PLATINUM2023

INTERNATIONAL ASSOCIATION FOR HOSPICE AND PALLIATIVE CARE INC

Towards a world free from health related suffering.

aka IAHPC   |   Houston, TX   |  https://hospicecare.com/home/

Mission

We are a global membership organization whose vision is a world free from health related suffering. Our mission is to serve as a global platform to inspire, inform, and empower individuals, governments and organizations to increase access and to and optimize the practice of palliative care. Our four strategic domains of activity are advocacy, education, research, and information dissemination. IAHPC is a non-state actor (NSA) in official relations with the World Health Organization (WHO) and a non-governmental organization (NGO) in consultative status with the UN Economic and Social Council (ECOSOC). To maintain our independence and avoid conflicts of interest, we are funded only by charitable donations, grants, and membership dues.

Notes from the nonprofit

As a UN accredited civil society organization, we consult with Secretariats, professional associations, national governments and regional organizations upon request. We help policymakers formulate palliative care policies and delivering on multilateral commitments, including the health goals and targets of the 2030 Agenda. Goal 3 includes access to essential medicines, including during humanitarian emergencies, and universal health care, which includes palliative care. Achieving the SDGs entails health system strengthening, workforce education, and integration of palliative care into primary healthcare. Advocacy is based on a robust research program designed and delivered by board members, selected staff, and partners. We provide scholarships to attend palliative care congresses, prioritizing applicants from LMICs who wish to supplement their otherwise very limited learning opportunities. Information about our activities is disseminated through social media and our monthly newsletter.

Ruling year info

2001

Executive Director

Ms Liliana De Lima

Chair Board of Directors

Lukas Radbruch MD

Main address

5535 Memorial Dr Suite F - 509

Houston, TX 77007 USA

Show more contact info

EIN

76-0674392

NTEE code info

Alliance/Advocacy Organizations (E01)

Cancer Research (H30)

Civil Rights, Advocacy for Specific Groups (R20)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Worldwide, more than 25.5 million people a year (almost half of all deaths in 2015), including 2.5 million children, die with serious physical and psychological suffering as a result of disease, injury or illness. The number of people who experience serious health-related suffering is much higher, with an additional 35.5 million people requiring pain relief outside of end-of-life care. More than 80% of these cases are in low- and middle-income countries, where access to immediate release morphine, an essential and inexpensive medicine to alleviate pain, as well any other type of palliative care, is severely lacking.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Meetings, Seminars and Workshops

Program in to support palliative care provision in countries in low and middle income levels, including educational workshops and workshops on access to essential medicines. We convene roundtables with interagency representatives of government agencies responsible for procurement, education, and prescription of internationally controlled essential medicines to improve communications and strengthen supply chains.

Population(s) Served
Caregivers
People with diseases and illnesses
Families

The goal of the IAHPC Scholarship Program is to provide financial assistance to palliative care professionals to attend events that will enable them to improve palliative care in their settings. These should ultimately lead to better and adequate policies and/or institutional norms, increased access to palliative care, as well as access to essential medicines for pain relief and palliative care.

Population(s) Served
Adults
Researchers
Students
Teachers
Activists

The goal of the IAHPC Advocacy Program is the integration of Palliative Care into primary health care within the spectrum of universal coverage, and to improve access to adequate care for patients in need. The Advocacy Program aligns with the four thematic areas of work identified in the IAHPC 2020-2024 Strategic Plan and seeks to achieve the IAHPC Strategic Objective 1.2: “To develop a global cadre of IAHPC members to advocate for improved access to palliative care at national, regional, and global levels.” IAHPC works on the drafting and implementation of resolutions, agreements and strategies with international agencies of the United Nations and, by invitation, with governments.

Population(s) Served
People with diseases and illnesses
Ethnic and racial groups
People with disabilities
People with diseases and illnesses

The IAHPC gives annual recognition awards to individuals and institutions which have contributed to the advancement and provision of palliative care. The goal of this program is to promote the development of palliative care in the world.
The objectives of this Program are to:
- recognize individuals and institutions dedicated to alleviating serious health related suffering of patients and their families in order to improve their quality of life.
- bring these individuals and institutions to the attention of policy makers, other institutions, and relevant organizations.

Population(s) Served
Terminally ill people
Chronically ill people
People with HIV/AIDS
Activists

Where we work

Affiliations & memberships

Non-state actor in official relations with the World Health Organization 2010

NGO in consultative status with the United Nations Economic and Social Council (ECOSOC) 2016

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of overall donors

This metric is no longer tracked.
Totals By Year
Type of Metric

Input - describing resources we use

Direction of Success

Decreasing

Context Notes

The donor categories range from up to $99 to over $100,000.

Number of downloads of the organization's materials and explanations

This metric is no longer tracked.
Totals By Year
Population(s) Served

Adults

Related Program

Advocacy Program

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

The IAHPC Advocacy program offers resources and tools that help palliative care workers learn skills to collaborate and work with their government representatives and policy makers, to improve care.

Number of members from priority population attending training

This metric is no longer tracked.
Totals By Year
Related Program

IAHPC Scholarship Program

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

The IAHPC Scholarships provide financial support to regional and local leaders from low and middle income countries, to attend international meetings, congresses and other educational activities.

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

IAHPC dedicated to the development and improvement of hospice and palliative care worldwide. Our mission is to serve as a global platform to inspire, inform and empower individuals, governments and organizations to increase access and to optimize the practice of palliative care. Our vision is universal access to high-quality palliative care, integrated into all levels of health care systems in a continuum of care with disease prevention, early diagnosis, and treatment, to assure that any patient’s or family caregiver’s suffering is relieved to the greatest extent possible.
Our main goal is a world free of health-related suffering.
The outcomes and changes that IAHPC is contributing towards are: Accelerated access to palliative care for those in need globally and increased global knowledge and evidence base for palliative care development.

