Cancer Support Community Valley/Ventura/Santa Barbara

So no one faces cancer alone

Westlake Village, CA   |  www.cancersupportvvsb.org

Mission

The mission of the Cancer Support Community Valley/Ventura/Santa Barbara is to ensure that all people impacted by cancer are empowered by knowledge, strengthened by action, and sustained by community.

Ruling year info

1993

Executive Director

Ms. Monica Merryman

Main address

530 Hampshire Rd

Westlake Village, CA 91361 USA

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Formerly known as

The Wellness Community Valley/Ventura

EIN

77-0205691

NTEE code info

Cancer (G30)

Health - General and Rehabilitative N.E.C. (E99)

Children's and Youth Services (P30)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

CSCVVSB expects to positively impact participants through its full schedule of workshops, support groups and mind-body classes. CSCVVSB anticipates the proposed program will produce the following 2019 outcomes: • A minimum of 90% of participants will experience more connectedness. • A minimum of 85% will feel less alone. • A minimum of 85% will experience more hopefulness. • A minimum of 80% will experience a better quality of life.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Kids and Teens

Kids and Teens Circle was expanded to
include children and teens with cancer in 2010 and young adult cancer survivors
in 2011. In 2010 we also began providing
individual counseling for teens with cancer and their families with the support
of a 17-year Cancer Support Community Valley/Ventura/Santa Barbara–trained licensed marriage and family therapist who works
extensively in her private practice with teens and young adults. In June of
2013 we began a group for young adults, many are survivors of childhood
cancer, and, in October of 2011, we began providing a monthly program for
children and teens with cancer and their families in collaboration with 4
nonprofit organizations. The evening
program provides dinner and four support groups: a group for parents and 3
groups for children based on age.

Population(s) Served
Children and youth
Adolescents

Empowering cancer
patients to participate in their fight for recovery by increasing patient
knowledge is the focus of the 2012-2013 Cancer Support Community
Valley/Ventura/Santa Barbara’s (CSCVVSB) Cancer Education Program. Knowledge
enables cancer patients to better participate in their fight for recovery. The Patient
Active concept states that individuals, who participate in their fight for
recovery, rather than being hopeless, helpless victims, will improve the
quality of their lives and may enhance the possibility of their recovery.
Numerous studies have documented the importance of knowledge of their illness,
treatment, and treatment side effects in improving patients’ quality of life,
ability to make treatment decisions, and adherence to treatment Programs. 

The Cancer Education
Program is designed to assess cancer patients’ level of distress, teach cancer
patients and their caregivers coping, decision-making and communication skills;
stress reduction and emotional self-regulation techniques, and a variety of
workshops and presentations aimed at maintaining physical and emotional
wellness. The program also provides reliable and objective information about
specific cancers, treatment and side effects, nutrition, exercise and community
resources.

The Program provides both formal and informal education to cancer
patients, caregivers, and family members.

Population(s) Served
Adults
Caregivers

The Latino Outreach Cancer Program was developed in West San Fernando Valley with
the assistance of a 59-member Latino Task Force, Latino cancer patient focus groups and planning grants from The California Endowment. It adapts and extends the Cancer Support Community's respected model to the special needs of Latinos affected by cancer. It reflects their language, their community strengths and resources, and an understanding of and respect for the diverse Latino culture. The Latino Outreach Cancer Program (LOCP) was designed to consider cultural barriers such as lack of trust, suspicion, fear of deportation, cultural beliefs about cancer, belief in folk medicine;
emphasis on the needs of the family rather than the individual; machismo; fatalism;
enduring of suffering/stoic attitudes; tendency to seek help from church, family and friends rather than formal institutions or agencies; poverty, lack of transportation and
childcare; geographic barriers; and
language difficulties. In 2003, with the support of a 12-member Ventura County Latino Advisory Board, we began offering a bi-weekly support group for Latinos in Oxnard through our partnership with St John's Medical Center and offering a bi-weekly platicas (one-to-one outreach) at Ventura County Medical Center. Currently through our partnerships, we offer two
Spanish language support groups, a weekly bi-lingual group for children affected by cancer, and a monthly bi-lingual group for children with cancer and their families. . We've hosted two annual Summits for
Program Directors and facilitators working with Latinos affected by cancer. The
summit attendees presented a panel discussion at the 2012 CSC conference. The second Summit helped create a "How to Manual" to help guide program
development for Latinos affected by cancer. In July we will host the third annual summit; expanding the invitees to therapists from across the country.

