CureLGMD2i Foundation

LANCASTER, PA   |  https://curelgmd2i.com/

Mission

The CureLGMD2i Foundation strives to raise awareness and to support scientific research that is geared directly toward finding a treatment or cure for Limb Girdle Muscular Dystrophy type 2i (LGMD2i).

Ruling year info

2011

CEO/Founder

Kelly Brazzo

Co-Founder

Dr. Keith Brazzo

Main address

590 Centerville Rd #340

LANCASTER, PA 17601 USA

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Formerly known as

The Samantha J. Brazzo Foundation

EIN

80-0680447

NTEE code info

Diseases, Disorders, Medical Disciplines N.E.C. (G99)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

The cost of scientific research is high and as the only non profit organization for an ultra rare genetic disorder (LGMD2i), we have a huge fundraising goal to support research for a cure for this rare and progressive condition.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

A Trial of PF-06252616 in Ambulatory Participants With LGMD2I

The investigational product PF 06252616, a humanized anti myostatin monoclonal antibody that neutralizes myostatin (GDF8) is in development for the treatment of Limb Girdle Muscular Dystrophy 2I (LGMD2I) to preserve and/or improve muscle function. This study will provide the clinical assessment of the safety, tolerability, Pharmacokinetics and Pharmacodynamics of PF 06252616 following repeat IV doses in ambulatory adults with LGMD2I.

Population(s) Served

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Total dollar amount of grants awarded

This metric is no longer tracked.
Totals By Year
Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Total number of grants awarded

This metric is no longer tracked.
Totals By Year
Type of Metric

Output - describing our activities and reach

Direction of Success

Holding steady

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Collaborating with our funding partners and reaching worldwide to engage our LGMD2i community to fundraise and raise awareness of this rare disease.

A highly motivated group of board members, an extensive marketing and fundraising plan, and a far-reaching social media platform to engage our community to continue spreading awareness and raising donations to support the scientific advancements toward a successful treatment or cure for LGMD2i.

CureLGMD2i has a team of board members who are highly motivated to continue spreading awareness about this rare and progressive condition of Limb Girdle Muscular Dystrophy Type 2I. We have an extensive marketing plan and are using a social media platform to engage our worldwide community of LGMD2i patients, their family and friends as well as physicians and researchers about the need for continuing scientific advancements for this condition. We plan on continuing to promote a variety of fundraising and awareness activities throughout the year to increase our donations with the intention of supporting a clinical trial with a promising treatment as well as a gene therapy program in the near future.

To date, CureLGMD2i has been able to provide over $573,000 to support multiple scientific projects and research programs. We will continue this mission until a successful treatment or cure is found. Our hope is to secure a promising future for so many affected by this progressive disease.

Financials

CureLGMD2i Foundation
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Operations

The people, governance practices, and partners that make the organization tick.

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CureLGMD2i Foundation

Board of directors
as of 3/31/2020
SOURCE: Self-reported by organization
Board chair

Kelly Brazzo

CureLGMD2i Foundation

Term: 2011 -