PLATINUM2024

NEURODIVERSITY FOUNDATION

Embracing Different Minds to Empower All Our Futures

aka Living with Aspergers   |   Katy, TX   |  https://ndfnd.org

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Mission

Founded in 2016, the Neurodiversity Foundation is committed to empowering the neurodiverse community, directed by those it serves. As a pivotal voice in the field, we not only provide a platform for autistic advocates but also facilitate access to essential clinical and diagnostic resources. These tools are critical in reshaping public understanding and dismantling the stigmas associated with autism. We enhance individual capabilities by addressing and correcting widespread misconceptions and challenging negative prognoses that can affect self-esteem. Our initiatives emphasize a strength-based approach, ensuring each member of our community can access the support they need to thrive. This commitment to empowerment allows every participant to celebrate and embrace life confidently.

Ruling year info

2017

Founder and Executive Director

Mr. Shawn Fry

Social Impact Director

Sandi Wright

Main address

154 Bella Katy Suite 300

Katy, TX 77494 USA

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Formerly known as

Living with Aspergers Foundation

EIN

81-4716520

NTEE code info

Autism (G84)

Autism (H84)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Sign in or create an account to view Form(s) 990 for 2022, 2021 and 2020.
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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

The Neurodiversity Foundation addresses a range of critical issues impacting the neurodiverse community through its advocacy, services, and educational efforts. Here is a summary of the main issues they aim to solve: Stigma and Misconception: The Foundation works to counteract the pervasive stigma and misconceptions surrounding neurodiversity, particularly autism. By promoting understanding and acceptance, they seek to reshape societal views and create a more inclusive environment for neurodiverse individuals. Education and Employment Opportunties: Our mission is to bridge the gap in educational and employment access through established partnerships with local organizations and schools. Inadequate Access to Services: Recognizing the barriers that neurodiverse individuals often face in accessing necessary behavioral health and medical services. We effectively bridge that gap for the entire family. Our mission is to reduce the financial, physican and emotional burden of others

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Response Registry

Response Registry, a neurodiverse solution to many of the problems presented by the COVID-19 epidemic, is a rapid development project we designed and have dedicated full-time resources to while running our existing business and foundation. Response Registry qualifies both your clinical symptoms of having COVID-19 along wth you overall health equity to determine if you need emergency medical attention and provides immediate contact with a physician, testing facility or hospital at no cost to the individual.

Population(s) Served
Economically disadvantaged people
Families

Our "Autism Unmasked" initiative is created to improve the diagnostic criteria of women with Autism. Currently, men are diagnosed at a 4:1 ratio due to male trials being heavily dominated by male subjects. Even within men, the diagnostic criteria vary by individual and highly stereotyped. Women have an even harder time achieving a diagnosis because of their guided social development and ability to "mask" their underlying traits. Women are often misdiagnosed as bi-polar, borderline, ADD, depression and anxiety and treated incorrectly through pharmaceuticals, therapy and social stigma that dysaffects so many otherwise healthy individuals. The long term psychological impact is so great, it is critical we intervene.

Population(s) Served
Women and girls
People with psychosocial disabilities

We are developing a comprehensive friendship (and dating) platform to help neurodiverse individuals socially integrate and find partners in life. Nearly half of adults with autism live with a family member and about one in five is unemployed. Only 9 percent have ever been married. Only 32 percent of people with autism have had a romantic partner despite having a similar desire for human connection as neurotypicals. This is a tragic and overlooked emotional trauma affecting millions of good people.

Population(s) Served
People with disabilities
People with psychosocial disabilities

80% of people with autism who have college degrees are unemployed. Of the 20% who are employed, 50% of those are underemployed. Neurodiversity Foundation has partnered with Potentia Workforce to build workforce inclusion and training programs and has successfully began placing candidates in higher earning positions with integrated support and had dramatic results in quality of life and workplace performance.

Our social model approach creates and environment that not only benefits the neurodiverse individual but the entire workforce. Within this approach we do not encourage the individual to change who they are or "fix their deficits", we acknowledge their strengths and put them in a position to success by building natural supports and individual accommodations into the role.

Population(s) Served
People with intellectual disabilities
Economically disadvantaged people

Strengths First is a pioneering healthcare platform from the Neurodiversity Foundation, tailored to meet the unique needs of neurodivergent individuals, including those experiencing PTSD. Understanding the challenges faced by those who are uninsured or burdened with high deductibles, we are dedicated to providing a streamlined and cost-effective healthcare solution. Our affordable membership program, starting at just $47 per family, grants comprehensive access to a range of essential services. Members benefit from behavioral health services, diagnostic assessments, and consultations with psychologists and psychiatrists, alongside general physician consultations and prescription medications. This innovative model removes the financial barriers of copays, deductibles, and prior authorizations, making vital healthcare services accessible and affordable to all members.

