PLATINUM2022

CANCER JOURNEYS FOUNDATION

Never Give Up!

aka Disabled Veteran Empowerment Network (DVEN)   |   El Segundo, CO   |  https://cancerjourneysfoundation.org

Mission

The Cancer Journeys Foundation (CJF) provides the knowledge, support, and community that cancer survivors need to develop and implement cancer survivorship plans and cancer survivor journey maps. The Cancer Journeys Foundation provides a comprehensive digital information center for cancer survivors, their families, and caregivers. The Foundation also operates an award-nominated prostate cancer early detection system, free to everyone at ProstateTracker.org. In 2018 we added support for disabled veterans through our Disabled Veteran Empowerment Network program. The US Veterans Administration reports that it adds 40,000 veteran cancer survivors to its rolls every year, and 3% of all cancer survivors living in the US are veterans. We are proud to be able to provide much-needed support.

Notes from the nonprofit

We are very pleased with the progress we have made over the past three years. Our prostate cancer awareness and prevention program has been recognized twice by the Los Angeles Business Journal Health Leaderships awards, and Founder and CEO Robert Hess was selected as one of Amgen Corporation's 2015 Breakaway From Cancer National Champions. We are extending our awareness programs to breast and pancreatic cancer in 2019. We have created the annual Tour de USA® automobile road rally for cancer awareness and we are exploring plans for a national cancer survivor fitness program. The CJF board would like to thank our past and future donors for enabling us to provide critical support to cancer survivors and reduce cancer deaths.

Ruling year info

2016

CEO

Mr. Robert Warren Hess

Main address

840 Apollo Street Suite 100

El Segundo, CO 90245 USA

Show more contact info

EIN

81-1880936

NTEE code info

Alliance/Advocacy Organizations (P01)

Alliance/Advocacy Organizations (E01)

Military/Veterans' Organizations (W30)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Sign in or create an account to view Form(s) 990 for 2022, 2021 and 2020.
Register now

Communication

Blog

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Cancer survivors pass through what has been termed the “Seasons of Survival.” The four phases are 1) Acute: this is the phase where the patient is actively undergoing treatment; 2) Extended Survival: when the patient goes into remission or has completed the basic course of treatment and enters a phase of watchful waiting; (this phase is characterized by fear of recurrence); 3) Permanent survival: sometimes called ‘cure,’ but there is no moment of cure but an evolution into an extended period when the cancer activity is so low that it likelihood of return is low; and 4) Chronic: a period when the cancer is still present but can be controlled through treatment. Unfortunately, there are very few structured long-term cancer survivorship programs because medical coverage stops when Phase I treatment is completed. The missing element is a cancer survival program that the cancer survivor can self-implement and follow in conjunction with support from the family physician.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Prostate Cancer Awareness Project

This program focuses on improving men's understanding prostate cancer and the importance of early detection for effective treatment. This program includes the free ProstateTracker early detection system available to everyone on the Internet at www.prostatetracker.org

Population(s) Served
Men and boys
Families

Breast Cancer Tracker provides women an Internet-based tool for tracking the results of their annual breast cancer exam and for reminding them when their next test is due. It is part of the CJF "Couples Conquering Cancer" early detection and prevention program.

Population(s) Served
Women and girls
Families

ProstateTracker is a free prostate cancer early detection system that allows men to find their prostate cancer early, when it is still treatable.

Population(s) Served
Men and boys
Families

BreastCancerTracker is a free program that provides women a way to track the results of their annual breast cancer exams. The Tracker provides a free annual reminder service.

Population(s) Served
Women and girls
Families

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of women counseled about mammograms

This metric is no longer tracked.
Totals By Year
Population(s) Served

Women and girls

Related Program

Breast Cancer Tracker

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

These numbers are a combination of the number of women we talk with during our outreach programs in the field and the number of people who visit this page on out website.

Number of women counseled about Pap tests

This metric is no longer tracked.
Totals By Year
Population(s) Served

Women and girls

Related Program

Breast Cancer Tracker

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

We calculate this metric from the number of visits to this page on our website.

Number of adults receiving colorectal cancer screening based on most recent guidelines

This metric is no longer tracked.
Totals By Year
Population(s) Served

Women and girls, Men and boys, Adults

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

We develop this number based on the numbers of unique visits to this page on our website and the number of one-on-one discussions we have in the field.

Number of attendees at our cancer awareness events.

This metric is no longer tracked.
Totals By Year
Population(s) Served

Older adults, Seniors, Young adults, People of African descent, People of European descent

Related Program

Prostate Cancer Awareness Project

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

This is the number of people attending our annual prostate cancer awareness bicycle ride. We estimate that each attendee will speak with an additional 9 people.

Number of cancer awareness press releases distributed and the number of media pickups.

This metric is no longer tracked.
Totals By Year
Population(s) Served

Women and girls, Men and boys, Families

Related Program

Prostate Cancer Awareness Project

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

This is the number of media pickups of our press releases focusing on early cancer detection through annual screening.

