Association of Migraine Disorders
Expanding the Understanding of Migraine
Mission
The Association of Migraine Disorders® strives to expand the understanding of migraine by supporting research, education, and awareness.
Notes from the nonprofit
The Association of Migraine Disorders (AMD) is devoted to expanding the understanding of migraine disease. Migraine is a full-body condition with a broad spectrum of symptoms, AMD is focused on including many medical specialties in the management of this disease. The centerpiece of this effort is a comprehensive online course to accelerate the training of more medical professionals. For patients, AMD shares the opinions of experts in its series of short podcasts, called Spotlight on Migraine. AMD also holds an annual in-person Migraine Symposium to explore new hot topics in migraine with the help of guests from various expertises. Knowing that migraine has yet to capture the support of the general public, AMD hosts Shades for Migraine, a playful, collaborative awareness campaign. Finally, AMD strives to connect and grow an integrated migraine research community through the Migraine Science Collaborative.
Ruling year
2013
President
Frederick Godley III
Main address
P.O. Box 870
N Kingstown, RI 02852 USA
Formerly known as
World Wide Organization of Migraine Equivalent Neuropathies
EIN
80-0863877
NTEE code
Neurology, Neuroscience (G96)
Alliance/Advocacy Organizations (E01)
Alliance/Advocacy Organizations (G01)
IRS filing requirement
This organization is required to file an IRS Form 990-PF.
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Communication
Programs and results
What we aim to solve
The Association of Migraine Disorders® strives to expand the understanding of migraine and its true scope by supporting research, education, and awareness. More than 50% of those with migraine are still undiagnosed. AMD hopes to provide these people with the tools and resources they need to take the next step to talk with their doctor. AMD also has tools and resources to help doctors, from a variety of specialties, become more educated on this disease so they can accurately diagnose and treat their patients.
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
Medical Research Funding
AMD has developed a comprehensive program that helps not only to fund specific research projects, but also to launch the careers of those willing to specialize in migraine research. We offer programs to introduce students into this area of neuroscience, through shadowing programs, small introductory grants and then support more experienced researchers to explore new ideas with intermediate-sized grants, managed by the Migraine Research Foundation.
Shades for Migraine®
Shades for Migraine® is a global awareness campaign that asks everyone to wear a pair of sunglasses on June 21 to show their support for the 1 billion people living with migraine disease worldwide.
Online CME Course
Free, online course for non-neurologist medical professionals on diagnosis and treatment of migraine disease, on MyCME.com. This will increase the number of migraine patients who can find appropriate treatment, as there are only about 500 certified headache specialists in the U.S..
Spotlight on Migraine®
Spotlight on Migraine® is a podcast that explores the mysteries of migraine from many perspectives: patients, advocates, caregivers, health professionals and researchers.
Migraine Science Collaborative
The Migraine Science Collaborative strives to form an inter-institutional and multi-disciplinary network of migraine researchers and medical professionals in an effort to increase and enhance research in the fields of migraine, cluster and headache disease.
Migraine Club
A Migraine Club provides an opportunity for finding personal support, educating others and destigmatizing the disease. A Migraine Club will give you first hand experience in the neuroscience and non-profit worlds. Develop skills in fundraising, social media, website design and neuroscience to help you build your resume!
Migraine Symposium
The Migraine Symposium is a free one-day educational and celebratory event that expands our understanding of migraine with the help of presentations by more than 35 experts and advocates from around the country. Each year, we dive into different topics to explore the spectrum of migraine. The symposium is divided into two tracks, one tailored to medical professionals and the other to patients and the general public, however, both programs are open to all attendees.
Where we work
External reviews
Photos
Videos
Our Sustainable Development Goals
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Goals & Strategy
Learn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
-Educate physicians about the breadth of symptoms not normally associated with migraine disease.
-Have the topic of Migraine be more visible in the research world, in medical specialties other than neurology, with the NIH/Federal Government, and in the general public.
-Help patients have an active role in their healthcare by providing them with helpful tools.
What are the organization's key strategies for making this happen?
The Association of Migraine Disorders (AMD) is devoted to expanding the understanding of migraine disease and its true scope. Migraine is a full-body condition with a broad spectrum of symptoms, AMD is focused on including many medical specialties in the management of this disease. The centerpiece of this effort is a comprehensive online course to accelerate the training of more medical professionals. For patients, AMD shares the opinions of experts in its series of short podcasts, called Spotlight on Migraine. AMD also holds an annual in-person Migraine Symposium to explore new hot topics in migraine with the help of guests from various expertises. Knowing that migraine has yet to capture the support of the general public, AMD hosts Shades for Migraine, a playful, collaborative awareness campaign. Finally, AMD strives to connect and grow an integrated migraine research community through the Migraine Science Collaborative.
What are the organization's capabilities for doing this?
Our president is devoting a considerable amount of his time to the organization in making connections with research facilities and experts in the migraine field and it is very helpful that he is a physician himself.
What have they accomplished so far and what's next?
Our accomplishments:
-We have made 2 important partnerships with the Migraine Research Foundation and the Brown Institute for Brain Sciences. Our social media fan base is increasing steadily each month.
-Our annual Migraine Symposium has hosted over 100 guest speakers from various specialties.
-We have published more than 50 podcast episodes in our Spotlight on Migraine podcast series.
-We have partnered with more than 50 pain and migraine organizations to help get migraine recognized internationally.
What's next:
We are making an effort to get resources into the hands of people living with migraine in underserved populations.
How we listen
Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.
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How is your organization collecting feedback from the people you serve?
Electronic surveys (by email, tablet, etc.), Focus groups or interviews (by phone or in person),
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How is your organization using feedback from the people you serve?
To make fundamental changes to our programs and/or operations, To strengthen relationships with the people we serve,
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What significant change resulted from feedback?
Surveys have allowed us to choose guest speakers and topics for our annual Migraine Symposium and Spotlight on Migraine podcast series. Surveys also helped us pick the name for our podcast series.
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With whom is the organization sharing feedback?
Our staff,
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Which of the following feedback practices does your organization routinely carry out?
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What challenges does the organization face when collecting feedback?
Staff find it hard to prioritize feedback collection and review due to lack of time,
Financials
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Operations
The people, governance practices, and partners that make the organization tick.
Connect with nonprofit leaders
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- Analyze a variety of pre-calculated financial metrics
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Connect with nonprofit leaders
SubscribeBuild relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.
Association of Migraine Disorders
Board of directorsas of 4/7/2021
Dr. Frederick Godley
Dr. Michael Teixido
Michael Teixido
Leigh Serth
Shivang Joshi
Mark Mehle
Board leadership practices
GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.
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Board orientation and education
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? No -
CEO oversight
Has the board conducted a formal, written assessment of the chief executive within the past year ? No -
Ethics and transparency
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes -
Board composition
Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? No -
Board performance
Has the board conducted a formal, written self-assessment of its performance within the past three years? No
Organizational demographics
Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.
Leadership
No data
Race & ethnicity
No data
Gender identity
No data
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Sexual orientation
No data
Disability
No data
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