Visit us at: www.strenghtsfirst.org







Population(s) Served
People with disabilities
People with diseases and illnesses
At-risk youth
Economically disadvantaged people

Sharena, Gillian

Shawn to add more information

Population(s) Served

Braden College Nonprofit Initiative, is a visionary program committed to fostering educational equity for neurodivergent people. We believe those with autism and dyslexia have a fundamental right and a pivotal force for societal progress. Our nonprofit initiative is designed to support underserved communities, providing scholarships, educational resources, and comprehensive support programs to students who face financial, social, or academic barriers.

Our mission is to bridge the gap in educational access and success, enabling every student to achieve their potential irrespective of their background. Through partnerships with local organizations, businesses, and alumni, we extend a wide array of programs including mentorship, tutoring, and career counseling to equip students with the skills and confidence needed to succeedTeaching certifications designed to enhance the skills of ND indivuals in the way they learn to solve real world problems while earning prevailing wage.

Population(s) Served
People with disabilities

Where we work

Awards

Diversity Champion 2021

Houston Business Journal

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of accolades/recognition received from third-party organizations

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with disabilities, People with diseases and illnesses

Related Program

Clinical Research

Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Increasing

Context Notes

Named "Diversity Champion" in Business Journal, "NIght of Superstars" main honoree for work with autism, many news articles and speaking engagements at universities and medical schools.

Number of industry standards/practices developed by nonprofit

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with disabilities

Related Program

Strengths First - Providing Behavioral & Medical Services to the Families of Neurodivergents

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Established diagnostic protocols for health and assessment for clinical and behavioral health. Improving accurate diagnosis and treatment plans due to advanced protocols.

Average number of service recipients per month

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with disabilities, People with diseases and illnesses

Related Program

Autism "Unmasked" - Diagnosing Women

Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Increasing

Context Notes

We have successfully launched numerous awareness campaigns that have reached millions, educating the public on the realities of neurodiversity and reducing stigma associated with autism.

Number of children receiving medical services

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with disabilities

Related Program

Clinical Research

Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Increasing

Context Notes

Our physicians are on the forefront of developing personalized medical interventions that address the diverse needs of autistic individuals. These tailored treatments go beyond managing symptoms.

Number of people unable to obtain or delaying needed medical care

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with disabilities, People with diseases and illnesses

Related Program

Strengths First - Providing Behavioral & Medical Services to the Families of Neurodivergents

Type of Metric

Output - describing our activities and reach

Direction of Success

Decreasing

Context Notes

There are over 2 million neurodivergent people who have no access to healthcare or whole insurance does not adequately cover behavioral therapy. We make that affordable for the entire family.

Number of children with autism spectrum disorder receiving special services by age 48 months

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with disabilities, People with diseases and illnesses

Related Program

Strengths First - Providing Behavioral & Medical Services to the Families of Neurodivergents

Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Increasing

Context Notes

Our program allows behavioral therapists, psychologists and psychiatrists to intercede early in childhood development and cover the cost of care and treatment. Medications are included.

Number of children screened for autism and other developmental delays

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with disabilities

Related Program

Strengths First - Providing Behavioral & Medical Services to the Families of Neurodivergents

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Access to trained behavioral health resources allows earlier screening and intervention allowing for better health, academic and social outcomes.

Total number of clients experiencing unemployment

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with disabilities

Related Program

Neurodiverse Employment Initiative

Type of Metric

Output - describing our activities and reach

Direction of Success

Holding steady

Context Notes

85% of adults with autism are unemployed, even those with college degrees. It is not due to their inability to perform work functions and even excel at specific work times such as STEM.

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Add here:
The Neurodiversity Foundation aims to achieve several key objectives in its mission to support the neurodiverse community:

Increase Awareness and Understanding: One of the primary goals is to enhance public understanding of neurodiversity, particularly conditions like autism, by educating the public on the unique challenges and strengths of neurodiverse individuals. This involves dispelling myths and combating stigma to foster a more inclusive society.

Empower Neurodiverse Individuals: The Foundation seeks to empower those within the neurodiverse community by promoting self-advocacy and providing platforms for their voices and experiences. This empowerment is aimed at helping individuals embrace their identity and leverage their unique strengths.