We focus on the advancement of palliative care in four areas: education, access to medicines, health policies, and service implementation. IAHPC works on three levels: at the grass roots, developing resources, and educational strategies that enable health workers to provide cost-effective palliative care, at the national level, working with government representatives to improve national policies to ensure adequate care and access to medicines; and at the international level, advocating with the UN organizations to ensure that access to palliative care and to essential medicines for palliative care and pain treatment is stipulated and incorporated as an obligation of member states.
The outputs (and IAHPC’s broad areas of work are covered under these four:
• Output 1: Increased access to palliative care – Strengthening global advocacy to increase access to palliative care.
• Output 2: Educated and skilled global workforce for palliative care delivery – Strengthening palliative care education and skills among providers globally.
• Output 3: Evidence based decision making in palliative care – Strengthening access to data, information, and global knowledge around palliative care to inform programming.
• Output 4: Positive stories and focused messaging to support and advance the global palliative care movement – Strengthening palliative care messaging, information, and communication to inspire global change.

IAHPC has several ongoing programs that support governments, institutions, NGOs, and individuals to advance hospice and palliative care around the world through: 1) Global Leaders in the Advancement and Development (GLAD) Program is designed to support palliative care workers who have demonstrated leadership capabilities, and who wish to advance palliative care in their own countries in line with United Nations (UN) Organizations resolutions and commitments and builds on the Leadership Development Initiative (LDI) to increase global palliative care capacity. 2) Global Palliative Care Database is an electronic health records to improve health care quality by information sharing for evidence based approaches and policies, and reduce the cost of care provision. 3) Meetings, Seminars, and Workshops that provides financial / technical support to international and regional palliative care organizations to help develop and implement palliative care educational events. 4) Travel Scholar and Fellow Programs that provides financial support to palliative care workers from developing countries to attend educational events or to teach in a low- or middle-income country. 5) Advocacy for the availability of appropriate care for patients with palliative care needs. This advocacy includes the recognition of access to palliative care as a component of the right to health care and access to essential medicines.

Some of the accomplishments to date are the:
• IAHPC List of Essential Medicines for Palliative Care
• WHO List of Essential Medicines for Palliative Care
• List of Essential Practices in Palliative Care and the Opioid Essential Prescription Package
• Palliative Care Competencies for Undergraduate Medical Universities and Nursing Schools
• Opioid Price Watch to monitor and report the dispensing prices of opioids around the world
• Atlas of Palliative Care for Latin America with the Latin American Association for Palliative Care
• Pallipedia a free online palliative care dictionary
• Participation in The Lancet commission report
• Participation in the PAL-LIFE project of The Vatican which has increased awareness and generate language on palliative care within UN and the WHO
• Development and implementation of IAHPC/WHO Policy Brief Course in Palliative Care
• Provided 500+ scholarships to support palliative care providers to improve their skills and knowledge

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We demonstrated a willingness to learn more by reviewing resources about feedback practice.
done We shared information about our current feedback practices.
  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals

  • Which of the following feedback practices does your organization routinely carry out?

    We collect feedback from the people we serve at least annually, We take steps to get feedback from marginalized or under-represented people, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We tell the people who gave us feedback how we acted on their feedback

  • What challenges does the organization face when collecting feedback?

    It is difficult to get the people we serve to respond to requests for feedback, Staff find it hard to prioritize feedback collection and review due to lack of time

Financials

INTERNATIONAL ASSOCIATION FOR HOSPICE AND PALLIATIVE CARE INC
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
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  • Compare nonprofit financials to similar organizations

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INTERNATIONAL ASSOCIATION FOR HOSPICE AND PALLIATIVE CARE INC

Board of directors
as of 06/16/2023
SOURCE: Self-reported by organization
Board chair

Prof. Lukas Radbruch

Director of the Department of Palliative Medicine, University Hospital in Aachen

Term: 2014 - 2023

Lina Rozo

IAHPC, Treasurer

Liliana De Lima

IAHPC Executive Director

Roberto Wenk

Physician, Argentina

Mary Callaway

USA

Chitra Venkateswaran

Mehac Foundation, India

Claudia Burla

Geriatrician, Brazilian Society of Geriatrics and Gerontology, Advisory Board

Dingle Spence

Director, Hope Institute Hospital, Jamaica

Ebtesam (Sammi) Ahmed

College of Pharmacy and Health Sciences, St. John's University, USA

Eve Namisango

Research Coordinator, African Association for Palliative Care, Uganda

Gulnara Kunirova

President, Kazahkstan Palliative Care Association

Harmala Gupta

President, CanSupport NGO, India

Hibah Osman

Faculty of Medicine, Harvard University, USA

Nahla Gafer

Palliative Care Director, Radio-Isotope Center, Sudan

Steven Radwany

Division of Palliative Medicine, The Ohio State University Wexner Medical Center, USA

William Farr

Founder IAHPC, USA

Felicia Knaul

University of Miami, she is Professor at the Leonard M. Miller School of Medicine, Director of the Institute for Advanced Study of the Americas.

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? No
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No

Organizational demographics

SOURCE: Self-reported; last updated 6/15/2023

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
Hispanic/Latino/Latina/Latinx
Gender identity
Female, Not transgender
Sexual orientation
Heterosexual or Straight
Disability status
Decline to state

The organization's co-leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Male
Sexual orientation
Decline to state
Disability status
Decline to state

Race & ethnicity

Gender identity

Transgender Identity

Sexual orientation

Disability

No data

We do not display disability information for organizations with fewer than 15 staff.

Equity strategies

Last updated: 08/26/2022

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
  • We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
Policies and processes
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.