DYSAUTONOMIA SUPPORT NETWORK

We strive to improve the quality of life of patients worldwide by increasing understanding, awareness and access to appropriate medical care for all patients. We aim to dispel the misunderstanding and prejudice that many medically complex patients face in medical settings and in society as a whole.

By using technology and working with other organizations, physicians, researchers and advocates in our field we are aligning to increase the scientific understanding of the relationship between dysautonomia, and related conditions in the hope of finding new treatment options and improve the patient experience. We help patients through every stage of their journey, from diagnosis to advocacy. We promote a positive but realistic community for those living with chronic illness and pain. We increase confidence and independence in our members by supplying them the tools, support, education and resources they need to adapt to life with chronic illnesses while challenging themselves to set new goals despite their physical limitations.

We train our volunteers to assist others, using technology to provide peer to peer support, education, and resources online. We have a talented and skilled team of volunteers. We are committed to using open, accessible, communication, using technology to advocate, educate and empower members, volunteers, and providers with the highest standards of safety, integrity, and transparency with a collaborative approach to improve the patient experience in an inclusive environment with respect for all individuals. Establish our Medical Advisory Board which will oversee our resource creation and bring new education to both patients and providers.

DSN currently offers online support and resources to over 25, 000 people online. Our trained volunteers moderate support groups on both Facebook and Inspire support Forum. We offer monthly virtual support group meetings. We have awarded 8 educational scholarships and 6 service dog grants since 2016.