INTERNATIONAL ASSOCIATION FOR HOSPICE AND PALLIATIVE CARE INC
Towards a world free from health related suffering.
Programs and results
What we aim to solve
Worldwide, more than 25.5 million people a year (almost half of all deaths in 2015), including 2.5 million children, die with serious physical and psychological suffering as a result of disease, injury or illness. The number of people who experience serious health-related suffering is much higher, with an additional 35.5 million people requiring pain relief outside of end-of-life care. More than 80% of these cases are in low- and middle-income countries, where access to immediate release morphine, an essential and inexpensive medicine to alleviate pain, as well any other type of palliative care, is severely lacking.
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
Meetings, Seminars and Workshops
Program in to support palliative care provision in countries in low and middle income levels, including educational workshops and workshops on access to essential medicines. We convene roundtables with interagency representatives of government agencies responsible for procurement, education, and prescription of internationally controlled essential medicines to improve communications and strengthen supply chains.
IAHPC Scholarship Program
The goal of the IAHPC Scholarship Program is to provide financial assistance to palliative care professionals to attend events that will enable them to improve palliative care in their settings. These should ultimately lead to better and adequate policies and/or institutional norms, increased access to palliative care, as well as access to essential medicines for pain relief and palliative care.
Advocacy Program
The goal of the IAHPC Advocacy Program is the integration of Palliative Care into primary health care within the spectrum of universal coverage, and to improve access to adequate care for patients in need. The Advocacy Program aligns with the four thematic areas of work identified in the IAHPC 2020-2024 Strategic Plan and seeks to achieve the IAHPC Strategic Objective 1.2: “To develop a global cadre of IAHPC members to advocate for improved access to palliative care at national, regional, and global levels.” IAHPC works on the drafting and implementation of resolutions, agreements and strategies with international agencies of the United Nations and, by invitation, with governments.
Recognition Awards Program
The IAHPC gives annual recognition awards to individuals and institutions which have contributed to the advancement and provision of palliative care. The goal of this program is to promote the development of palliative care in the world.
The objectives of this Program are to:
- recognize individuals and institutions dedicated to alleviating serious health related suffering of patients and their families in order to improve their quality of life.
- bring these individuals and institutions to the attention of policy makers, other institutions, and relevant organizations.
Where we work
Affiliations & memberships
Non-state actor in official relations with the World Health Organization 2010
NGO in consultative status with the United Nations Economic and Social Council (ECOSOC) 2016
External reviews
Photos
Videos
Our results
How does this organization measure their results? It's a hard question but an important one.
Number of overall donors
This metric is no longer tracked.Totals By Year
Type of Metric
Input - describing resources we use
Direction of Success
Decreasing
Context Notes
The donor categories range from up to $99 to over $100,000.
Number of downloads of the organization's materials and explanations
This metric is no longer tracked.Totals By Year
Population(s) Served
Adults
Related Program
Advocacy Program
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
The IAHPC Advocacy program offers resources and tools that help palliative care workers learn skills to collaborate and work with their government representatives and policy makers, to improve care.
Number of members from priority population attending training
This metric is no longer tracked.Totals By Year
Related Program
IAHPC Scholarship Program
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
The IAHPC Scholarships provide financial support to regional and local leaders from low and middle income countries, to attend international meetings, congresses and other educational activities.
Our Sustainable Development Goals
Learn more about Sustainable Development Goals.
Goals & Strategy
Reports and documents
Download strategic planLearn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
IAHPC dedicated to the development and improvement of hospice and palliative care worldwide. Our mission is to serve as a global platform to inspire, inform and empower individuals, governments and organizations to increase access and to optimize the practice of palliative care. Our vision is universal access to high-quality palliative care, integrated into all levels of health care systems in a continuum of care with disease prevention, early diagnosis, and treatment, to assure that any patient’s or family caregiver’s suffering is relieved to the greatest extent possible.
Our main goal is a world free of health-related suffering.
The outcomes and changes that IAHPC is contributing towards are: Accelerated access to palliative care for those in need globally and increased global knowledge and evidence base for palliative care development.
What are the organization's key strategies for making this happen?
We focus on the advancement of palliative care in four areas: education, access to medicines, health policies, and service implementation. IAHPC works on three levels: at the grass roots, developing resources, and educational strategies that enable health workers to provide cost-effective palliative care, at the national level, working with government representatives to improve national policies to ensure adequate care and access to medicines; and at the international level, advocating with the UN organizations to ensure that access to palliative care and to essential medicines for palliative care and pain treatment is stipulated and incorporated as an obligation of member states.
The outputs (and IAHPC’s broad areas of work are covered under these four:
• Output 1: Increased access to palliative care – Strengthening global advocacy to increase access to palliative care.
• Output 2: Educated and skilled global workforce for palliative care delivery – Strengthening palliative care education and skills among providers globally.
