PLATINUM2023

First Descents

Out Living It

aka FD   |   Denver, CO   |  www.firstdescents.org

Mission

First Descents (FD) provides life-changing outdoor adventures for young adults impacted by cancer and other serious health conditions. Since 2001, FD has served more than 10,150 participants at over 1,100 programs nationwide to provide ongoing psychosocial supportive care. Beginning in 2020, FD expanded programming to healthcare workers on the frontlines of COVID-19. Recognized for its commitment to operational excellence, First Descents is a proud nonprofit partner of 1% for the Planet and was honored as a CNN Hero in 2016.

Ruling year info

2002

CEO

Mr. Ryan O'Donoghue

Main address

621 Kalamath Street Suite 175

Denver, CO 80204 USA

Show more contact info

EIN

81-0539964

NTEE code info

Health Support Services (E60)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Blog

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

New and innovative solutions must foster collaboration between medical institutions and community-led organizations to address socio-economic inequities in patient and provider care and ease the financial burden on an under-resourced healthcare system. Through the confluence of time spent in wild places and community-based programming, First Descents will meet these essential needs.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

First Descents Oncology & Multiple Sclerosis Programs

First Descents provides all-inclusive, week-long programs nationwide. These low cost, non-clinical programs include a range of activities designed to instill healthy lifestyle habits, cultivate social connection, and empower patients, caregivers, and healthcare workers.

Outdoor adventure is a central core value to this model. Whitewater kayaking, climbing, surfing, and hiking are FD’s primary activities. Participants are introduced to legitimate outdoor challenges as they experience some of the most beautiful places in the country with their peers. Ultimately, exposure to unforgettable outdoor challenges initiates an organic healing process, allowing participants to prioritize their mental, physical, and emotional well being and reclaim their identity.

Population(s) Served
Young adults
Caregivers
People with diseases and illnesses

The healthcare industry rarely assesses the unmet needs of caregivers when determining the course of patient care. First Descents recognizes that the spouses, parents, children, and friends of young adults living with cancer and MS must also cope with their loved one’s diagnosis. In reality, caregivers often assume a primary role in managing the effects of treatment, navigating a complex healthcare system, assisting patient recovery, and providing social and emotional support for the diagnosed. Thus, FD's caregiver programs welcome those in a support role to attend a week-long program, thereby extending a transformative FD experience to a young adult patient's network of care.

Population(s) Served
Caregivers

Beginning in 2020, First Descents expanded programming to healthcare workers on the frontlines of COVID-19.

Healthcare workers caring for patients with COVID-19 are experiencing significant trauma with the risk of ongoing psychosocial distress. In response, First Descents is offering adventure-based trauma support programs for healthcare workers on the frontlines of the pandemic. Aptly titled HERO RECHARGE, these trauma-informed programs are designed to improve psychosocial health, nurture supportive peer relationships, process grief and loss, and better position healthcare workers to carry out their important work.

The COVID-19 pandemic introduced an invaluable opportunity to serve a community that has long advanced the mission of First Descents. For the last 20 years, healthcare professionals have introduced FD to their young adult patients to play a meaningful role in their survivorship and recovery. In doing so, thousands of survivors have benefitted from the healing power of adventure and improved their quality of life. Going forward, First Descents will invest in the healthcare community in perpetuity, ensuring its commitment to care for those who care for all others.

Population(s) Served
Adults
People with diseases and illnesses
Adults
People with diseases and illnesses

Where we work

Awards

CNN Hero Award 2016

CNN

Affiliations & memberships

2018 Outside Magazine's Top 100 Places to Work 2018

2019 Outside Magazine's Top 100 Places to Work 2019

2020 Outside Magazine's Top 100 Places to Work 2020

2021 Outside Magazine's Top 100 Places to Work 2021

2022 Outside Magazine's Top 100 Places to Work 2022

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of participants engaged in programs

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with diseases and illnesses, Caregivers

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

In 2022, First Descents served 459 participants through core, weeklong programs, and 100 participants through local community adventures.

Number of participants who would recommend program to others

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with diseases and illnesses

Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Holding steady

Context Notes

99% of 2022 participants indicated that they would recommend First Descents to a fellow young adult patient, caregiver, or healthcare worker.

Number of free participants on field trips

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with diseases and illnesses

Related Program

First Descents Oncology & Multiple Sclerosis Programs

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

First Descents delivered 47 programs to serve 459 young adult patients, caregivers, and healthcare workers in 2022.

Number of affiliates speaking at conferences

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with diseases and illnesses

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

First Descents is a proven low-cost, non-medical healthcare intervention with a vision to become the global leader in adventure-based healing. To do so, FD is committed to the following three strategic priorities:

Expand Programs
With more than 640,000 young adult cancer survivors in the U.S., First Descents will expand programs to improve survivorship and quality of life. Further, FD will continue to broaden its mission to serve other affected populations including young adults coping with multiple sclerosis, caregivers, and healthcare workers. Program expansion may also require the eventual purchase of sites to enable greater autonomy over lodging.

Build Community
Young adults coping with health conditions often experience feelings of isolation and alienation. FD will strengthen local adventure communities and nurture supportive peer relationships that provide ongoing healing. These efforts include the development of new lifestyle offerings designed to promote healthy behavior changes, including outdoor recreation, nutrition, and mindfulness.

