Association of Migraine Disorders

Expanding the Understanding of Migraine

N Kingstown, RI   |  www.migrainedisorders.org

Mission

The Association of Migraine Disorders® strives to expand the understanding of migraine by supporting research, education, and awareness.

Notes from the nonprofit

The Association of Migraine Disorders (AMD) is devoted to expanding the understanding of migraine disease. Migraine is a full-body condition with a broad spectrum of symptoms, AMD is focused on including many medical specialties in the management of this disease. The centerpiece of this effort is a comprehensive online course to accelerate the training of more medical professionals. For patients, AMD shares the opinions of experts in its series of short podcasts, called Spotlight on Migraine. AMD also holds an annual in-person Migraine Symposium to explore new hot topics in migraine with the help of guests from various expertises. Knowing that migraine has yet to capture the support of the general public, AMD hosts Shades for Migraine, a playful, collaborative awareness campaign. Finally, AMD strives to connect and grow an integrated migraine research community through the Migraine Science Collaborative.

Ruling year info

2013

President

Frederick Godley III

Main address

P.O. Box 870

N Kingstown, RI 02852 USA

Show more contact info

Formerly known as

World Wide Organization of Migraine Equivalent Neuropathies

EIN

80-0863877

NTEE code info

Neurology, Neuroscience (G96)

Alliance/Advocacy Organizations (E01)

Alliance/Advocacy Organizations (G01)

IRS filing requirement

This organization is required to file an IRS Form 990-PF.

Sign in or create an account to view Form(s) 990 for 2020, 2019 and 2018.
Register now

Communication

Blog

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

The Association of Migraine Disorders® strives to expand the understanding of migraine and its true scope by supporting research, education, and awareness. More than 50% of those with migraine are still undiagnosed. AMD hopes to provide these people with the tools and resources they need to take the next step to talk with their doctor. AMD also has tools and resources to help doctors, from a variety of specialties, become more educated on this disease so they can accurately diagnose and treat their patients.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Medical Research Funding

AMD has developed a comprehensive program that helps not only to fund specific research projects, but also to launch the careers of those willing to specialize in migraine research. We offer programs to introduce students into this area of neuroscience, through shadowing programs, small introductory grants and then support more experienced researchers to explore new ideas with intermediate-sized grants, managed by the Migraine Research Foundation.

Population(s) Served
People with diseases and illnesses
Academics

Shades for Migraine® is a global awareness campaign that asks everyone to wear a pair of sunglasses on June 21 to show their support for the 1 billion people living with migraine disease worldwide.

Population(s) Served
Adults
Families

Free, online course for non-neurologist medical professionals on diagnosis and treatment of migraine disease, on MyCME.com. This will increase the number of migraine patients who can find appropriate treatment, as there are only about 500 certified headache specialists in the U.S..

Population(s) Served
People with diseases and illnesses

Spotlight on Migraine® is a podcast that explores the mysteries of migraine from many perspectives: patients, advocates, caregivers, health professionals and researchers.

Population(s) Served
People with diseases and illnesses
Caregivers

The Migraine Science Collaborative strives to form an inter-institutional and multi-disciplinary network of migraine researchers and medical professionals in an effort to increase and enhance research in the fields of migraine, cluster and headache disease.

Population(s) Served
People with diseases and illnesses
Adults

A Migraine Club provides an opportunity for finding personal support, educating others and destigmatizing the disease. A Migraine Club will give you first hand experience in the neuroscience and non-profit worlds. Develop skills in fundraising, social media, website design and neuroscience to help you build your resume!

Population(s) Served
Students
People with diseases and illnesses

The Migraine Symposium is a free one-day educational and celebratory event that expands our understanding of migraine with the help of presentations by more than 35 experts and advocates from around the country. Each year, we dive into different topics to explore the spectrum of migraine. The symposium is divided into two tracks, one tailored to medical professionals and the other to patients and the general public, however, both programs are open to all attendees.

Population(s) Served
People with diseases and illnesses
Families

Where we work

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

-Educate physicians about the breadth of symptoms not normally associated with migraine disease.

-Have the topic of Migraine be more visible in the research world, in medical specialties other than neurology, with the NIH/Federal Government, and in the general public.

-Help patients have an active role in their healthcare by providing them with helpful tools.

The Association of Migraine Disorders (AMD) is devoted to expanding the understanding of migraine disease and its true scope. Migraine is a full-body condition with a broad spectrum of symptoms, AMD is focused on including many medical specialties in the management of this disease. The centerpiece of this effort is a comprehensive online course to accelerate the training of more medical professionals. For patients, AMD shares the opinions of experts in its series of short podcasts, called Spotlight on Migraine. AMD also holds an annual in-person Migraine Symposium to explore new hot topics in migraine with the help of guests from various expertises. Knowing that migraine has yet to capture the support of the general public, AMD hosts Shades for Migraine, a playful, collaborative awareness campaign. Finally, AMD strives to connect and grow an integrated migraine research community through the Migraine Science Collaborative.

Our president is devoting a considerable amount of his time to the organization in making connections with research facilities and experts in the migraine field and it is very helpful that he is a physician himself.

Our accomplishments:
-We have made 2 important partnerships with the Migraine Research Foundation and the Brown Institute for Brain Sciences. Our social media fan base is increasing steadily each month.

-Our annual Migraine Symposium has hosted over 100 guest speakers from various specialties.

-We have published more than 50 podcast episodes in our Spotlight on Migraine podcast series.

-We have partnered with more than 50 pain and migraine organizations to help get migraine recognized internationally.

What's next:
We are making an effort to get resources into the hands of people living with migraine in underserved populations.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.
  • How is your organization collecting feedback from the people you serve?

    Electronic surveys (by email, tablet, etc.), Focus groups or interviews (by phone or in person),

  • How is your organization using feedback from the people you serve?

    To make fundamental changes to our programs and/or operations, To strengthen relationships with the people we serve,

  • What significant change resulted from feedback?

    Surveys have allowed us to choose guest speakers and topics for our annual Migraine Symposium and Spotlight on Migraine podcast series. Surveys also helped us pick the name for our podcast series.

  • With whom is the organization sharing feedback?

    Our staff,

  • Which of the following feedback practices does your organization routinely carry out?

  • What challenges does the organization face when collecting feedback?

    Staff find it hard to prioritize feedback collection and review due to lack of time,

Financials

Association of Migraine Disorders
lock

Unlock financial insights by subscribing to our monthly plan.

Subscribe

Unlock nonprofit financial insights that will help you make more informed decisions. Try our monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights?
Learn more about GuideStar Pro.

Operations

The people, governance practices, and partners that make the organization tick.

lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

Association of Migraine Disorders

Board of directors
as of 4/7/2021
SOURCE: Self-reported by organization
Board co-chair

Dr. Frederick Godley


Board co-chair

Dr. Michael Teixido

Michael Teixido

Leigh Serth

Shivang Joshi

Mark Mehle

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? No
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? No
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? No
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No

Organizational demographics

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

No data

Race & ethnicity

No data

Gender identity

No data

 

No data

Sexual orientation

No data

Disability

No data