• Output 3: Evidence based decision making in palliative care – Strengthening access to data, information, and global knowledge around palliative care to inform programming.
• Output 4: Positive stories and focused messaging to support and advance the global palliative care movement – Strengthening palliative care messaging, information, and communication to inspire global change.
What are the organization's capabilities for doing this?
IAHPC has several ongoing programs that support governments, institutions, NGOs, and individuals to advance hospice and palliative care around the world through: 1) Global Leaders in the Advancement and Development (GLAD) Program is designed to support palliative care workers who have demonstrated leadership capabilities, and who wish to advance palliative care in their own countries in line with United Nations (UN) Organizations resolutions and commitments and builds on the Leadership Development Initiative (LDI) to increase global palliative care capacity. 2) Global Palliative Care Database is an electronic health records to improve health care quality by information sharing for evidence based approaches and policies, and reduce the cost of care provision. 3) Meetings, Seminars, and Workshops that provides financial / technical support to international and regional palliative care organizations to help develop and implement palliative care educational events. 4) Travel Scholar and Fellow Programs that provides financial support to palliative care workers from developing countries to attend educational events or to teach in a low- or middle-income country. 5) Advocacy for the availability of appropriate care for patients with palliative care needs. This advocacy includes the recognition of access to palliative care as a component of the right to health care and access to essential medicines.
What have they accomplished so far and what's next?
Some of the accomplishments to date are the:
• IAHPC List of Essential Medicines for Palliative Care
• WHO List of Essential Medicines for Palliative Care
• List of Essential Practices in Palliative Care and the Opioid Essential Prescription Package
• Palliative Care Competencies for Undergraduate Medical Universities and Nursing Schools
• Opioid Price Watch to monitor and report the dispensing prices of opioids around the world
• Atlas of Palliative Care for Latin America with the Latin American Association for Palliative Care
• Pallipedia a free online palliative care dictionary
• Participation in The Lancet commission report
• Participation in the PAL-LIFE project of The Vatican which has increased awareness and generate language on palliative care within UN and the WHO
• Development and implementation of IAHPC/WHO Policy Brief Course in Palliative Care
• Provided 500+ scholarships to support palliative care providers to improve their skills and knowledge
How we listen
Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.
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How is your organization using feedback from the people you serve?
To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals
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Which of the following feedback practices does your organization routinely carry out?
We collect feedback from the people we serve at least annually, We take steps to get feedback from marginalized or under-represented people, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We tell the people who gave us feedback how we acted on their feedback
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What challenges does the organization face when collecting feedback?
It is difficult to get the people we serve to respond to requests for feedback, Staff find it hard to prioritize feedback collection and review due to lack of time
Financials
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Operations
The people, governance practices, and partners that make the organization tick.
Connect with nonprofit leaders
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- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
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Connect with nonprofit leaders
SubscribeBuild relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.
INTERNATIONAL ASSOCIATION FOR HOSPICE AND PALLIATIVE CARE INC
Board of directorsas of 06/16/2023
Prof. Lukas Radbruch
Director of the Department of Palliative Medicine, University Hospital in Aachen
Term: 2014 - 2023
Lina Rozo
IAHPC, Treasurer
Liliana De Lima
IAHPC Executive Director
Roberto Wenk
Physician, Argentina
Mary Callaway
USA
Chitra Venkateswaran
Mehac Foundation, India
Claudia Burla
Geriatrician, Brazilian Society of Geriatrics and Gerontology, Advisory Board
Dingle Spence
Director, Hope Institute Hospital, Jamaica
Ebtesam (Sammi) Ahmed
College of Pharmacy and Health Sciences, St. John's University, USA
Eve Namisango
Research Coordinator, African Association for Palliative Care, Uganda
Gulnara Kunirova
President, Kazahkstan Palliative Care Association
Harmala Gupta
President, CanSupport NGO, India
Hibah Osman
Faculty of Medicine, Harvard University, USA
Nahla Gafer
Palliative Care Director, Radio-Isotope Center, Sudan
Steven Radwany
Division of Palliative Medicine, The Ohio State University Wexner Medical Center, USA
William Farr
Founder IAHPC, USA
Felicia Knaul
University of Miami, she is Professor at the Leonard M. Miller School of Medicine, Director of the Institute for Advanced Study of the Americas.
Board leadership practices
GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.
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Board orientation and education
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes -
CEO oversight
Has the board conducted a formal, written assessment of the chief executive within the past year ? No -
Ethics and transparency
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes -
Board composition
Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes -
Board performance
Has the board conducted a formal, written self-assessment of its performance within the past three years? No
Organizational demographics
Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.
Leadership
The organization's leader identifies as:
The organization's co-leader identifies as:
Race & ethnicity
Gender identity
Transgender Identity
Sexual orientation
Disability
No data
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Equity strategies
Last updated: 08/26/2022GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more
- We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
- We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
- We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
- We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.