Clubfoot Research Foundation

Who are the people you serve with your mission?

We serve patients, caretakers, medical professionals and the general public

How is your organization collecting feedback from the people you serve?

Electronic surveys (by email, tablet, etc.), Focus groups or interviews (by phone or in person), Case management notes, Community meetings/Town halls, Constituent (client or resident, etc.) advisory committees, Suggestion box/email, Discussions with members,

How is your organization using feedback from the people you serve?

To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals,

What significant change resulted from feedback?

A member recently reported issues with her endocrine system which we incorporated into our research project to write and define the disorder CTEV. After much research we found so much more information that we now are going to publish as part of our physician education effort. The slide show will be presented at conferences and used to educate all stakeholders in the future. It is because of our listening and engaging with actual patients that we are able to identify the research gaps and the knowledge gaps and we pass those on to other organizations responsible for research in other disorders, even the CDC.

With whom is the organization sharing feedback?

The people we serve, Our staff, Our board, Our funders, Our community partners,

How has asking for feedback from the people you serve changed your relationship?

Direct feedback from patients guides our decisions from the beginning. We listen where others do not. We incorporate suggestions that are often ignored by others. We have evolved as a result from the inputs we received. We are now the most collaborative non-profit in this sector of medicine

Which of the following feedback practices does your organization routinely carry out?

We collect feedback from the people we serve at least annually, We take steps to get feedback from marginalized or under-represented people, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We tell the people who gave us feedback how we acted on their feedback, We ask the people who gave us feedback how well they think we responded,

What challenges does the organization face when collecting feedback?

We don't have any major challenges to collecting feedback,