Improve Access to Resources: By offering and facilitating access to essential services such as healthcare, education, and employment opportunities, the Foundation aims to ensure that neurodiverse individuals can lead fulfilling and autonomous lives.

Support Through Community and Advocacy: The Foundation builds and nurtures a supportive community for neurodiverse individuals and their families. They advocate for policy changes and support initiatives that enhance the quality of life and rights of neurodiverse populations.

Promote Neurodiversity in Workplaces and Schools: Another important goal is to integrate neurodiversity-friendly practices in workplaces and educational institutions, which includes training and resources to accommodate neurodiverse individuals effectively.

The Neurodiversity Foundation employs several strategic approaches to achieve its objectives and make a lasting impact on behalf of the neurodiverse community:

Education and Awareness Campaigns: The Foundation conducts educational campaigns aimed at the general public, educators, employers, and policymakers. These campaigns focus on increasing understanding of neurodiversity, debunking common myths, and highlighting the potential of neurodiverse individuals.

Advocacy and Policy Influence: By working with policymakers at local, national, and international levels, the Foundation seeks to influence and reform policies to better support the needs of neurodiverse individuals. This includes advocating for inclusive education systems, equitable workplace practices, and comprehensive healthcare coverage.

Community Engagement and Support: The Foundation fosters a strong community network that offers support, resources, and advocacy for neurodiverse individuals and their families. This includes organizing events, workshops, and support groups that build solidarity and empower members of the neurodiverse community.

Partnerships and Collaborations: Collaborating with other organizations, both within and outside the neurodiversity movement, is key to amplifying their efforts. These partnerships can include academic institutions, healthcare providers, nonprofit organizations, and corporate allies.

Service Provision: The Foundation provides direct services, such as access to diagnostic assessments, therapy sessions, and educational programs tailored to the needs of neurodiverse individuals. They may also offer training programs for professionals to better understand and support neurodiversity in their fields.

Research and Development: Supporting and conducting research related to neurodiversity is another pillar of their strategy. This research can help improve understanding of neurodiverse conditions, develop new interventions, and measure the effectiveness of existing programs and strategies.

Resource Development: Creating accessible resources for neurodiverse individuals, families, educators, and employers, such as guides, toolkits, and online platforms, helps disseminate valuable information and best practices more widely.
T
hrough these strategic approaches, the Neurodiversity Foundation aims to create a more inclusive and supportive environment for neurodiverse individuals, ensuring their talents and abilities are recognized and nurtured.

Neurodiversity Foundation can leverage a comprehensive set of tools and networks to accomplish its goals. Here's an overview of the potential combined resources and how they could be utilized:

Medical Expertise: Neurodiversity Foundation offers access to a broad network of physicians and specialists which include behavioral experts in psychiatry, psychology, and behavioral therapy. This resource can provide crucial medical insights, diagnostic services, and personalized treatment plans tailored for neurodiverse individuals.

2. Healthcare Technology: With advancements in healthcare technology, NDFND provides innovative tools such as telemedicine platforms, genetic analysis, diagnostic tools, and patient management systems that can enhance the accessibility and quality of care for the neurodiverse community.

3. Educational Content: NDFND provides an educational curriculum and webinars focused on ND issues designed to address the specific needs of neurodiverse individuals and their families, helping them and their caregivers better understand and manage their conditions, advanced their educaiton and employment opportunities.

4. Advocacy Networks: NDFND brings strong advocacy networks that can influence policy and public perception regarding neurodiversity. These networks can be crucial for initiating policy changes and fostering an inclusive society.

2. Community Engagement Platforms: NDFND likely maintains platforms for community engagement and support, offering mentoring, peer chats, forums, workshops, and social events tailored to the neurodiverse community. These platforms facilitate peer support and community building.

3. Research and Data: With a focus on neurodiversity, we provide valuable research and empirical data which can inform better practices in healthcare provision and advocacy, improving outcomes for neurodiverse populations.

Strategies to Achieve Foundation Goals

1. Integrated Care Approaches: By integrating medical resources with advocacy and educational efforts, a holistic care model can be developed. This model would not only address the medical needs of neurodiverse individuals but also support their social, educational, and emotional well-being.

2. Policy Advocacy: Utilizing data and technological resources in conjunction with advocacy efforts could lead to more informed, evidence-based policy making that supports the rights and needs of neurodiverse individuals.

