SILVER2022

Lupus Foundation of America, Lone Star Chapter

aka Lupus Foundation of America, Lone Star Chapter   |   Addison, TX   |  www.lupuslonestar.org

Mission

The Lupus Foundation of America, Lone Star Chapter is dedicated to improving the quality of life for all people affected by lupus through programs of research, education, support, and advocacy.

Ruling year info

1980

President & CEO

Mrs. Elizabeth Norweb Roth

Main address

14675 Midway Road Suite 201

Addison, TX 75001 USA

Show more contact info

EIN

75-1561127

NTEE code info

Diseases, Disorders, Medical Disciplines N.E.C. (G99)

Specifically Named Diseases Research (H80)

Specifically Named Diseases (G80)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Sign in or create an account to view Form(s) 990 for 2023, 2022 and 2021.
Register now

Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

An estimated 1.5 million Americans have lupus, including 120,000 Texans. There is not a single test to diagnose lupus, it's a complicated autoimmune disease that can cause damage to any organ system in the body. Ninety percent of those with lupus are women in childbearing years, however, men, children, and teenagers develop lupus as well. For most people with lupus, early diagnosis and proper treatment can minimize symptoms, reduce inflammation and pain, and stop the development of serious organ damage. Our education programs and services provide needed help to the lupus population served by the Lupus Foundation of America, Lone Star Chapter.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Ask the Experts Educational Program

Workshops designed for lupus patients, their families, and caregivers. Presentations by lupus experts followed by Q&A session.

Population(s) Served
Adults

Packet of information sent to recently diagnosed lupus patient or individual who needs specific information about lupus. Packet includes: lupus facts, doctors' referral list, current programs and events, Lupus News most recent newsletter, Lupus Now magazine, list of resources for people without insurance, and list of local clinical trials.

Population(s) Served
Adults

Educational teleconference series on a variety of topics designed to link lupus patients with important information about living with lupus. This program is a new opportunity to learn up-to-date information about lupus from the comfort and privacy of home by calling into a designated number to hear an interactive presentation lead by a lupus expert.

Population(s) Served
Adults

Support groups

Population(s) Served
Adults

Where we work

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

1. Create awareness of the disease and advocate on behalf of all who suffer lupus.
2. Advance the medicine and science of lupus
3. Support people with lupus and their professional healthcare providers.
4. Achieving financial strength through diversified, sustainable resources and insure organizational capacity.

1.a - Promote national awareness campaigns and chapter activities and events through local and regional media placements.
1.b - Reach increased numbers of people through newsletters and electronic communications.
1.c - Collaborate with partnering organizations to raise awareness of lupus and the LFA with its constituents.
1.d - Engage chapter advocates in grassroots support for federal initiatives.
1.e - Partner with national LFA on specific awareness campaigns.
2.a - Embrace and articulate LFA’s dual mission of providing support and finding a cause and cure.
2.b - Directly support the LFA National Research Program and engage donors in LFA research efforts.
2.c - Promote education on Clinical Trials.
2.d - Include Research Updates in Chapter newsletters and other materials.
2.e - Invite lupus researchers to speak at educational programs and events.
3.a - Have a robust program of educational offerings for people with lupus and their families with a variety of methods and venues.
3.b - Position the chapter as the “go to” organization for comprehensive information and referrals to community resources.
3.c - Reach individuals and families to provide relevant support at the point when they need it.
3.d - Become a source of education for health care professionals.
4.a - Build strong, engaged board that pays attention to succession planning.
4.b - Create an effective partnership between board and CEO.
4.c - Diversify revenue streams to ensure growth and sustainability.
4.d Board fully participates in planning and implementing annual fundraising plan.
4.e - Board to oversee annual fundraising plan to accomplish a balanced program.

Board of Directors, Medical and Scientific Advisory Council, Program, Event, and Project Committees, Staff, and other volunteers as required by each strategy.

The Lupus Foundation of America, Lone Star Chapter serves over 16,000 people as of year ending 2018, through direct services such as: support groups, welcome packets, doctor referrals, teleconferences/webinars, annual lupus symposium, workshops, community health fairs, and fundraising/awareness events like the Walk to End Lupus Now and Evening of Hope for Lupus.

Financials

Lupus Foundation of America, Lone Star Chapter
lock

Unlock financial insights by subscribing to our monthly plan.

Subscribe

Unlock nonprofit financial insights that will help you make more informed decisions. Try our monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights?
Learn more about GuideStar Pro.

Operations

The people, governance practices, and partners that make the organization tick.

lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

Lupus Foundation of America, Lone Star Chapter

Board of directors
as of 12/02/2022
SOURCE: Self-reported by organization
Board co-chair

Ms. Dolores English

J D English Jewelers

Term: 2018 - 2019


Board co-chair

Ms. Brandi Agnew

Carolyn Teschemacher

Navigation Financial

Dolores English

English Associates

Tonya Muraguri

Tessie Holloway

LFA, Lone Star Chapter

Angela Johnson

Carmethia Sanders

Natalie Waskel

Athena Baumann

Texas Tech University

Leon "Beau" Palmer

Maggie Tarsino

The Allocation Company

Brandi Agnew

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes