Epilepsy Foundation of Texas

Houston, TX   |  www.eftx.org

Mission

The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.

Ruling year info

1981

CEO

Mrs. Donna Stahlhut

Program Director

Rebecca Moreau

Main address

2401 Fountain View Dr. #900

Houston, TX 77057 USA

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Formerly known as

Epilepsy Foundation of Southeast Texas

Epilepsy Association of Houston/Gulf Coast

High Plains Epilepsy Association

EIN

74-2141084

NTEE code info

Human Service Organizations (P20)

Epilepsy (G54)

Epilepsy (G54)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Epilepsy is a hidden disease, rarely discussed, unlike many other serious medical issues. Due to the stigma of epilepsy, patients fear disclosing their diagnosis. As a result, families, and patients often struggle to find the tools to help them manage this severe diagnosis. Patients can become isolated and often suffer from depression--many cannot drive. Epilepsy has a prevalence rate equivalent to breast cancer in the U.S., yet it's one of the most under-funded and stigmatized conditions. The unpredictability of seizures presents challenges in daily life. One in 10 people will have a seizure in their lifetime, and one in 26 will develop epilepsy. Epilepsy Foundation Texas provides services in 176 counties in Texas.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Camping programs for children, teens, and adults.

The Epilepsy Foundation’s award winning camping program is the largest camp in the country for children and teens with epilepsy. At a cost of $1,000 per camper, the Foundation strives to provide this life changing camp experience, at no cost to families dealing with this expensive medical condition. Since 1991, the Epilepsy Foundation has conducted a summer camp program. From a humble beginning of 40 campers with one week long summer camp, the Foundation is now serving nearly 300 children and teens each summer through three amazing summer camp programs. The Foundation is incredibly proud to offer three different week-long residential camps throughout the state of Texas: Camp Spike ‘n’ Wave® in Burton, TX (for children ages 8 to 14), Kamp Kaleidoscope® in Anna, TX (for teens ages 15 to 19), and Camp Neuron in Kerrville, TX (for children ages 8 to 14). At these camps, there are approximately 150 counselors and 20 medical professionals that provide care and supervision to our campers.

Population(s) Served
Adolescents

Provide necessary medical diagnosis, treatment and care management for adults with epilepsy that have no insurance or access to government funding. Includes clinic sites in Houston, Beaumont, Lufkin, Grapevine, Fort Worth, Amarillo and Lubbock. These clinics fill the gap so that the emergency room does not become a primary care facility.

Population(s) Served
Adults

Through trained professionals and volunteers we seek to educate the general public about epilepsy, seizures and appropriate seizure first aid. We have programs specific to a variety of target audiences and ages. Including First responders, school nurses, employers, college students, employees, students of all ages, and senior citizens.

Population(s) Served
Adults

we offer a variety of activities for people with epilepsy and their caregivers to encourage overall quality of life and wellness. Most successful is our GetFit Texas project which provides fitness and nutrition coaching to people with disabilities of all types. We also offer Art Therapy groups, support groups and case management.

Population(s) Served
Adults

Where we work

Accreditations

American Camping Association (ACA) - Accreditation 2012

Better Business Bureau Wise Giving Alliance 2016

Texas Department of Health & Human Services 2014

Charity Navigator 2016

Awards

Affiliate of Year 2008

Epilepsy Foundation National

Standards of Excellence 2009

Epilepsy Foundation National

Golden Circle 2010

Epilepsy Foundation National

Affiliations & memberships

Epilepsy Foundation 1983

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

The Epilepsy Foundation Texas' goals include ensuring access to specialized medical care for those most in need, providing experiences to enrich the lives of individuals and families living with epilepsy, and delivering easy access to reliable information, resources, and support services. Our mission is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives. We believe life doesn't have to be different because you have seizures.

The Epilepsy Foundation Texas offers a variety of programs and services to help you live life to the fullest. All of our programs and services are designed to help you overcome the challenges created by epilepsy. Current Foundation activities include the following programs:

Adult Services – Adults diagnosed with epilepsy receive specialty medical care through one of the Foundation's free medical clinics, advocacy, education, and social and support programs. A multi-week art program and a Family Camp Weekend are also in place.