3. Access to Technology-Enhanced Services: Leveraging technology we provide remote diagnostic and treatment services, making healthcare more accessible to neurodiverse individuals who might face challenges with mobility, affordability and coodination of care.

Our program is designed to support the entire family, employment organization, academic insitution and individual. Please help us enrich the lives of those who deserve an opportunity to meet their potential.

The Neurodiversity Foundation, since its inception in 2016, has made significant strides in making crtiical medical resources available, advancing the rights, recognition, and employment resources for the neurodiverse community. Our accomplishments span various domains, reflecting our commitment to empowering individuals with neurodiverse conditions.

Healthcare Access and Innovation: In partnership with healthcare providers, we have enhanced access to specialized medical and therapeutic services tailored to the neurodiverse population. This includes the development and adoption of innovative diagnostic tools and treatment approaches that are sensitive to the unique needs of neurodiverse individuals.

Awareness and Education: We have successfully launched numerous awareness campaigns that have reached millions, educating the public on the realities of neurodiversity and reducing stigma associated with neurological differences. Our educational initiatives have also been incorporated into school curriculums and workplace training programs, fostering environments that appreciate and nurture neurodiverse talents.

Advocacy and Policy Influence: Through relentless advocacy, we have influenced policies that ensure greater inclusion and support for neurodiverse individuals in educational institutions, workplaces, and healthcare settings.

Community Engagement and Support: Our community support programs have grown extensively, providing a network of resources, mentorship, and peer support that empower neurodiverse individuals and their families. These programs have not only facilitated personal growth and self-acceptance among participants but have also built a strong, supportive community that advocates for collective rights and recognition.

Research and Development: Our commitment to research has yielded valuable insights into neurodiversity, significantly contributing to the academic and clinical understanding of neurological variations. These studies have informed best practices and are regularly used to refine our programs and interventions.

Technology and Accessibility: We have leveraged cutting-edge technology to make educational and healthcare resources more accessible to the neurodiverse community. This includes the development of apps and platforms that provide remote access to a range of services, from psychological counseling to educational assistance, ensuring that geographical and physical barriers do not hinder access to support.

The Neurodiversity Foundation remains dedicated to its mission of empowering neurodiverse individuals by promoting acceptance, providing support, and pioneering innovative solutions to the challenges they face. Our ongoing projects and future initiatives continue to build on this solid foundation, striving for a world where neurodiversity is not just accepted but celebrated.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.
  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals

  • Which of the following feedback practices does your organization routinely carry out?

    We collect feedback from the people we serve at least annually, We take steps to get feedback from marginalized or under-represented people, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We share the feedback we received with the people we serve, We tell the people who gave us feedback how we acted on their feedback, We ask the people who gave us feedback how well they think we responded

  • What challenges does the organization face when collecting feedback?

    Some of our community members are nonverbal

Financials

NEURODIVERSITY FOUNDATION
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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Connect with nonprofit leaders

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Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

NEURODIVERSITY FOUNDATION

Board of directors
as of 04/18/2024
SOURCE: Self-reported by organization
Board chair

Mr. Shawn Fry

Neurodiversity Foundation

Term: 2016 - 2026

Deana Bass Williams

Bass Public Affairs

Matthew Derella

Catalyte

Shawn Fry

Optimal.MD

Jillian Pierucci

St. Mary's University

Leah Gambal

Access Dyslexia

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 4/18/2024

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Male, Not transgender
Sexual orientation
Heterosexual or Straight
Disability status
Person with a disability

The organization's co-leader identifies as:

Gender identity
Female
Disability status
Person with a disability

Race & ethnicity

Gender identity

No data

Transgender Identity

No data

Sexual orientation

No data

Disability

We do not display disability information for organizations with fewer than 15 staff.

Equity strategies

Last updated: 10/24/2023

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We review compensation data across the organization (and by staff levels) to identify disparities by race.
  • We ask team members to identify racial disparities in their programs and / or portfolios.
  • We analyze disaggregated data and root causes of race disparities that impact the organization's programs, portfolios, and the populations served.
  • We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
  • We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
  • We disaggregate data by demographics, including race, in every policy and program measured.
  • We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
Policies and processes
  • We use a vetting process to identify vendors and partners that share our commitment to race equity.
  • We have a promotion process that anticipates and mitigates implicit and explicit biases about people of color serving in leadership positions.
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We have community representation at the board level, either on the board itself or through a community advisory board.
  • We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
  • We measure and then disaggregate job satisfaction and retention data by race, function, level, and/or team.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.