Disease, Disorders, Medical Disciplines

Children's Cardiomyopathy Foundation, Inc.

A Cause for Today... A Cure for Tomorrow

aka CCF

Tenafly, NJ

Mission

The Children's Cardiomyopathy Foundation (CCF) is a national, non-profit organization focused on pediatric cardiomyopathy, a chronic and potentially life-threatening heart disease that can affect children of all ages regardless of gender, ethnicity or socio-economic background. CCF is dedicated to finding causes and cures for pediatric cardiomyopathy through the support of research, education, awareness and advocacy.

Ruling Year

2002

Principal Officer

Ms. Lisa W. Yue

Main Address

P.O. Box 547

Tenafly, NJ 07670 USA

Keywords

cardiomyopathy, pediatrics, children, genetic disorders, medical research, heart disease, congenital heart defect

EIN

75-2986661

 Number

0664432262

Cause Area (NTEE Code)

Pediatrics (G98)

Heart and Circulatory System (G43)

Heart and Circulatory (H43)

IRS Filing Requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Programs + Results

What we aim to solve New!

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Our programs

What are the organization's current programs, how do they measure success, and who do the programs serve?

SOURCE: Self-reported by organization

CCF Pediatric Cardiomyopathy Research Grant Program

CCF & American Heart Association Pediatric Cardiomyopathy Joint Research Award

Accredited Center of Care Program

Where we workNew!

Charting Impact

Five powerful questions that require reflection about what really matters - results.

SOURCE: Self-reported by organization

What is the organization aiming to accomplish?

What are the organization's key strategies for making this happen?

What are the organization's capabilities for doing this?

How will they know if they are making progress?

What have and haven't they accomplished so far?

CCF remains committed to accelerating the search for cures through the support of research, education, and increased awareness and advocacy of pediatric cardiomyopathy. While there has been progress, there is still a significant amount of work to do.
CCF will continue to support promising research studies that will improve the management of children with cardiomyopathy and reduce the mortality and transplant rate associated with the disease. Our goal is to work towards a national clinical study to test therapies that address the underlying cause of the disease in the pediatric population.
In terms of patient care, CCF plans to work with top centers across the country to establish a more comprehensive care program. These programs draw upon the collective knowledge and expertise of practitioners from a range of medical disciplines including pediatric cardiologists, heart surgeons, pediatric cardiac nurses and specialists in genetics, psychiatry, neurology, immunology, child life, nutrition, social work and endocrinology.
Because cardiomyopathy is a leading cause of sudden cardiac death in the young, CCF is aiming to introduce awareness programs to the general public and pediatricians so that more at risk children with cardiomyopathy are diagnosed earlier and properly treated by specialists.

External Reviews

Financials

Children's Cardiomyopathy Foundation, Inc.

Fiscal year: Jan 01 - Dec 31

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  • Address, phone, website and contact information
  • Forms 990 for 2017, 2016 and 2015
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Operations

The people, governance practices, and partners that make the organization tick.

Need more info?

FREE: Gain immediate access to the following:

  • Address, phone, website and contact information
  • Forms 990 for 2017, 2016 and 2015
A Pro report is also available for this organization for $125.
Click here to see what's included.

Board Leadership Practices

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section, which enables organizations and donors to transparently share information about essential board leadership practices.

SOURCE: Self-reported by organization

BOARD ORIENTATION & EDUCATION

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?

No

CEO OVERSIGHT

Has the board conducted a formal, written assessment of the chief executive within the past year?

No

ETHICS & TRANSPARENCY

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year?

No

BOARD COMPOSITION

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?

No

BOARD PERFORMANCE

Has the board conducted a formal, written self-assessment of its performance within the past three years?

No