PMG Awareness Organization, Inc.

Unlocking the Mysteries of Polymicrogyria (PMG)

Newport Beach, CA   |  www.pmgawareness.org

Mission

OUR MISSION  is to build a community of support to enhance the lives of those affected by Polymicrogyria, through education, advocacy and promoting awareness.

Ruling year info

2017

President/CEO

Mr. Cody Stevens

Main address

4533 MacArthur Blvd. Ste. #5182

Newport Beach, CA 92660 USA

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EIN

81-4712011

NTEE code info

Brain Disorders (G48)

Brain Disorders (G48)

Brain Disorders (G48)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Birthday Program

PMGA realizes that every day is a reason to celebrate our children’s victories and milestones. So, we feel that birthdays require an EXTRA special reason to take the time to celebrate! Our Birthday Program is open to all children with PMG. We will send out a very special birthday card to help them celebrate this wonderful occasion.

Population(s) Served
People with disabilities
Adults

Our PMG Awareness Bears travel all over the United States spreading awareness for PMG as well as providing love, encouragement, hope and a sense of belonging to children who are diagnosed with Polymicrogyria.

The PMG Awareness Bear will arrive at your door ready to greet your child with a hug! It will have a passport and journal with it so that you may document its journey with your child and family. Feel free to take it everywhere! The Bear loves to attend doctors appointments, therapy sessions, special occasions and even school! Hopefully, it will gain lots of attention and you and your child will have numerous opportunities to share with others what Polymicrogyria is and how it affects your child as well as others who share the diagnosis. After your visit is over, you will pack it up and send him to the next family for a whole new adventure!

The PMG Awareness Bear is intended to be your child’s companion, confidant, and best friend for the week while it is visiting your home and we hope that it will bring joy and happiness, lots of smiles and laughter, and an overall knowledge that your child is important, special and most of all LOVED!

Population(s) Served
People with disabilities
Children and youth

Where we work

Financials

PMG Awareness Organization, Inc.
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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PMG Awareness Organization, Inc.

Board of directors
as of 12/23/2021
SOURCE: Self-reported by organization
Board chair

Cody Stevens

PMG Awareness Organization, Inc.

Term: 2020 -

Cody Stevens

PMG Awareness Organization, Inc.

Natalie Fregoso

PMG Awareness Organization, Inc.

Heather Emory

PMG Awareness Organization, Inc.

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? No
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? No
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? No
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? No
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No

Organizational demographics

SOURCE: Self-reported; last updated 12/23/2021

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Male, Not transgender (cisgender)
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

Gender identity

 

Sexual orientation

Disability