Lupus Foundation of America, Lone Star Chapter
Programs and results
What we aim to solve
An estimated 1.5 million Americans have lupus, including 120,000 Texans. There is not a single test to diagnose lupus, it's a complicated autoimmune disease that can cause damage to any organ system in the body. Ninety percent of those with lupus are women in childbearing years, however, men, children, and teenagers develop lupus as well. For most people with lupus, early diagnosis and proper treatment can minimize symptoms, reduce inflammation and pain, and stop the development of serious organ damage. Our education programs and services provide needed help to the lupus population served by the Lupus Foundation of America, Lone Star Chapter.
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
Ask the Experts Educational Program
Workshops designed for lupus patients, their families, and caregivers. Presentations by lupus experts followed by Q&A session.
Information and Referrals
Packet of information sent to recently diagnosed lupus patient or individual who needs specific information about lupus. Packet includes: lupus facts, doctors' referral list, current programs and events, Lupus News most recent newsletter, Lupus Now magazine, list of resources for people without insurance, and list of local clinical trials.
Lupus Educational Teleconferences
Educational teleconference series on a variety of topics designed to link lupus patients with important information about living with lupus. This program is a new opportunity to learn up-to-date information about lupus from the comfort and privacy of home by calling into a designated number to hear an interactive presentation lead by a lupus expert.
Lupus Support Groups
Support groups
Where we work
External reviews

Photos
Goals & Strategy
Learn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
1. Create awareness of the disease and advocate on behalf of all who suffer lupus.
2. Advance the medicine and science of lupus
3. Support people with lupus and their professional healthcare providers.
4. Achieving financial strength through diversified, sustainable resources and insure organizational capacity.
What are the organization's key strategies for making this happen?
1.a - Promote national awareness campaigns and chapter activities and events through local and regional media placements.
1.b - Reach increased numbers of people through newsletters and electronic communications.
1.c - Collaborate with partnering organizations to raise awareness of lupus and the LFA with its constituents.
1.d - Engage chapter advocates in grassroots support for federal initiatives.
1.e - Partner with national LFA on specific awareness campaigns.
2.a - Embrace and articulate LFA’s dual mission of providing support and finding a cause and cure.
2.b - Directly support the LFA National Research Program and engage donors in LFA research efforts.
2.c - Promote education on Clinical Trials.
2.d - Include Research Updates in Chapter newsletters and other materials.
2.e - Invite lupus researchers to speak at educational programs and events.
3.a - Have a robust program of educational offerings for people with lupus and their families with a variety of methods and venues.
3.b - Position the chapter as the “go to” organization for comprehensive information and referrals to community resources.
3.c - Reach individuals and families to provide relevant support at the point when they need it.
3.d - Become a source of education for health care professionals.
4.a - Build strong, engaged board that pays attention to succession planning.
4.b - Create an effective partnership between board and CEO.
4.c - Diversify revenue streams to ensure growth and sustainability.
4.d Board fully participates in planning and implementing annual fundraising plan.
4.e - Board to oversee annual fundraising plan to accomplish a balanced program.
What are the organization's capabilities for doing this?
Board of Directors, Medical and Scientific Advisory Council, Program, Event, and Project Committees, Staff, and other volunteers as required by each strategy.
What have they accomplished so far and what's next?
The Lupus Foundation of America, Lone Star Chapter serves over 16,000 people as of year ending 2018, through direct services such as: support groups, welcome packets, doctor referrals, teleconferences/webinars, annual lupus symposium, workshops, community health fairs, and fundraising/awareness events like the Walk to End Lupus Now and Evening of Hope for Lupus.
Financials
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Operations
The people, governance practices, and partners that make the organization tick.
Connect with nonprofit leaders
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- Analyze a variety of pre-calculated financial metrics
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Connect with nonprofit leaders
SubscribeBuild relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.
Lupus Foundation of America, Lone Star Chapter
Board of directorsas of 12/02/2022
Ms. Dolores English
J D English Jewelers
Term: 2018 - 2019
Ms. Brandi Agnew
Carolyn Teschemacher
Navigation Financial
Dolores English
English Associates
Tonya Muraguri
Tessie Holloway
LFA, Lone Star Chapter
Angela Johnson
Carmethia Sanders
Natalie Waskel
Athena Baumann
Texas Tech University
Leon "Beau" Palmer
Maggie Tarsino
The Allocation Company
Brandi Agnew
Board leadership practices
GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.
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Board orientation and education
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes -
CEO oversight
Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes -
Ethics and transparency
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes -
Board composition
Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes -
Board performance
Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes