SICKLE CELL TEXAS MARC THOMAS FOUNDATION

Improving the quality of life for families affected by sickle cell disease and sickle cell trait through case management, care coordination, education and research

aka Sickle Cell Association of Texas Marc Thomas Foundation   |   Austin, TX   |  www.sicklecelltx.org

Mission

The mission of the Sickle Cell Association of Texas Marc Thomas Foundation is to improve the quality of life for Texas individuals and families affected by sickle cell trait and sickle cell disease through education, case management, research and supportive services throughout.

Notes from the nonprofit

We sincerely appreciate you learning more about our agency! We support hundreds of families and would love your support, please visit our website: www.sicklecelltexas.org to learn more.

Ruling year info

2000

President & CEO

Linda Wade

Chief Operating Officer & Attorney

Alysian Thomas

Main address

314 E Highland Mall Blvd Ste 411

Austin, TX 78752 USA

Show more contact info

EIN

74-2934173

NTEE code info

Specifically Named Diseases (G80)

Family Services (Adolescent Parents) (P45)

Counseling Support Groups (F60)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Sickle Cell Disease not only causes physical pain, but also creates psychological and social impairments. The Sickle Cell Association of Texas Marc Thomas Foundations seeks to provide a beacon of hope for families affected by providing: emotional and social support through case management, counseling, care coordination, education to alleviate physical pain and symptoms, financial assistance and other supportive services.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Camp Cell-A-Bration

A special needs camp for children with sickle cell disease ages 6-14.

Population(s) Served

Educating families affected by sickle cell disease and sickle cell trait. We also provide sickle cell testing for the at-risk community

Population(s) Served

Providing referrals and individual needs to clients.

Population(s) Served

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of educational screenings

This metric is no longer tracked.
Totals By Year
Related Program

Education and Sickle Cell Testing

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Number of at-risk individuals tested for sickle cell trait and provided with certified sickle cell hemoglobinopathy education

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

The mission of the Sickle Cell Association of Texas Marc Thomas Foundation is to educate, support and improve the quality of life for families affected by sickle cell disease and sickle cell trait through disease management education, sickle cell testing, supportive social services and other beneficial programming.

Since 1997, this nonprofit organization has served large populations affected by sickle cell by providing certified hemoglobinopathy education, case management and supportive services.

By having a diverse and highly skilled staff, and through community partnerships the Sickle Cell Association of Texas Marc Thomas Foundation can successfully administer its program. This agency is staffed with a licensed clinical social worker, certified case manager, three community health workers and five certified hemoglobinopathy educators.

The Sickle Cell Association of Texas Marc Thomas Foundation successfully served more than 3,500 clients last year with its program services. Although, this is a highly successful number, the needs for the sickle cell population are substantially high and program services are still needed. We are also the only HRSA sub-awardee in the state of Texas to provide sickle cell disease patient care coordination.

Financials

SICKLE CELL TEXAS MARC THOMAS FOUNDATION
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
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  • Compare nonprofit financials to similar organizations

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SICKLE CELL TEXAS MARC THOMAS FOUNDATION

Board of directors
as of 07/08/2019
SOURCE: Self-reported by organization
Board chair

Sharon Newcomb-Kase

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes