MELANOMA RESEARCH FOUNDATION
Programs and results
What we aim to solve
Skin cancer is the most common form of cancer in the United States, and melanoma is the deadliest type. Additionally, rare and aggressive subtypes of melanoma occur in other areas like the eye and mucosal surfaces of the body. Approximately 1.3 million Americans live with melanoma currently, and an estimated 207,000 more will be diagnosed this year. More than 7,100 will die from the disease. Despite these numbers, nearly 90% of melanoma diagnoses are considered to be preventable. The Melanoma Research Foundation (MRF) encourages melanoma awareness and education to promote prevention and early detection, while offering comprehensive patient and caregiver support resources and providing millions of dollars in research funding for better treatments and, one day, a cure for melanoma.
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
MRF Programs Description
Supports medical
research in finding effective treatments and eventually a cure for melanoma
through fundraising events such as Miles for Melanoma, educates patients and
physicians about prevention, diagnosis and the treatment of melanoma through
programs such as the MRF’s educational symposia, raises awareness of this
disease and the need for a cure through advocacy and media outreach.
Where we work
External reviews

Our results
How does this organization measure their results? It's a hard question but an important one.
Total number of grants awarded
This metric is no longer tracked.Totals By Year
Population(s) Served
Chronically ill people, Terminally ill people, Researchers, Students, Teachers
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Total dollar amount of grants awarded
This metric is no longer tracked.Totals By Year
Population(s) Served
Chronically ill people, Students, Teachers, Researchers
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Number of individuals attending community events or trainings
This metric is no longer tracked.Totals By Year
Population(s) Served
Chronically ill people, Caregivers, Activists
Type of Metric
Outcome - describing the effects on people or issues
Direction of Success
Increasing
Context Notes
This metric notes registered attendees at MRF Advocacy Days (formerly Advocacy Summit & Hill Day), bringing melanoma advocates to Washington, DC to meet their lawmakers and advocate for the community.
Number of participants attending course/session/workshop
This metric is no longer tracked.Totals By Year
Population(s) Served
Chronically ill people, Academics, People with vision impairments, Caregivers, Parents
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
Total attendees at 2020 CURE OM Patient & Caregiver Global Symposium, Pediatric Melanoma Summit and CURE OM Science Meeting. Additional event attendees reported in separate metric.
Goals & Strategy
Learn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
The MRF supports medical research for finding effective treatments and eventually a cure for melanoma. It educates patients and physicians about the prevention, diagnosis and treatment of melanoma and advocates for the melanoma community to raise awareness of this disease and the need for a cure. Creating better outcomes for people impacted by melanoma has been, and will continue to be, at the core of our mission.
What are the organization's key strategies for making this happen?
The Melanoma Research Foundation (MRF) is committed to advancing a broad scientific agenda across the disciplines of prevention, diagnosis and treatment. It is proud to collaborate with research institutions, investigators, government entities and various leading melanoma organizations. These critical partnerships aim to improve the quality and length of life for melanoma patients. The MRF's education department offers, free of charge, a broad variety of resources including a growing library of print materials, an online webinar series, a Certified Melanoma Educator program, in-person patient and caregiver symposia hosted throughout the country, and other outlets to expand melanoma education and awareness. The MRF is a dedicated advocate for the melanoma community and empowers a nationwide network of volunteers to make their voices heard. In addition to an annual Advocacy Summit in Washington, DC, the MRF coordinates year-round advocacy initiatives at the local, state and federal levels.
What are the organization's capabilities for doing this?
The MRF prides itself on having a dedicated staff, a committed Board of Directors (the majority of whom are melanoma survivors), advisory boards and partnerships with renowned researchers and institutions and an incredibly dedicated community of supporters who make our work possible. With a strong commitment to responsible stewardship, transparency and leadership in the field, the MRF will continue to advance the pace of melanoma research, education and advocacy. The MRF is also proud to partner with organizations like the National Council of Skin Cancer Prevention (NCSCP) and the Global Coalition for Melanoma Patient Advocacy. These partnerships advance our shared agendas and broaden the reach of research, treatments and potentially life-saving prevention and early detection messaging.
What have they accomplished so far and what's next?
The melanoma research landscape has seen tremendous progress in the last decade. Where treatment options were once highly limited, there are now over a dozen FDA-approved treatments, with even more currently in development. This research progress has been supported by over $21 million in funding from the MRF since our founding. Advocacy efforts have led to legislation that protects children and teens from the dangers of tanning, removes restrictions on sunscreen use in schools and has significantly increased federal funding for melanoma research. The MRF was instrumental in the creation of the Department of Defense Peer Reviewed Cancer Research Program, which has contributed over $50 million in government funding to melanoma research in the past decade. MRF education and awareness programs continue to promote the importance of early detection - when melanoma is highly treatable - and shift the public perception and dangerous message that skin must be tanned to be beautiful.
How we listen
Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.
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Who are the people you serve with your mission?
The Melanoma Research Foundation (MRF) serves patients, caregivers, supporters and loved ones in the melanoma community, as well as the researchers, physicians and scientists working to develop new, more effective treatments for melanoma. Additionally, the MRF seeks to increase education and awareness of melanoma and its prevention among the general public, so that fewer individuals and families will have to face this disease.
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How is your organization using feedback from the people you serve?
To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals
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What significant change resulted from feedback?
In response to the COVID-19 pandemic, MRF programs, events and patient services have transitioned to almost entirely virtual. Through the collection of surveys, targeted outreach and the consultation of steering committees consisting of constituents in our community, the MRF adapted these offerings to virtual programs, webinars and online fundraising events. Additionally, a new series of pre-recorded webinars and live \u0022Ask the Expert\u0022 broadcasts were developed around a wide variety of topics in response to the stated needs and interests of our community members.
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Which of the following feedback practices does your organization routinely carry out?
We collect feedback from the people we serve at least annually, We take steps to get feedback from marginalized or under-represented people, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We tell the people who gave us feedback how we acted on their feedback
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What challenges does the organization face when collecting feedback?
We don't have any major challenges to collecting feedback
Financials
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Operations
The people, governance practices, and partners that make the organization tick.
Connect with nonprofit leaders
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- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
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Connect with nonprofit leaders
SubscribeBuild relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.
MELANOMA RESEARCH FOUNDATION
Board of directorsas of 01/23/2023
Douglas Brodman
Mike Atkins
Alison Martin
Cheryl Stratos
Mark Weinzerl
Stan Adler
Doug Brodman
Glenn Merlino
Jill Wrobel
Tom Westdyk
Elise Barish
Laura Ferris
Board leadership practices
GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.
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Board orientation and education
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes -
CEO oversight
Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes -
Ethics and transparency
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes -
Board composition
Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes -
Board performance
Has the board conducted a formal, written self-assessment of its performance within the past three years? No
Organizational demographics
Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.
Leadership
The organization's leader identifies as:
Race & ethnicity
No data
Gender identity
Sexual orientation
No data
Disability
No data
Equity strategies
Last updated: 03/19/2021GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more
- We ask team members to identify racial disparities in their programs and / or portfolios.
- We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.