Number of attendees present at rallies/events

This metric is no longer tracked.
Totals By Year
Population(s) Served

Men and boys, Families, People with diseases and illnesses

Related Program

Prostate Cancer Awareness Project

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

These are the number of actual riders at our annual prostate cancer awareness rides. Many riders brought family members. We estimate that each attendee will tell another 9 people about prostate cancer

Number of cancer organizations working in partnership with the Cancer Journeys Foundation

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with diseases and illnesses

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of death caused by cancer

This metric is no longer tracked.
Totals By Year
Population(s) Served

Men and boys

Related Program

Prostate Cancer Awareness Project

Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Decreasing

Context Notes

This is a statistical number derived from the number of men using our prostatetracker program.

Number of men using prostatetracker.org

This metric is no longer tracked.
Totals By Year
Population(s) Served

People of African descent, People of European descent

Related Program

ProstateTracker

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

These are the number of active user of our free ProstateTracker website application.

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

The Cancer Journeys Foundation’s vision (CJF) describes a future where the organization’s volunteers and staff create a dramatic change in how cancer survivors live their individual cancer journeys. It is a future in which we will improve the lives of cancer survivors and those at risk for cancer by transforming the cancer journey experience from uncertainty, fear, and desperation to one of hope, self-empowerment, and joy of life.

We will act to create a world where every cancer survivor has the information and support they need to develop and implement their unique cancer survivor journey plan. A place where no one dies from cancer because they did not know they had the disease early enough for effective treatment or did not know what they personally could do to keep their cancer at bay.

To achieve the Cancer Journeys Foundation vision, The CJF will provide access to the most current research and information available to survivors, their families, and caregivers. This information will provide the knowledge and structure cancer survivors need to develop and implement self-help survivorship programs that support care from the their family doctor (if available) and to find expert help when needed.

The CJF does this through its digital website that contains primary information and links to relevant organizations, information sources, and guides to free and reduced-cost services and counseling.

The CJF’s is developing a bi-annual Cancer Journey Games® program as an incentive and goal for cancer survivors to improve their physical wellbeing, which is a key factor in surviving cancer, and one of the only factors within a survivor’s personal control.

The CJF also developed and operates a free prostate cancer early detection system - www.prostatetracker.org.

The CJF has a committed board of directors; a CEO who is himself a cancer survivor and who has been an integral part of the organization since its formation in 2006; and a group of highly dedicated volunteers.

CEO Robert Hess is well versed in the needs to cancer survivors. In 2015 the Amgen Corporation named him one of their 10 National Breakaway from Cancer champions; he was twice honored by the Los Angeles Business Journal Health Leadership Awards for his work with prostate cancer awareness; and in 2016 he was selected as a patient reviewer for prostate cancer research proposals under the Congressionally Directed Medical Research Programs (CDMRP).

CEO Robert Hess has interacted directly with many cancer organizations over the past decade and is well versed in developing programs and relationships that integrate the synergies of multiple organizations to better support the cancer survivor community.

1 - Created and operate the only free prostate cancer early detection tool. It is available to anyone on the Internet at www.prostatetracker.org
2 - Created one of the top 10 bicycling cancer awareness events in the United States - The Alpine Loop Gran Fondo
3 - Developed a world class website with information for cancer survivors and their care givers
4 - The Amgen Corporation named CEO Robert Hess as one of their 10 National Breakaway from Cancer champions in 2015
5 - Created the annual Tour de USA® cross America automotive road rally for cancer awareness
6 - Created the first ever Cancer Awareness Autocross Male/Female Team Competition to extend cancer awareness into the motorsports segment
7 - Established partnerships with innovative organizations like CancerAid.com (a SharkTank winner) to bring new capabilities to the cancer survivor community.

Financials

CANCER JOURNEYS FOUNDATION
lock

Unlock financial insights by subscribing to our monthly plan.

Subscribe

Unlock nonprofit financial insights that will help you make more informed decisions. Try our monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights?
Learn more about GuideStar Pro.

Operations

The people, governance practices, and partners that make the organization tick.

lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

CANCER JOURNEYS FOUNDATION

Board of directors
as of 12/30/2022
SOURCE: Self-reported by organization
Board chair

Mr. Robert Hess

Success Foundry

Term: 2016 - 2021

Harriett M. Lanfre

Farmers & Merchants Bank

G. Scott Peterson

Community Bank

Steven Kurtz

Levinson Arshonsky & Kurtz LLP

Robert Warren Hess

Success Foundry Inc.

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No

Organizational demographics

SOURCE: Self-reported; last updated 3/16/2021

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Male, Not transgender
Sexual orientation
Heterosexual or Straight
Disability status
Person with a disability

Race & ethnicity

Gender identity

Transgender Identity

Sexual orientation

Disability

We do not display disability information for organizations with fewer than 15 staff.

Equity strategies

Last updated: 03/16/2021

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We review compensation data across the organization (and by staff levels) to identify disparities by race.
  • We ask team members to identify racial disparities in their programs and / or portfolios.
  • We analyze disaggregated data and root causes of race disparities that impact the organization's programs, portfolios, and the populations served.
  • We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
  • We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
  • We disaggregate data by demographics, including race, in every policy and program measured.
  • We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
Policies and processes
  • We use a vetting process to identify vendors and partners that share our commitment to race equity.
  • We have a promotion process that anticipates and mitigates implicit and explicit biases about people of color serving in leadership positions.
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
  • We measure and then disaggregate job satisfaction and retention data by race, function, level, and/or team.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.