by organization

The Learning Program

Where we workNew!

Charting Impact

Five powerful questions that require reflection about what really matters - results.

SOURCE: Self-reported by organization

What is the organization aiming to accomplish?

What are the organization's key strategies for making this happen?

What are the organization's capabilities for doing this?

How will they know if they are making progress?

What have and haven't they accomplished so far?

Goal 1: Increase member engagement Goal 2: Expand reach to a greater number and more diverse segment of individuals with Down syndrome and their families in Northern Virginia Goal 3: Diversify sources and increase amount of revenue to support the above Goals

1.1 Assess current level of member engagement 1.2 Assess members' satisfaction with current programs/resources and identify any additions they may like to see in the future 1.3 Identify support needs and solicit member participation in planning and executing programs, development and other areas of organizational business; identify opportunities for self-advocate participation 2.1 Analyze member database to determine which populations are currently being served; include diverse parameters to include age, gender, geographic area, ability, culture, language, etc.) 2.2 Identify gaps in service based on analysis in 2.2 2.3 Define a plan forward in filling service gaps 3.1 Conduct segmentation analysis of current donors (corporations, foundations and individual donors) 3.2 Increase number of repeat donors, upgrade current donors to higher gift levels and identify new donors 3.3 Research corporations and foundations whose missions align with DSANV's, develop additional relationships to increase contributions from these sources

DSANV Board of Directors and staff are working together to execute a three year strategy to achieve the above goals. 2019 Operating Plan is tied to the Strategic Plan. Robust membership database tool in place. Overhead is currently low and plans in place to further reduce. Currently have a large member base to engage and a strong core set of programs and service offerings. Large Northern Virginia area offers myriad of opportunities for development from corporate partnerships, to foundations and individual donors.

Strategic Plan details action plans with timelines and metrics to include: - Number of members served by zip code, age, and other parameters (in total and by event/program) - Inclusivity measures - Member satisfaction survey data (overall and by event/program) - Impact of programs/services on families/individual participants - Number of corporate partners, grants and individual contributions - Giving history data for sponsors and individual donors (amounts, frequency, upgrades, etc.) - Computing efficiency of each development activity

2019-2021 Strategic Plan 2019 Operating Plan Recent staff expansion Recent addition of part-time volunteers Recent staff training Joined a local Chamber of Commerce

External Reviews



Fiscal year: Jan 01 - Dec 31

Need more info on this nonprofit?

Need more info on this nonprofit?

FREE: Gain immediate access to the following:

  • Address, phone, website and contact information
  • Forms 990 for 2017, 2016 and 2015
A Pro report is also available for this organization for $125.
Click here to view a Sample Report.


The people, governance practices, and partners that make the organization tick.

Need more info?

FREE: Gain immediate access to the following:

  • Address, phone, website and contact information
  • Forms 990 for 2017, 2016 and 2015
A Pro report is also available for this organization for $125.
Click here to see what's included.

Board Leadership Practices

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section, which enables organizations and donors to transparently share information about essential board leadership practices.

SOURCE: Self-reported by organization


Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?



Has the board conducted a formal, written assessment of the chief executive within the past year?



Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year?



Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?



Has the board conducted a formal, written self-assessment of its performance within the past three years?