Piper's Angels Foundation Inc.

Our organization is aiming to build a platform of advocacy for cystic fibrosis patients and families by empowering them through innovative social services in a variety of areas including urgent financial needs, education, health and wellness activities, and critical research.

Our strategies for making this happen focus on three main areas:
-First, is to develop a platform for advocacy and education. We are a CF family rallying for other CF families. Our annual flagship event the Crossing For Cystic Fibrosis empowers CF participants to challenge themselves in a bold new way while fundraising to support others through our programs. We have launched the first global day of activism and giving for the CF community called "Warpaint Wednesday". We produce a weekly radio show and podcast called Epic Love Radio that features inspiring stories of love through action in the CF community and beyond to provide a voice for advocacy and to learn how others are taking on the challenges in their life.
-Second, is to provide financial support through our Urgent Financial Support program to help alleviate the financial burden and stress that accompanies this disease.
-Thirdly, we have developed opportunities for our CF patients to participate in life-enhancing activities such as salt water activities, yoga, and mindfulness practices.
- Fourth, we address the psycho-social issues of isolation and nutrition deficits during long-term hospitalizations through our Dining Days program.

Our organization's capabilities for doing this are as follows:
-Passion: As a CF family rallying for CF families, we work tirelessly to bring forth the results of a clear focus and mission.
-Team: Our staff, advisory board, and board of directors are very experienced in a variety of skillsets and disciplines. We take a very entrepreneurial approach to our business activities, and pride ourselves on efficiency and responsiveness to the vast and variant needs of our patients, families, donors, sponsors, and strategic partners.
-Community: We believe that forming a culture of all-inclusiveness is key to building a strong community. Our local community of participants and volunteers are passionately driven to help achieve our mission. Our national community of CF patients, families, and social workers continuously grows as our organizations grows, and allows for widespread education and activation for our programs.
-Resources: Powered with passion and fostered through the cultivation of an empowered team and community, our human and financial resources are abundantly available to support our goals.

We have accomplished a great deal in a short period of time since our initial launch in January 2017.

Measurable outcomes to date 3/01/20:

- Crossing For Cystic Fibrosis event has raised over $1,175,000 to date in support of the cystic fibrosis community and establishing the Piper's Angels Foundation.

- Crossing For Cystic Fibrosis event has been featured in USA Today, ESPN, and over 50 media articles online and print, raising awareness and reaching millions of people through traditional and social media.

- Piper's Angels Foundation and Crossing For A Cure event has contributed over $25,000 to the Cystic Fibrosis Foundation in support of their mission for a cure.

- Piper's Angels Foundation has partnered with St. Mary's Medical Center and BJ's Restaurants to establish the CF Dining Days Program at St. Mary's to deliver meals to patients in the hospital.

- The Piper's Angels Foundation Urgent Financial Assistance Program has been listed on the National Directory for the Cystic Fibrosis Foundation Compass Program.

- Piper’s Angels Foundation has been awarded grants from the Edward T. Bedford Foundation, Virginia Wellington Cabot Foundation, and Frederick Lenz Foundation.

- Piper’s Angels Foundation launched a global day of activism and awareness for CF called Warpaint Wednesday.

# of Forever Stoke Scholarships awarded: 28
# of CF participants in Crossing For A Cure: 10
# of estimated CF participants 'salt sessions' in the Salt Supply Program: 300+
# of CF families supported with Urgent Financial Assistance locally and nationally: 105
# of CF families/patients that have participated in the CF Dining Days Program: 22
# of CF patients that have enrolled in our Unmasking Mindfulness Program locally and nationally: 8
# of CF patients or families featured on our educational based Epic Love Radio Show podcast: 23
We fundraised over $31,000 for 9 non-profit foundations in 4 different countries in the 2019 Crossing.



What's next for our organization?

-We are continuing to expand the awareness of "Warpaint Wednesday" on a global scale.
-We are continuing to expand our outreach and education about our programs to social workers on a national level.
-We are working on the development and implementation of a mindfulness based program.
-We are working with several companies on the development of innovative products for the CF community focused around health and wellness.
-We are developing new educational and inspiring video content.
-We will continue to raise funds for our CF Warrior Endowment Fund with the long term goal of providing a sustainable sources of funding for CF families and our programs.