Programs and results
What we aim to solve
The cost of scientific research is high and as the only non profit organization for an ultra rare genetic disorder (LGMD2i), we have a huge fundraising goal to support research for a cure for this rare and progressive condition.
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
A Trial of PF-06252616 in Ambulatory Participants With LGMD2I
The investigational product PF 06252616, a humanized anti myostatin monoclonal antibody that neutralizes myostatin (GDF8) is in development for the treatment of Limb Girdle Muscular Dystrophy 2I (LGMD2I) to preserve and/or improve muscle function. This study will provide the clinical assessment of the safety, tolerability, Pharmacokinetics and Pharmacodynamics of PF 06252616 following repeat IV doses in ambulatory adults with LGMD2I.
Where we work
External reviews

Our results
How does this organization measure their results? It's a hard question but an important one.
Total dollar amount of grants awarded
This metric is no longer tracked.Totals By Year
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Total number of grants awarded
This metric is no longer tracked.Totals By Year
Type of Metric
Output - describing our activities and reach
Direction of Success
Holding steady
Our Sustainable Development Goals
Learn more about Sustainable Development Goals.
Goals & Strategy
Learn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
Collaborating with our funding partners and reaching worldwide to engage our LGMD2i community to fundraise and raise awareness of this rare disease.
What are the organization's key strategies for making this happen?
A highly motivated group of board members, an extensive marketing and fundraising plan, and a far-reaching social media platform to engage our community to continue spreading awareness and raising donations to support the scientific advancements toward a successful treatment or cure for LGMD2i.
What are the organization's capabilities for doing this?
CureLGMD2i has a team of board members who are highly motivated to continue spreading awareness about this rare and progressive condition of Limb Girdle Muscular Dystrophy Type 2I. We have an extensive marketing plan and are using a social media platform to engage our worldwide community of LGMD2i patients, their family and friends as well as physicians and researchers about the need for continuing scientific advancements for this condition. We plan on continuing to promote a variety of fundraising and awareness activities throughout the year to increase our donations with the intention of supporting a clinical trial with a promising treatment as well as a gene therapy program in the near future.
What have they accomplished so far and what's next?
To date, CureLGMD2i has been able to provide over $573,000 to support multiple scientific projects and research programs. We will continue this mission until a successful treatment or cure is found. Our hope is to secure a promising future for so many affected by this progressive disease.
Financials
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Operations
The people, governance practices, and partners that make the organization tick.
Connect with nonprofit leaders
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Connect with nonprofit leaders
SubscribeBuild relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.
CureLGMD2i Foundation
Board of directorsas of 03/31/2020
Kelly Brazzo
CureLGMD2i Foundation
Term: 2011 -