Alliance of Families Fighting Pancreatic Cancer

Lower Burrell, PA   |  affpc.org

Mission

The Alliance of Families Fighting Pancreatic Cancer (AFFPC) will take a united and pivotal role in changing pancreatic cancer treatment by empowering patients with personalized options for better survival and quality of life.

Our actions as an alliance of families, patients, individuals, medical researchers, healthcare institutions and organizations will help achieve this revolutionary change.

Ruling year info

2014

Executive Director

Theresa Dukovich

Board Chair and Director of Fundraising

Kendra Bahneman Haywood

Main address

PO Box 2023

Lower Burrell, PA 15068 USA

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EIN

80-0874948

NTEE code info

Cancer Research (H30)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

AFFPC Sponsored Research Projects

1. Better Care for Patients Suffering from Pancreatic Cancer
a. Outcomes database: BIMDC revised and updated the patient outcomes database for all pancreatic surgery performed at BI Deaconess since 2001, a sixteen month project. The database allows BIMDC to evaluate the outcomes of surgery with respect to performance, quality, and survival and permits ongoing studies of the impact of minimally-invasive technology on patient outcomes and perceptions of treatment.
b. Multidisciplinary clinics create teams of cancer specialists, improve the survival of patients, and expand the available options for treatment. BIMDC is studying the impact of their multidisciplinary Pancreatic Cancer Center on the care process and survival of patients as well as their perceptions about pancreatic cancer so they can become more effective patient advocates.
2. Personalizing Treatment: Getting Beyond the One-Size-Fits-All Approach
a. BIMDC has developed and validated a mathematical model to predict survival of patients
diagnosed with pancreatic cancer using characteristics of their tumors as seen on CAT (compute BIMDC d tomography scans). This model provides patients a better way to understand how surgery might extend their lives, and whether alternative treatment options might make more sense for them. BIMDC is in the process of combining this technique to estimate life expectancy with models to predict the likely complication rate of surgery to empower patients even further.
3. A Laser Beam Focus on Quality of Life
a. Comparing pain scores and the use of narcotic pain medicines after traditional open pancreatic surgery with minimally-invasive surgery performed using a robot.
i. Restoring quality of life after surgery is particularly important to patients with pancreatic cancer. BIMDC is collecting outcomes of patients undergoing these two types of surgery to give patients the ability to make informed decisions about surgery.
4. Empowering Patients and Families to Make Informed Choices
a. Quality measures for pancreatic cancer: patient perspectives.
i. Empowering patients with pancreatic cancer to make informed decisions which
are best for them and their families is a key project of The AFFPC. This project identifies metrics of quality and outcome that are important to patients and families considering treatment options for pancreatic cancer. This project will be completed in late 2015.
5. Assessing New Technologies for Treating Patients with Pancreatic Cancer
a. Multicenter outcomes of robotic pancreaticodudodenectomy
i. This project is evaluating the outcomes of high-technology pancreatic surgery
(the robotic “Whipple procedure”) at five worldwide centers of excellence: Beth Israel Deaconess Medical Center, University of Pittsburgh Medical Center, Mayo Clinic, Cleveland Clinic, and University of Pisa, Italy. This project is completed and entering the publication phase.
b. Implementing a new robotic-assisted pancreas surgery program





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Financials

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Alliance of Families Fighting Pancreatic Cancer

Board of directors
as of 6/6/2016
SOURCE: Self-reported by organization
Board chair

Kendra Haywood

Alliance of Families Fighting Pancreatic Cancer

Theresa Dukovich Executive Director

Alliance of Families Fighting Pancreatic Cancer

Debbie Barnes Board Treasurer

Alliance of Families Fighting Pancreatic Cancer

Marla Wagner Board Secretary and Director of Advocacy

Alliance of Families Fighting Pancreatic Cancer

Jennifer LoConte Board Member

Alliance of Families Fighting Pancreatic Cancer and President of J's Run

Milissa Stubbs Board Member

Alliance of Families Fighting Pancreatic Cancer

Patricia Connelly Board Member

Alliance of Families Fighting Pancreatic Cancer

Christopher Kanski Board Member

Jodi Parach Board Member

Alliance of Families Fighting Pancreatic Cancer and Board Chair of Wanda Bilec Foundation

Jessica Fera Board Member, Public Relations Director, and Founder and Executive Director of the Woiner Foundation

Ken Gray Board Member

Ric Fera Board Member and Social Media Director

Alliance of Families Fighting Pancreatic Cancer

Kendra Haywood Board Chairperson and Director of Fundraising