National Breast Cancer Foundation, Inc.

Frisco, TX   |  www.nbcf.org

Mission

The National Breast Cancer Foundation’s (NBCF) mission is to help women now by providing help and inspiring hope to those affected by breast cancer through early detection, education and support services.

Notes from the nonprofit

Through our programs, NBCF continues to help women who cannot afford mammography services, provides early detection education, and targets research funding on early detection.

Ruling year info

1991

Chief Executive Officer

Mrs. Janelle Hail

Main address

7460 WARREN PKWY Suite 150

Frisco, TX 75034 USA

Show more contact info

EIN

75-2391148

NTEE code info

Fund Raising and/or Fund Distribution (E12)

Cancer (G30)

Cancer Research (H30)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Bridge gap between needs and resources Develop evidence-based solutions Build strategic partnerships Engage communities proactively

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Patient Services

NBCF partners with medical facilities across the United States to provide screening, diagnostic, and patient navigation services. Partner medical facilities are committed to providing breast cancer patients with the care they need at each step of the journey - early detection education, diagnosis, and survivorship. Finding breast cancer early is critical to survival, but many patients can’t afford the cost of screening or diagnostic tests. By providing these services through our network of medical facilities, NBCF helps provide equal access to early detection services for uninsured or underinsured patients. Patient navigators guide patients through and around the barriers of cost, fear, and misinformation in the complex cancer care system, delivering timely diagnosis, treatment, and support. NBCF’s medical facility network includes 85 partners, this year, NBCF provided 94,077 services through 43 of those partners. .

Population(s) Served
Women and girls
Economically disadvantaged people

NBCF educates how to reduce the risk of developing breast cancer, detect breast cancer early, and access screening programs and remove barriers to quality treatment if diagnosed. NBCF creates and delivers educational and awareness materials utilized by over 68,231,176. The “About Breast Cancer” section of NBCF’s website, www.nbcf.org, is an online guide to understanding breast cancer and helps those diagnosed with breast cancer understand the disease. NBCF also partners with Convoy of Hope® to provide vital breast health education to communities in need. These outreaches represent NBCF's larger commitment to advancing breast health education across the country, this year, 10 events were held. NBCF’s Community Ambassador program trains and equips community leaders to share breast health information and promote NBCF’s screening and navigation programs to those in need. This year 61 Community Ambassadors were fully trained.

Population(s) Served
Women and girls
Economically disadvantaged people

NBCF offers support services that help patients now and inspire hope to those affected by breast cancer. NBCF provides HOPE Kits, a tangible expression of hope, to comfort breast cancer patients in their time of need. 7,762 HOPE Kits were sent this year. NBCF’s HOPE Kits are packed by volunteers and filled with thoughtful items known to soothe the side effects from treatments, such as chemotherapy and radiation. NBCF offers support groups for patients in need of psychosocial and emotional support before, during, and after breast cancer treatment. NBCF held 18 support groups throughout the year. NBCF facilitates 4 metastatic breast cancer retreats serving 72 metastatic patients (stage 4 breast cancer) and caregivers. Patients and caregivers attending the metastatic breast cancer retreats receive renewed hope, increased knowledge, and the reminder that they are not alone.

Population(s) Served
People with diseases and illnesses

Where we work

Awards

Foundation of the Year 2006

White Memorial Medical Center

Texas Living Legend 2007

Metroplex Cadillac Dealers & Belo Broadcasting

Spirit of Compassion Award 2010

Swedish Covenant Hospital Foundation

The Anderson Assembly 2011

U.T. - MD Anderson Cancer Center

Lifetime Achievement Award 2011

American Italian Cancer Foundation

Halo Award 2012

Cause Marketing Forum

Halo Award 2013

Cause Marketing Forum

Compassion Award 2013

Convoy of Hope

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of women counseled about mammograms

This metric is no longer tracked.
Totals By Year
Related Program

Patient Services

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

NBCF's National Mammography Program partners with hospitals to provide breast cancer screening and diagnostic procedures to women across the country.

Patient Navigation for women in need

This metric is no longer tracked.
Totals By Year
Related Program

Patient Services

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Patient navigators guide patients through and around the barriers of cost, fear, and misinformation in the complex cancer care system, delivering timely diagnosis, treatment, and supports.

Breast Health Education

This metric is no longer tracked.
Totals By Year
Related Program

Education and Outreach Programs

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

NBCF provides vital breast health education to those in need by partnering with others in the community.

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

National Breast Cancer Foundation’s mission is to provide help and inspire hope to those affected by breast cancer through early detection, education, and support services.

NBCF aims to:

1. Increase access to early detection screening by offering free mammograms and diagnostic services to women and patients in need.

1 in 8 women will be diagnosed with breast cancer in her lifetime. There is currently no known cure for breast cancer, and its early diagnosis is critical to survival. When breast cancer is found in the earliest, localized stage, the 5-year relative survival rate is 99%. The best way to find breast cancer early is to follow a regular screening program.

2. Provide education to women and families about how they can:

• Reduce the risk of developing breast cancer
• Find breast cancer early
• Access screening programs and eliminate barriers to quality treatment if later diagnosed

Many women and families are unaware of the importance of early detection of breast cancer or that services are available to help them navigate the complex healthcare system. Studies have shown that people who are uninformed about their health are less likely to take advantage of early detection services like mammograms. These women are at a higher risk of dying from breast cancer because they are diagnosed at a later stage when the disease is harder to treat.

3. Offer support services that help now and inspire hope to those affected by breast cancer

No one should face breast cancer alone. Having the support of others is an important part of breast cancer survivorship, whether at the point of diagnosis or at any stage of the breast cancer journey. Patients facing breast cancer need comfort, encouragement, and a place to engage in healthy dialogue in order to reduce the stress and anxiety of diagnosis and treatment.

Sometimes breast cancer metastasizes or spreads to other parts of the body – lungs, brain, liver, or bones. Metastatic breast cancer patients face a unique set of emotions and challenges. They often feel misunderstood, ignored, and even isolated from other breast cancer survivors. Studies have shown that metastatic breast cancer patients need improved interventions and support to increase their quality of life.

- Create a community and provide support for women, family, friends, survivors, and anyone else touched by breast cancer to share their stories, ask questions and get answers.
- Educate the public at large about the significance of early detection while providing the breast health resources and knowledge to make informed decisions about their health.
- Provide funding to support a variety of early detection services for underserved women to gain access to medical care.

NBCF's program delivery tools include the following:
- Patient Navigator and Patient Services: Provides grants to hospitals in all 50 states to deliver a variety of diagnostic services, as well as outreach services, to underserved women.
- Breast Health Education Program: BHE provides breast cancer education and early detection services to women at community outreaches across the country. NBCF educates women about the importance of early detection and informs them about resources that are available in their community. Women are given the opportunity to receive free clinical breast exams from nurse practitioners.

NBCF has developed the aforementioned programs in order to dramatically decrease the barriers to breast health care, education and support. We have been able to reach all 50 states in the past 5 years through hospital and facility relationships. We continue to work with a variety of sponsors, organizations, and individuals to help raise awareness, and have formed partnerships with 3rd party organizations to help create and deliver breast health education to a targeted population of underserved women in need. NBCF is always striving to bring our programs to any and all women, and we hope to be able to one day fully fund all of the grant requests that come in our door, as the need is still bigger than our ability to financially fulfill it.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We demonstrated a willingness to learn more by reviewing resources about feedback practice.
done We shared information about our current feedback practices.
  • Who are the people you serve with your mission?

    NBCF educates women in the U.S. about how to reduce the risk of developing breast cancer, access screening programs, and find breast cancer early. According to the US Census, nearly 70 million Americans are uninsured or underinsured. NBCF serves this population by providing free mammograms and diagnostic services. NBCF utilizes patient navigation to target patients facing health inequity. Navigators promote health equity by decreasing the wait time between a suspicious finding and follow-up diagnostics. NBCF delivers HOPE Kits to recently diagnosed patients and offers support groups for patients and survivors in need of emotional support. NBCF also serves metastatic breast cancer patients through the metastatic retreat program.

  • How is your organization collecting feedback from the people you serve?

    Electronic surveys (by email, tablet, etc.), Focus groups or interviews (by phone or in person), Community meetings/Town halls, Constituent (client or resident, etc.) advisory committees, Suggestion box/email,

  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals,

  • What significant change resulted from feedback?

    We work to receive feedback from each of our focus areas within our programs: Conversations with partner hospitals regarding patient needs during the COVID-19 led to the creation of the NBCF COVID-19 Patient Relief Fund to help with basic human needs. Based on feedback collected directly and through our community partner, we learned that nearly 40% of all guests attending our large national outreach events were Spanish speakers. NBCF carried out an evaluation of all educational materials distributed and all training content to ensure every piece was available in both English and Spanish. We received feedback from several HOPE Kit recipients mentioning that adding lemon or ginger hard candy would be a great addition to help with a side effect that is experienced during chemo treatment.

  • With whom is the organization sharing feedback?

    The people we serve, Our staff, Our board, Our funders, Our community partners,

  • How has asking for feedback from the people you serve changed your relationship?

    Our purpose in seeking feedback is to ensure that we are always considering the shifting needs of our constituents – continually affected by a variety of factors external to NBCF. Since feedback is always requested from multiple people, the power and accountability is on us to make sure we hear all types of voices and integrate the suggestions and recommendations as they align with our mission, vision, values, and program pillars. Our focus areas are based off of unmet needs in our communities and filling in gaps within healthcare, so we continually want to ensure we are listening to patients, survivors, hospital and community partners who relay to us their greatest needs.

  • Which of the following feedback practices does your organization routinely carry out?

    We collect feedback from the people we serve at least annually, We take steps to get feedback from marginalized or under-represented people, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive,

  • What challenges does the organization face when collecting feedback?

    We don't have any major challenges to collecting feedback,

Financials

National Breast Cancer Foundation, Inc.
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
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  • Compare nonprofit financials to similar organizations

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National Breast Cancer Foundation, Inc.

Board of directors
as of 8/11/2021
SOURCE: Self-reported by organization
Board chair

Janelle Hail

National Breast Cancer Foundation, Inc.

Term: 1991 -

Janelle Hail

National Breast Cancer Foundation

Gabi Barbarena

ARAS Inc.

Steve Engle

Mad River Community Hospital

Lance Hamilton

Equator, LLC

Hal Donaldson

Convoy of Hope

Bryan Flanagan

Flanagan Training Group

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 2/10/2021,

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender (cisgender)
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

No data

Gender identity

No data

 

No data

Sexual orientation

No data

Disability

No data

Equity strategies

Last updated: 09/17/2019

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Policies and processes
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.