CARE & PREPARE ( formerly CQEC )

"Choose your Champion!"©

aka CARE & PREPARE   |   Fort Worth, TX   |  https://www.careandprepare.org

Mission

Our vision is to foster a culture in which All people live well All of their days. Our mission is to stimulate end of life conversations through education. It is always too early – until it's too late! Did you know that all of the landmark cases for End-of-Life Care involved young adults in their 20s? Accidents, illness, and injury can surprise anyone.    We believe everyone should have the opportunity to Steward their legacy regardless of their age or station in life because each life is valuable.

Notes from the nonprofit

Our dream: Provide All Texans with Advance Care Planning (ACP) & ability to retrieve those decisions by clinicians; our beta site will start in DFW & grow statewide. Most of the audience we reach are elderly, fixed income, many terminally ill. This project will target BIPOC (Black, Indigenous & people of color) communities because of their disproportional suffering with Covid & lack of ACP; to survey, inform them of their healthcare rights & responsibilities. Ideally, partnering with training institutions for research & to increase health literacy & health education of BIPOC & training new clinicians along the way This social intervention of providing ACP education, with documentation & storage is a radical change from the status quo. We seek for all Texans to benefit. Medicine is making a quantum leap from a paper & patriarchal system to shared decision making & digitization of consent & ACP are necessary steps for best outcomes.

Ruling year info

2012

Executive Director

Ms. Leah R. Wingard

Main address

PO Box 12424

Fort Worth, TX 76110 USA

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Formerly known as

COALITION FOR QUALITY END-OF-LIFE CARE INC

EIN

74-3230134

NTEE code info

Alliance/Advocacy Organizations (P01)

Leadership Development (W70)

IRS filing requirement

This organization is required to file an IRS Form 990-N.

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Communication

Blog

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Our Dream for ACP in Texas ACP as it should be: Person-Centered, Integrated, Care Concordant & Accessible. ACP as it is: Nonexistent, Institution specific, & rarely accessible. We believe in = "ACP for All." Let’s change this now for All Texans! Our Goal: To revolutionize the process of Advance Care Planning (ACP) in Texas We are a small nonprofit with a revolutionary idea & a long track record of success. For 20+ years we’ve been organized & run by volunteers: primarily nurses, social workers, chaplains and few physicians as their time would permit in Fort Worth. We’re seeking support for this project. Covid changed things. Texans are more aware that their healthcare status could change in an instance. We have a death averse culture, so dying & end of life issues are rarely discussed even with some terminally ill patients. This is not an acceptable standard of healthcare.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

"ACP for All"

We plan for everything, but why not our medical care wishes?

We have a death averse culture, so dying & end of life care issues are rarely discussed even with some terminally ill patients. This is not an acceptable standard of care.

COVID has brought the subject of mortality to the forefront & we are making the most of the opportunity to help people understand their healthcare rights & responsibilities for young and old alike. One of the first steps is to "Choose your Champion!"© through designating your Medical Power of Attorney.

Currently, the minority community is suffering greatly from COVID and our hearts are broken. However, we believe we have developed a new sustainable model for reaching the BIPOC community with a compelling message. We need your help to embed our facilitators in the community.

Will you help us reach our neighbors with this important & timely information?

Population(s) Served
Adults
Ethnic and racial groups
People with diseases and illnesses
Economically disadvantaged people

Our dream: Provide All Texans with ACP & ability to retrieve those decisions by clinicians; our beta site will start in DFW & grow statewide. Most of the audience we reach are elderly, fixed income, many terminally ill. This project will target BIPOC (Black, Indigenous & people of color) communities because of their disproportional suffering with Covid & lack of ACP; to survey, inform them of their healthcare rights & responsibilities. Ideally, partnering with training institutions for research & to increase health literacy & health education of BIPOC & training new clinicians along the way.

This social intervention of providing ACP education, with documentation & storage is a radical change from the status quo. We seek for all Texans to benefit – especially our BIPOC neighbors, who may not have understood their health care rights & responsibilities.

Medicine is making a quantum leap from a paper & patriarchal system to shared decision making & digitization of consent & ACP are necessary steps for best outcomes. These research Qs maybe novel.

C&P participated in a study that was reported in JAMA Network May 2020. The research question was: “Can a low-cost, easily scaled, end-of-life conversation game motivate underserved African American individuals to engage in advance care planning?” Currently, less than 25% of BIPOC have ACP planning. Hence, they are less likely to have their medical care wishes known & honored. This more informal approach to ACP yielded an increase in ACP completion. If we want to increase concordant ACP wishes & care with BIPOC, then better methods of communication are in order to decrease the disparity.

https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2765685?utm_campaign=articlePDF%26utm_medium%3darticlePDFlink%26utm_source%3darticlePDF%26utm_content%3djamanetworkopen.2020.4315

Population(s) Served
Adults
Ethnic and racial groups
Health

We provide credentialed training in Respecting Choices® First Steps® ACP Facilitator Certification is designed for professionals such as social workers, nurses, clergy, physicians, Stephen Ministers, volunteers, and others involved in assisting patients and residents in making end-of-life treatment decisions. All healthy adults over age 18 should reflect on their medical care wishes and document their decisions.

Our training is evidence based & value neutral so participants can puzzle out their own priorities.

Advance Steps training is designed to help participants learn the skills needed to have end-of-life discussions with frail elders or those living in long-term care facilities.

Population(s) Served
Adults
Ethnic and racial groups
Health

Respecting Choices is an evidence-based advance care planning program. This Respecting Choices Certification Workshop will offer training and certification opportunities for Last Steps Advance Care Planning Facilitator candidates. This training is designed to help participants learn the skills needed to have end-of-life discussions with frail elders or those living in long-term care facilities.

Population(s) Served

Where we work

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Our dream: Provide All Texans with Advance Care Planning (ACP) & ability to retrieve those decisions by clinicians; our beta site will start in the Spring of 2021 in Ft. Worth & grow statewide.

Our challenge: To revolutionize the process of ACP in Texas by creating a registry of all Texan’s ACP documents & make those medical wishes available so any physician with a web browser can know & honor those healthcare decisions. Few Texans have ACP documents; studies show our minority communities have even less.

The elderly, terminally ill & underserved populations are struggling the most with Covid. Ours is a unique effort to reach the terminally ill, the frail & our minority community by embedding into physician’s offices & other trusted partners.
This social intervention of providing ACP education, with documentation & storage is a radical change from the status quo. We seek for all Texans to benefit – especially our BIPOC neighbors, who may not have understood their health care rights & responsibilities. C&P participated in a study that was reported in JAMA Network May 2020. 1 The research question was: “Can a low-cost, easily scaled, end-of-life conversation game motivate underserved African American individuals to engage in advance care planning?” Currently, less than 25% of BIPOC have ACP planning. Hence, they are less likely to have their medical care wishes known & honored. This more informal approach to ACP yielded an increase in ACP document completion. If we want to increase concordant ACP wishes & care with BIPOC, then better methods of communication are in order to decrease the disparity.

Other states have brought multiple orgs together to accomplish ACP. C&P is fortunate to have a new Board President, Rev. Dr. Mike Johnston, who has helped build a coalition in South Carolina ($2.3 million project). C&P is collaborating with others to increase health literacy, health education & build a state registry. This is another example of how public & private funding can benefit marginalized people. Upfront we are utilizing gifts to develop the concept. Goal: Sustainable program. Initial education for partners will require philanthropic support; increase our development & create a revenue generating ACP Benefit service to assist the community at large & fund our program. We will start with part-time admin & facilitators to launch our efforts in Dr. Jerry Barker’s Oncology office.
Medicine is making a quantum leap from a paper & patriarchal system to shared decision making & digitization of consent & ACP documents are necessary steps for best outcomes.

1. We are simplifying the confusing technical language frequently used in ACP
2. We are embedding our uniquely trained ACP facilitators into healthcare systems & trusted community partners
3. We are collaborating with other nonprofits to fundraise for a statewide ACP registry
4. We are partnering with Vynca Health for a solution that empowers clinicians, patients, and caregivers through the planning for end-of-life care

1. Highly motivated, well trained volunteers & staff
2. Collaborating with influential clinicians
3. Developing a sustainable business model for ACP reimbursement
4. Based on studies that have shown improved Patient, Family & Physician satisfaction

"ACP for All." is a new program in 2021 pulling together successful elements of our practice in a new way.

Thus far we have:
Identified pioneering partners: Care & Prepare, Texas Talks, VITAS Healthcare & VYNCA health
Developing crucial data points needed to capture
Hammering out workflow of ACP for ALL in clinical setting
Contracting for initial key personnel

Goal is for beta site to launch in Spring 2021 in Ft. Worth, TX.

Financials

CARE & PREPARE ( formerly CQEC )
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Operations

The people, governance practices, and partners that make the organization tick.

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CARE & PREPARE ( formerly CQEC )

Board of directors
as of 4/6/2021
SOURCE: Self-reported by organization
Board chair

Rev., Dr. Mike Johnston

Care & Prepare and Baylor All Saints Ft. Worth

Term: 2021 - 2021

Jane Oderberg

UNTHSC

Karen Johnson

Telschow Johnson Law

Dr. Jerry Barker

Texas Cancer Specialists

Dr. Kendra Belfi

MD, Retired

Wendy Parker

Vitas Hospice

Stephanie Broussard

Texas Oncology

Jeong Kim

THR