GOLD2024

WORLD CRANIOFACIAL FOUNDATION

Healing Children's Faces

aka WorldCF   |   Dallas, TX   |  www.worldcf.org

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Mission

For more than 34 years, we have raised millions of dollars to help save and change thousands of lives. Our partners across the globe work daily to transform the lives of children born with severe abnormalities of the head and face through access to the latest medical and surgical innovations. The WorldCF links families in great need with medical professionals on every continent to ensure that these children receive the excellent surgical and medical care they deserve, dramatically improving their quality of life and restoring their dignity. The WorldCF supports an international network of multidisciplinary experts who work tirelessly to help every youngster who is afflicted with devastating craniofacial defects.

Ruling year info

1990

Board Chair

Ken Salyer

Main address

7777 Forest Lane Suite C-616

Dallas, TX 75230 USA

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EIN

75-2304155

NTEE code info

Birth Defects (G20)

Rehabilitative Medical Services (E50)

Health Support Services (E60)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Blog

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

What if your child were among the one in every five- hundred kids around the world who are born with head or facial deformities that, if left untreated, would almost certainly ruin their lives? Founded in 1989 by craniofacial surgery pioneer Dr. Kenneth Salyer, the WorldCF links families in great need with medical professionals on every continent to ensure that these children receive the excellent surgical and medical care they deserve, dramatically improving their quality of life and restoring their dignity. The WorldCF supports a network of multidisciplinary experts who work tirelessly to help every youngster who is afflicted with devastating craniofacial defects. With our unparalleled international expertise and medical resources, we transform these children's faces and dramatically renew their lives.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Coordination of Treatment of Patients with Highly Complex Craniofacial Cases

Coordination of the treatment of patients with highly complex cases at WorldCF craniofacial centers spread across the globe. These centers already offer excellent care to indigent patients, and the WorldCF works closely with them to improve their services and expand their ability to care for the children who come to them. To administer this program, the directors of each center will become WorldCF surgeons-in-chief, and will actively coordinate patient care with the WorldCF. These centers currently have the ability to provide free surgical care for select patients.

Population(s) Served
Children and youth
Economically disadvantaged people

Creation of an Internet-based a Rapid-Dissemination Network, that helps educate medical professionals around the world about craniofacial best practices, diagnoses, treatment protocols, innovative surgical techniques, and much more. This program’s purpose is to share state-of-the-art surgical knowledge with medical professionals worldwide. The network’s initial outreach will be via a dedicated website, and will expand over time to include custom-designed software that incorporates the world’s foremost craniofacial database, teaching films, virtual-surgery teaching environments, webinars, and other tools to create a dynamic and highly effective online educational program. This program disseminates the knowledge and expertise of the foundation and its partner centers in treating the most-unfortunate few to the caregivers of thousands of patients around the world.

Population(s) Served
Caregivers
Children and youth

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of children who annually receive free or low-cost craniofacial surgery that allows them to live normal lives.

This metric is no longer tracked.
Totals By Year
Population(s) Served

Children and youth, Economically disadvantaged people

Related Program

Coordination of Treatment of Patients with Highly Complex Craniofacial Cases

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Acheived via the development of the WorldCF Virtual Learning, Planning and Modeling Program, utilizing digital modeling, 3D printing, and international teleconferencing,

Number of craniofacial surgeons and health professionals worldwide who become better caregivers with the help of WorlCF experience and expertise.

This metric is no longer tracked.
Totals By Year
Population(s) Served

Children and youth, Economically disadvantaged people

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Achieved via the WorldCF Visiting Professorship and current WorldCF medical directors traveling to each of the four WorldCF-affiliated centers twice each year to teach, train, and perform surgeries.

Number of established craniofacial centers worldwide that offer state-of-the-art care to indigent children in great need.

This metric is no longer tracked.
Totals By Year
Population(s) Served

Children and youth, Economically disadvantaged people

Related Program

Coordination of Treatment of Patients with Highly Complex Craniofacial Cases

Type of Metric

Context - describing the issue we work on

Direction of Success

Increasing

Context Notes

Acheived via the oordination of treatment of patients with highly complex cases at four WorldCF craniofacial centers spread across the globe that offer excellent care to indigent patients.

Number of educators who have opportunities to attend programs offered by professional organizations

This metric is no longer tracked.
Totals By Year
Population(s) Served

Children and youth, Economically disadvantaged people

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Acheived via the creation of an Internet-based rapid-dissemination network that helps educate medical professionals around the world about craniofacial best practices.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Families of children with complex craniofacial conditions and primary-care providers turn to WorldCF as the primary resource for the best ways to transform faces and dramatically improve lives. WorldCF maintains an international registry of craniofacial centers and professionals with the special expertise and knowledge necessary to provide the specific care needed at each stage of a complex craniofacial condition. WorldCF links patients and their families with highly skilled specialists by providing information and resources to access the best available treatment regardless of ability to pay and despite geographic location. International mission organizations like Operation Smile and Smile Train refer complex craniofacial cases to WorldCF and many of their volunteers also actively participate in WorldCF's interdisciplinary network. Medical, dental, and related professional specialty organizations support WorldCF's efforts to provide the human and financial resources necessary to deliver timely care wherever it is needed. In turn, WorldCF's interdisciplinary network of professionals helps these organizations expand their training and knowledge in complex craniofacial care by sharing case studies and providing opportunities for input regarding innovative solutions to complex conditions. Corporate and individual donors give generously to WorldCF to provide every child with craniofacial deformities the opportunity for a healthy and meaningful life.

Expansion of the Dr. Dane and Mary Louise Miller Visiting Professorship to include a medical professional staff person, current WorldCF medical directors, and foundation founder Dr. Kenneth Salyer.

Develop the WorldCF Virtual Learning, Planning and Modeling Program, utilizing digital modeling, 3D printing, international teleconferencing, and other tools to diagnose and plan surgical treatment for the most complex craniofacial cases worldwide. This program will combine the expertise of the world's foremost craniofacial surgeons, cutting-edge digital and 3D technology, and professional in-service education in active support of surgical care for specific patients in great need.

Coordinate the treatment of patients with highly complex cases at four WorldCF craniofacial centers spread across the globe. These centers already offer excellent care to indigent patients, and WorldCF will work closely with them to improve their services and expand their ability to care for the children who come to them. The centers and their directors are:
Hospital for Sick Children, Toronto; Dr. Ronald Zuker
Children's Hospital Los Angeles, USC; Dr. William Magee III
Hospital Dr. Manuel Gea Gonzalez, Mexico City; Dr. Alex Cardenas
Chang Gung Craniofacial Center, Taipei, Taiwan; Dr. Yu-Ray Chen

Create an Internet-based a Rapid-Dissemination Network to educate medical professionals around the world about craniofacial best practices, diagnoses, treatment protocols, innovative surgical techniques, and much more. This fourth program's purpose is to share state-of-the-art surgical knowledge with medical professionals worldwide. The network's initial outreach will be via a dedicated website, and will expand over time to include custom-designed software that incorporates the world's foremost craniofacial database, teaching films, virtual-surgery teaching environments, webinars, and other tools to create a dynamic and highly effective online educational program.

Create a registry of WorldCF volunteers willing to volunteer their expertise.

Prepare a tool kit to be used by board and staff to cultivate relationships at various gatherings that explains who we are, what we do, how to get involved.

The World Craniofacial Foundation is a nonprofit organization that provides:

Access to innovative surgical care for children and adults with abnormalities of the head and/or face.

Emotional support to patients and their families

Funding (cash or in-kind gifts) for transportation, lodging, meals and ancillary needs of patients and their families as they pursue treatment

Funding/fellowship programs for physicians undergoing advanced craniofacial training

Education about craniofacial abnormalities and treatment to patients, their families, government agencies, insurance companies, physicians in training and the public

Support for and distribution of craniofacial research to the medical community, government agencies, insurance companies, patients and their families

Advocacy for superb craniofacial patient care worldwide

The World Craniofacial Foundation, www.worldcf.org, will continue to vigorously support its global mission to transform the lives of children with highly complex craniofacial abnormalities. The foundation will sustain and enlarge its ongoing fundraising, marketing, and outreach endeavors. The WorldCF will also implement its four primary programs, which, beginning the second half of 2017, will allow the foundation to dynamically fulfill its mission in the United States and abroad far into the future.

Financials

WORLD CRANIOFACIAL FOUNDATION
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
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  • Compare nonprofit financials to similar organizations

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WORLD CRANIOFACIAL FOUNDATION

Board of directors
as of 01/18/2024
SOURCE: Self-reported by organization
Board co-chair

Kenneth Salyer, Jr.

World Craniofacial Foundation

Term: 2022 -


Board co-chair

Steve Murray

Michael Hatfield, J.D.

Catapult Energy Services Group

Lisa Arbogast

Promise Hill Project

Steven Murray

Centinel Spine

Tyler Head

Corbett Capital

Ken Salyer, Jr.

World Craniofacial Foundation

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No

Organizational demographics

SOURCE: Self-reported; last updated 1/3/2024

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Male, Not transgender
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

Gender identity

Transgender Identity

Sexual orientation

Disability

We do not display disability information for organizations with fewer than 15 staff.