Prescribe Adventure
Hospitals often lack age-appropriate psychosocial survivorship programs for young adults. FD will build upon its network of healthcare professionals to reach more young adults earlier in the treatment process.This engagement will deepen relationships within the healthcare system and allow First Descents to reach more participants from Black, Indigenous, People of Color, and LGBTQIA+ communities. Beginning in 2022, FD will partner with Latinas Contra Cancer, Escape AYA, Tigerlily Foundation, Navajo Nation and Fort Defiance Indian Hospital, and other health leaders serving these communities.

In order to become the global leader in adventure-based healing, First Descents will expand its partnerships with leading medical centers to ensure the organization's services are included in the care planning process for young adult patients.

In 2018, First Descents launched Prescribe Adventure to partner with leading hospitals and local community health centers to reach young adult patients earlier in the treatment process. To-date, FD has established partnerships with more than 500 medical centers and over 1,000 providers nationwide, thereby strengthening the ability to work directly with patient care teams. The intended effect of this outreach campaign is to serve more young adults of diverse backgrounds, build communities that reflect the cultural interests and values of participants, and address the substantial gap between treatment and psychosocial services for BIPOC and LGBTQIA+ communities. This includes building custom partnerships with national and local advocacy organizations.

First Descents will invest $1.9M in direct programming to advance its key strategic priorities, deliver 45 programs, and serve more than 575 participants nationwide in 2023. FD’s innovative approach works at the community level to align medical centers, outdoor outfitters, and funding partners to execute effective programs removed from the hospital setting. This model keeps donor funds local, improves community health, and invests in local organizations - specifically hospitals and outdoor guide companies. With a vast network of professional outdoor guides and highly trained field staff, FD can execute programs of varying duration in close proximity to treatment centers nationwide.


First Descents' programs address the gap in psychosocial support for young adults diagnosed with a serious illness, and their surrounding networks of care. Adolescents and young adults (AYAs) are defined by the age parameters of 18 to 39 in order to discern the unique developmental and clinical challenges that a diagnosis poses to this population.


According to the American Cancer Society, there are more than 85,000 AYAs diagnosed with cancer each year. Unlike the improvements seen in pediatric and older adult oncology, survival rates for cancer in young adults have not made significant changes in recent decades.


Multiple Sclerosis (MS) is the most common disabling neurological disease of young adults. Data from the National MS Society indicates there are approximately 1,000,000 people living with MS in the U.S. with approximately 10,000 new cases diagnosed annually. Typically, MS is diagnosed between the ages of 20 and 50, with a median age of diagnosis at 34. In addition to the complexities of clinical treatments and lifestyle implications, the relapsing and progressive nature of MS can be daunting, and can result in significant distress.

Unique from pediatric or older adult populations, young adults often experience lifelong challenges that disrupt important developmental milestones. Caught at a pivotal time in their lives - establishing independence, building a career, starting a family, and pursuing financial stability - young adults are redirected to prioritize treatment in order to preserve physical health. These prime years of cultivating identity and security are quickly jeopardized by physical side effects, emotional distress, social stigma, and medical bills for years beyond treatment. The disruptive nature of a diagnosis can increase the risk of caregiver strain, fertility loss, physical and cognitive ability, employment status, and bankruptcy. These negative impacts are rarely addressed in clinical care, despite their ability to result in episodes of depression, anxiety, and isolation, and increased risk of prescription drug dependence, substance abuse, and suicide.

Since 2001, First Descents has served more than 10,150 young adult survivors at over 1,100 programs nationwide to provide ongoing psychosocial supportive care. Furthermore, FD has established relationships with more than 560 medical centers to reach patients closer to the time of diagnosis.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.
  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve

  • Which of the following feedback practices does your organization routinely carry out?

    We collect feedback from the people we serve at least annually, We take steps to get feedback from marginalized or under-represented people, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive

  • What challenges does the organization face when collecting feedback?

    It is difficult to get the people we serve to respond to requests for feedback, It is difficult to find the ongoing funding to support feedback collection

Financials

First Descents
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

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lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

First Descents

Board of directors
as of 07/27/2023
SOURCE: Self-reported by organization
Board co-chair

Debbie King Ford


Board co-chair

Dr. Brandon Hayes-Lattin

Oregon Health & Sciences University

Term: 2021 - 2024

Brad Ludden

no affiliation

Brent Goldstein

no affiliation

Joel Appel

no affiliation

Larry Smith

no affiliation

Josh Behr

no affiliation

Debbie King Ford

no affiliation

Alix Berglund

no affiliation

Tanum Davis

no affiliation

Kip Cross

no affiliation

Brandon Hayes-Lattin

no affiliation

Michael Kantor

no affiliation

Ben Davis

Michael Gross

Jean Smart

Susan Rafferty

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 1/19/2023

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Male, Not transgender (cisgender)
Sexual orientation
Heterosexual or straight
Disability status
Person without a disability

Race & ethnicity

Gender identity

 

Sexual orientation

Disability

No data

Equity strategies

Last updated: 08/12/2021

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We review compensation data across the organization (and by staff levels) to identify disparities by race.
  • We ask team members to identify racial disparities in their programs and / or portfolios.
  • We analyze disaggregated data and root causes of race disparities that impact the organization's programs, portfolios, and the populations served.
  • We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
  • We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
  • We disaggregate data by demographics, including race, in every policy and program measured.
  • We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
Policies and processes
  • We use a vetting process to identify vendors and partners that share our commitment to race equity.
  • We have a promotion process that anticipates and mitigates implicit and explicit biases about people of color serving in leadership positions.
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We have community representation at the board level, either on the board itself or through a community advisory board.
  • We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.