Population(s) Served
Children and youth
Adults

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of adults and children who receive cancer support services annually

This metric is no longer tracked.
Totals By Year
Population(s) Served

Adults

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of support groups offered

This metric is no longer tracked.
Totals By Year
Population(s) Served

Adults

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of educational workshop sessions offered by healthcare professionals and specialists each year.

This metric is no longer tracked.
Totals By Year
Population(s) Served

Adults

Related Program

Cancer Education Plan

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of counseling sessions offered each year by professional therapists with training in cancer support.

This metric is no longer tracked.
Totals By Year
Population(s) Served

Adults

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

CSCVVSB will accomplish the following outcome objectives:
1. Provide reliable and objective information about specific cancers, treatment and side effects, nutrition, exercise and community resources by engaging top oncology professionals within the community who donate their time and partner with us to educate our members.
2. Empower cancer patients to participate in their fight for recovery by increasing patient and caregiver knowledge through cancer education.
3. Teach cancer patients and their caregivers coping, decision-making and communication skills, stress reduction and emotional self-regulation techniques, cost of care and insurance issues, and maintaining physical and emotional wellness during and post cancer treatment. CSCVVSB expects to positively impact participants through its full schedule of workshops, support groups and mind-body classes.

CSCVVSB provides cancer education and support to over 2300 English- and Spanish-speaking adults and children impacted by cancer (including family members) in Ventura County and West San Fernando each year.

We accomplish this through:
-78 educational workshop sessions conducted by healthcare professionals and specialists in related fields (e.g., psychology, complementary treatments, mind-body health)
-30 weekly, biweekly, or monthly support groups for people with cancer, family and friends, including four Spanish-language groups
-393 counseling sessions (individual, couple, family), including 300 sessions by a bilingual licensed therapist
-100 intake interviews (including psychoeducation)
45 distress screening surveys to develop a customized care plan, and 6) 20 mind-body classes (e.g., meditation, journaling).

-Dedicated and passionate staff with over 169 years of combined service to CSCVVSB
-19-member board of directors with 100% of board members contributing to CSC financial stability and strategic direction
-Over 400 volunteers
-Hospital partnerships with St. Johns Regional Medical Center and Kaiser Permanente in Oxnard, CA
-Community Partnerships including Physicians Advisory Board, Board of Trustees, and corporate, foundation and individual support

"Being with [people from my CSCVVSB support group] is a totally different environment where you can have the conversations you need to have. You don’t have to be silent about cancer or death or things that people normally don’t want to talk about. You can get to know someone in a way you ordinarily wouldn’t." - Maria

In 2017, CSCVVSB served more than 2,300 cancer patients and their family members through 78 educational programs, 786 support group sessions, 777 exercise and mind/body classes, and 393 counseling sessions.

CSCVVSB collect qualitative data from participants to document the impact of support groups, workshops, mind-body classes, special events and other services on participants.

Qualitative data from recent participants in 1,876 education and support sessions (20,782 service hours) shows: 1) 91% experienced more connectedness, 2) 88% felt less alone, 3) 85% experienced more hopefulness, and 4) 82% experienced a better quality of life.

Financials

Cancer Support Community Valley/Ventura/Santa Barbara
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

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Cancer Support Community Valley/Ventura/Santa Barbara

Board of directors
as of 5/3/2022
SOURCE: Self-reported by organization
Board co-chair

Ms. Lida Chu


Board co-chair

Dr. Deane Wolcott

Ken Kossoff, Esq

Panitz and Kossoff, LLP

David Wank

Wank Investments

Beth Kin, RN

Assisted Home Hospice

Andrea Roschke

Roschke & Wall Business Advisors and CPAs, Inc.

Phil Dipaola

CSCVVSB

John Cofiell

First Rate Financial Group

William Thomas

Retired Naval Officer/Retired Marketing & Business Development Northrup Grumman

Terry Schmidt

Estate & Architectural Director Berkshire Hathaway Beverly Hills

Deane Wolcott

Retired Director, Oncology Supportive Care Services, Cedars-Sinai Medical Center

Lida Chu

Biopharmaceutical Commercial Consultant

Lisa Takami

CEO, Co-founder Red House Paso, LLC & Creative/Brand Consultant

Lisa Allison

Managing Partner, Allison & Gibb, LLP

Freddy Carrillo

Associate Partner II, City of Moorpark

Daniel Stepenosky

Superintendent of Schools, Las Virgenes Unified School District

Kathryn Stiles

Director of Community Integration, Adventist Health Simi Valley

Barry Garapedian

President & CEO, MAG 7

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 05/26/2021

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
Multi-Racial/Multi-Ethnic (2+ races/ethnicities)
Gender identity
Female

Race & ethnicity

Gender identity

 

Sexual orientation

No data

Disability

No data