HYPEREMESIS EDUCATION & RESEARCH FOUNDATION

The global voice of HG.

aka HER Foundation, HELPHER Foundation   |   Clackamas, OR   |  www.hyperemesis.org

Mission

The HER Foundation is the world's largest network of HG survivors and the leading resource for HG information. In 2003, HER became the global voice of hope and understanding for women with HG. Our mission is to find a cure through research, to provide education and support for those seeking effective management strategies, and to provide them with clinical resources. Goals: 1. Minimize suffering & complications. 2. Eradicate morbidity & mortality. 3. Improve outcomes. 4. Promote a universal protocol. 5. Raise public awareness & improve policies. 6. Educate practitioners & caregivers. 7. Expand clinician education & awareness. 8. Publish clinically relevant research. 9. Fundraise for research, awareness, and educational projects. 10. Develop tools to improve diagnosis & management.

Ruling year info

2018

Co-Founder, Executive Director

Mrs. Kimber MacGibbon

Director

Jeremy King

Main address

10117 SE Sunnyside Rd Suite F8

Clackamas, OR 97015 USA

Show more contact info

EIN

71-0912435

NTEE code info

Alliance/Advocacy Organizations (G01)

Alliance/Advocacy Organizations (H01)

Nonmonetary Support N.E.C. (P19)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Blog

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Due to lack of knowledge and research, hyperemesis gravidarum, HG, a pregnancy condition characterized by severe nausea and vomiting, leads to weight loss, dehydration and malnutrition. HG is one of the top 2 causes of hospitalization during pregnancy and results in a high fetal loss rates and numerous maternal complications including trauma, premature birth and pre-eclampsia, as well as risks of adverse effects on the child including neurodevelopmental delays, autism, behavioral and emotional disorders and sensory processing disorders.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

UCLA Research

HER has been working with UCLA's David Geffen School of Medicine for over 7 years and has helped bring HG research participants into the program as well as fund over $60K in research. Through this research alone 24 medical journal articles have been published and will continue to be published. Most are groundbreaking including the genetics findings lead by Dr. Marlena Fejzo which have identified 3 genes involved in the cause and effects of HG.

Population(s) Served

HER has been working with UCLA's David Geffen School of Medicine for over 7 years and has helped bring HG research participants into the program as well as fund over $60K in research. Through this research alone 24 medical journal articles have been published and will continue to be published. Most are groundbreaking including the genetics findings lead by Dr. Marlena Fejzo which have identified 3 genes involved in the cause and effects of HG.

Population(s) Served

Develop tools to improve diagnosis and treatment so women receive the care they need to survive their pregnancies without complications for mother and child. These tools to date include multilingual brochures, assessment tools, and the HG Care App.

Population(s) Served

Development of policies and improved treatment protocols through collaboration with medical societies and health organizations.

Population(s) Served

Where we work

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

THE HER FOUNDATION’S MISSION IS TO ADVANCE HYPERMEMESIS GRAVIDARUM (HG) RESEARCH AND POLICY INITIATIVES, AND PROVIDE EDUCATION AND SUPPORT TO THOSE SEEKING EFFECTIVE MANAGEMENT STRATEGIES FOR HYPEREMESIS GRAVIDARUM (HG). THE HER FOUNDATION IS THE VOICE OF SUPPORT AND HOPE TO ALL WHO ARE FACED WITH MANAGING HG. *HG is severe nausea and vomiting of pregnancy that can be life-threatening and cause dehydration, malnutrition and other complications for mother and child.

The foundation partners with leading universities for research and app development and has a highly educated Board of Directors that guides its work. HER creates tools and resources to educate both families and health professionals, speaks or exhibits at obstetrical conferences, and engages with organizations to develop policies and resources that improve the care of women with HG around the world. HER also personally supports tens of thousands of women each year on social media platforms and direct support. Additionally volunteers offer personal support as well.

The foundation partners with leading universities for research and app development and has a highly educated Board of Directors with expertise and HG experience that guides its work. All are professionals in a scientific, business or technology industry, and several have corporate or university affiliations that support the foundation in some way. With these universities, HER has helped identify the first genes associated with the cause of HG. HER also has several hundred volunteers across the globe that provide emotional support of families facing HG. HER has a staff of 2, plus its founders and board members that are actively involved. The Executive Director co-founded the organization and has been a director since the foundation started as a website in 2000. She has been a registered nurse for over 30 years and survived 2 HG pregnancies. She has worked with Dr. Marlena Fejzo, a Harvard-trained geneticist and leading HG scientist, for 20 years on HG research. Most core admins, staff, directors, volunteers, and several board members have been working with the foundation for 10-17 years. This has built enormous expertise and consistency that gives HER an excellent reputation for credibility and makes it the leading source for HG information and resources.

2019 Accomplishments:
- Education of medical professionals at the Society for Maternal-Fetal Medicine Conference.
- Publication of scientific research with UCLA and USC.
- Support of approximately 20,000 families facing HG.
- Collaboration with MoMMA’S Voices Coalition on policy opportunities.
- Attendance at Champions of Change Summit to represent HER Foundation and learn more on policy opportunities and network with policy leadership.
- Attendance and discussion of policy needs at the OR Perinatal Collaborative.
- Presentation of research findings at the International Colloquium of HG.
- Education on HG via social media and website of HG with daily posts in May for HG Awareness Month.
- Development and distribution of an HG treatment Algorithm.
- Collaborative meeting on needs of HG community with officers and department chairs at Society for Maternal-Fetal Medicine in DC.
- Launch of free HG Care app with UCLA mHealth.
- Documentary on HG to increase awareness started.
- Presentation on HG management at Infusion Nurses Society.


2020 brings a year of
- policy initiatives and engagement with influencers like the NIH and SMFM
- exhibition and speaking at SMFM in Dallas
- speaking at the Gold Midwifery Conference
- ongoing research in the areas of nutrition, genetics, HG severity assessment, and usage of the HG Care app
- a totally redesigned and updated website that is mobile friendly and includes interactive content to guide mothers in managing HG
- additional translations of educational materials into Indonesian, French and Hebrew
- expanded educational and awareness campaigns
- launch of the HG critical information poster for clinics in English and Spanish
- publication of new research on genetics and the HER Foundation severity tool, the HELP Score, as well as collaborative research the International Collaboration on HG's study on HG research priorities
- partnership with Optum Healthcare for distribution of HER resources to clinics nationwide
and continued growth of many projects listed in 2019.

Financials

HYPEREMESIS EDUCATION & RESEARCH FOUNDATION
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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HYPEREMESIS EDUCATION & RESEARCH FOUNDATION

Board of directors
as of 2/26/2021
SOURCE: Self-reported by organization
Board co-chair

Kimber MacGibbon

HER Foundation

Term: 2003 -


Board co-chair

Jeremy King

HER Foundation

Marlena Fejzo

USC/UCLA

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? No
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No

Organizational demographics

SOURCE: Self-reported; last updated 11/01/2020

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female
Sexual orientation
Decline to state
Disability status
Decline to state

The organization's co-leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Male
Sexual orientation
Decline to state
Disability status
Decline to state

Race & ethnicity

Gender identity

 

Sexual orientation

No data

Disability