Children's Services – Families of children diagnosed with epilepsy receive advocacy, education, social, and support programs. Also provided are week-long recreational opportunities for children ages 8 to 14, Camp Spike' n' Wave® and Camp Neuron®, and Kamp Kaleidoscope® for teens with epilepsy ages 15 to 19. A Transition Education Program is offered to teens (ages 12-19) and parents to learn how to become adults living with a chronic condition. Topics include healthcare, school, work, social relationships, and seizure management.

Community Education – Up to date epilepsy information is available through in-services to businesses and community organizations. Teacher and school nurse training is provided through the Center for Disease Control and Prevention (CDC).

Information and Referral – Individuals diagnosed with epilepsy and their families can obtain accurate information about epilepsy and available programs and services in the region.

Support and Activity Groups – Adolescents, adults, and parents gather to meet others coping with similar issues, make friends, and gain support from others' experiences.

The Epilepsy Foundation Texas has FREE medical clinics in 7 different cities that provide specialty care throughout Texas's 176 counties. There are week-long recreational opportunities for children ages 8 to 14, Camp Spike' n' Wave® and Camp Neuron®, and Kamp Kaleidoscope® for teens with epilepsy ages 15 to 19. We have various support groups for adolescents, adults, and parents to meet other coping with similar issues throughout the state. Through education, by the end of 2020, we will assist in training 700,000 school personnel in seizure first aid and recognition as well as countless other businesses, families, and community organizations.

Highly qualified staff with years of experience lead the programs and services. We have strong partnerships and support from the community. Our Board of Directors is robust and deeply engaged. Many personally impacted by epilepsy. The Foundation also has a Professionally Advisory Board of leaders from the medical community. With the help of volunteers, we reach even more people. EFTX receives funding from individuals, corporations, private foundations, and state funding. With these resources, we can provide all of our services at NO COST.

The most critical need for people with epilepsy is expert medical management. Specialized medical care is fundamental to limiting seizure activity. Through nine clinic locations in the state, people with epilepsy who have nowhere else to turn, look to the Epilepsy Foundation Texas to receive this life-saving care. The Foundation provides medical care to more than 1,000 patients each year. Patients receive all necessary clinic visits, diagnostic testing, and prescription drugs at no cost. The Epilepsy Foundation Texas provides specialty medical care at an average price of $1,000 per patient annually.

Approximately 300 youths from ages 8-19, gain this magical experience each summer through one of the Epilepsy Foundation Texas' three, week-long summer camps. Nearly 100 individuals are served through the Family Camp each fall. Summer camp provides young people the opportunity to grow in confidence, social skills, and self-esteem. Activities encourage campers to overcome challenges, support each other, and have fun. The cost to send one child to one week of summer camp is $1,200. The cost of a family camp is $200 per person for the weekend retreat.

Nothing can disarm fear, prejudice, and misunderstanding like knowledge. Epilepsy information and first aid are presented to over 20,000 people each year at schools, job sites, conferences, police departments, and community organizations. Our education programs cover a broad spectrum of the community, including free school nurse and personnel seizure first aid, transition education for teens and parents, epilepsy education programs, support groups, and much more.

Educational presentations not only provide proper first aid training for seizures but also promote epilepsy awareness and acceptance of those living with seizures.

We have strengthened our programs within the communities and ensured that the current plans are effective, especially during the COVID-19 crisis. We strive to reach more outlying areas and under-represented segments within our community.

Financials

Epilepsy Foundation of Texas
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
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  • Compare nonprofit financials to similar organizations

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Epilepsy Foundation of Texas

Board of directors
as of 2/25/2021
SOURCE: Self-reported by organization
Board co-chair

Mrs. Stephanie Fokas


Board co-chair

Mr. Chuck Sparks

Rick Anderson

Rick Wood

Alex Inman

Jarrod Burgess

Katherine Lett

Chris Justl

Paxton Dunn

D.J. Hunt

Cathy Waller

Bobbi Gray

Levi Siebenlist

Jim Semans

Denise Webb

Martha Del Torro

Mark Folladori

Julie Panger

Jeremy Stauss

R. Jason Richey

R. Jason Richey

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes