PLATINUM2023

Leukemia Texas

Patient Aid. Research. Innovation.

aka LeukemiaTexas, Inc.   |   Dallas, TX   |  www.leukemiatexas.org

Mission

Helping Texans Beat Leukemia through Patient Aid, Research, and Innovation. Leukemia Texas is an independent, nonprofit organization that supports leukemia patients of all ages throughout the state of Texas with Patient Aid and Research through our inclusive programs, partnerships and participation.

Notes from the nonprofit

Leukemia Texas has achieved "Platinum-Rated" status from Great Nonprofits for multiple consecutive years.

Ruling year info

1972

Principal Officer

Mrs. Jessica Dunn

Main address

3000 Pegasus Park Drive Suite 710

Dallas, TX 75247 USA

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Formerly known as

Leukemia Association of North Central Texas, Inc.

EIN

75-1327679

NTEE code info

Health (General and Financing) (E80)

Human Services - Multipurpose and Other N.E.C. (P99)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Leukemia Texas addresses two key needs with our programs. The primary issue for the majority of Leukemia Texas patients and their families is the crippling out-of-pocket costs for lifesaving treatments and/or managing the costs for basic necessities in the face of overwhelming financial expenses for medical care; basic necessities such as food, shelter, and travel expenses for necessary hospital/doctor visits, etc. This need is directly addressed through the Patient Aid Program and provides financial assistance for patients and families to help cover the costs of medications, out-of-pocket expenses, and/or basic needs. The second area of need is for a cure for leukemia, and its various types. Through the Research Grant Program, Leukemia Texas is supporting leading medical advancement for new treatments and therapies, and an eventual cure for leukemia.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Patient Aid

Leukemia Texas Patient Aid Program provides financial assistance to leukemia patients to help offset the cost of life-saving treatments, and/or provide for their basic needs, such as housing, nutrition, home care, and transportation for medical needs, to name a few. This program currently serves hundreds of children and adults each year.

Population(s) Served
People with diseases and illnesses
Families

The Leukemia Texas Research Program awards grants for research to develop new and improved methods of treatment that may ultimately lead to a cure for leukemia.

Population(s) Served
People with diseases and illnesses

This program provides a stuffed bear to our patients so that they are never alone and have a buddy with them always in their journey. Donors are able to adopt a Buddy to provide patients all over the state with a friend of their very own.

Population(s) Served

This program provides customized hard shell rolling suitcases to leukemia patients for their hospital stays and travel for care.

Population(s) Served

Where we work

Affiliations & memberships

GuideStar 2019

Best Places to Work for Working Parents 2022

Great NonProfits Seal of Approval 2022

Best Places to Work for Working Parents 2023

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of clients served

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with diseases and illnesses

Related Program

Patient Aid

Type of Metric

Output - describing our activities and reach

Direction of Success

Holding steady

Context Notes

The annual total of patients served through the Leukemia Texas Patient Aid Program. These values reflect individual patients, and do not include the hundreds more family members served, as well.

Average number of dollars per person served

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with diseases and illnesses

Related Program

Patient Aid

Type of Metric

Output - describing our activities and reach

Direction of Success

Holding steady

Context Notes

Indicates the amount of Leukemia Texas Patient Aid assistance disbursed to each patient during the fiscal year.

Total number of dollars disbursed to patients and families during the fiscal year?

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with diseases and illnesses

Related Program

Patient Aid

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

The combined amount of Patient Aid distributions made during the fiscal year. (Fiscal year numbers: 2019 = July 1, 2018 - June 30, 2019.)

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Leukemia Texas seeks to provide much needed support and assistance to Texas patients struggling with the blood cancer, leukemia. Leukemia Texas also makes considerable effort and investment towards an eventual cure for leukemia through funding of cutting edge research and innovative therapies. Through this dual approach to care, Leukemia Texas aims to be a leader in the fight towards eradicating leukemia.

Leukemia Texas uses multiple resources to support our programs and overall goals. Through fundraising events, community outreach, volunteers, and strong relationships with donors and health care facilities, Leukemia Texas can provide both the research support and patient aid assistance to achieve our goals. Each of these components helps fill a financial need that directly impacts our patient community, research efforts, or supports a physical need through donated goods, services, and volunteer time.

Efforts towards patient support and investment towards a cure include the millions of research dollars to support leukemia research. Throughout the last few years, Leukemia Texas has supported research teams and programs across Texas by awarding grant funds ranging from $10K-$100K each fiscal year. Research supported by Leukemia Texas has made tremendous impact in the oncology community and continues to be recognized by national medical publications and institutes of health.

Leukemia Texas has strong relationships with donors, patients, volunteers, corporate supporters, and health care systems across Texas. Without the feedback and support of each of these entities, Leukemia Texas would not have the incredible success experienced throughout its history.

Leukemia Texas employs two full-time employees: a CEO and a Patient Aid and Program Manager. These individuals manage the operational and program needs of the organization with the guidance of a very active and supportive Board of Directors. Additionally, committed volunteers and generous donors help spearhead fundraising events and activities that continue the operational goals of Leukemia Texas, and directly support the Patient Aid and Research Programs. Through the combined efforts of the Leukemia Texas staff, Board of Directors, and partners, maximum effort is made to provide support to hundreds of patients across Texas yearly.

In its 53 years of existence, Leukemia Texas accomplishments have included $7.5M+ in funding towards research and serving tens of thousands of patients across the state, and hundreds of thousands of their loved ones through the Patient Aid program and Research Grant opportunities. While much has been accomplished, Leukemia Texas continues to look towards the greatest areas of need, and ways to impact our community members.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.
  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals

  • Which of the following feedback practices does your organization routinely carry out?

    We collect feedback from the people we serve at least annually, We take steps to get feedback from marginalized or under-represented people, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We tell the people who gave us feedback how we acted on their feedback, We ask the people who gave us feedback how well they think we responded

  • What challenges does the organization face when collecting feedback?

    We don't have any major challenges to collecting feedback

Financials

Leukemia Texas
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

Leukemia Texas

Board of directors
as of 01/19/2023
SOURCE: Self-reported by organization
Board chair

Roger Hendren

Retired Office Managing Partner of RSM US, LLP

Jenny Anchondo

KDFW FOX 4

Mike Egnal

Proforma Nitro Incentives

Roger Hendren

Cycle Bar

Rachel Williams

Williams Law, PC

Jay Long

Ingersoll Rand

Liz Minyard Lokey

Gretchen Minyard Williams

Ebby Halliday Realtors

Lewis Ropp

Barrow, Hanley, Mewhinney, & Strauss

Ernest Sims

Texas Oncology

Mark Smith

Veritex Bank

Travis Bryant

AmerisourceBergen

William McBee

RBC Capital Markets

Karen Pinkstaff

RSM, Healthcare Audit Partner

Dr Shane Fernando UNT Health Sciences

Lois Bowman Community Advocate

Dr. Paul Bowman Retired

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 1/19/2023

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender (cisgender)
Sexual orientation
Heterosexual or straight
Disability status
Person with a disability

Race & ethnicity

Gender identity

 

Sexual orientation

Disability

We do not display disability information for organizations with fewer than 15 staff.

Equity strategies

Last updated: 11/04/2020

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We review compensation data across the organization (and by staff levels) to identify disparities by race.
  • We ask team members to identify racial disparities in their programs and / or portfolios.
  • We analyze disaggregated data and root causes of race disparities that impact the organization's programs, portfolios, and the populations served.
  • We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
  • We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
  • We disaggregate data by demographics, including race, in every policy and program measured.
  • We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
Policies and processes
  • We use a vetting process to identify vendors and partners that share our commitment to race equity.
  • We have a promotion process that anticipates and mitigates implicit and explicit biases about people of color serving in leadership positions.
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We have community representation at the board level, either on the board itself or through a community advisory board.
  • We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
  • We measure and then disaggregate job satisfaction and retention data by race, function, level, and/or team.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.