Disease, Disorders, Medical Disciplines

Sebastianstrong Foundation

Racing to cure childhood cancer

aka SebastianStrong

Miami Springs, FL

Mission

To increase awareness of childhood cancers by raising money to fund research for less toxic, more targeted childhood cancer cures.

Ruling Year

2017

Executive Director

Oscar Ortiz

Main Address

P.O. BOX 661156

Miami Springs, FL 33266 USA

Keywords

pediatric/childhood cancer, awareness, research, funding, less toxic cures, more targeted cures

EIN

81-5044002

 Number

6257072578

Cause Area (NTEE Code)

Fund Raising and/or Fund Distribution (G12)

IRS Filing Requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Social Media

Programs + Results

What we aim to solve New!

Pediatric cancer research is drastically underfunded. Treatment protocols are outdated, extremely limited, toxic, and often ineffective. Additionally, there is an enormous need for an increased public awareness of the problem.

Our programs

What are the organization's current programs, how do they measure success, and who do the programs serve?

SOURCE: Self-reported by organization

2017 SebastianStrong Childhood Cancer Awareness Weekend

Where we workNew!

Charting Impact

Five powerful questions that require reflection about what really matters - results.

SOURCE: Self-reported by organization

What is the organization aiming to accomplish?

What are the organization's key strategies for making this happen?

What are the organization's capabilities for doing this?

How will they know if they are making progress?

What have and haven't they accomplished so far?

Our Foundation aims to increase the public's awareness of the need for funding research in order to find less toxic and more targeted treatments and cures for pediatric cancers. Additionally we seek to raise money in order to fund cutting-edge research in this field.

Strategies involve participating in speaking engagements in the community in order to increase awareness as well as hosting events ranging from dress down days to a 5K and gala in order to raise necessary funds, as well as seeking out partnerships and sponsorships with local, state, and national organizations and corporations.

We have a diverse Board of Directors composed of well respected, capable, and connected men and women who are dedicated to making a positive impact in the fight against pediatric cancers. The passion and dedication of our supporters and sponsors is our most valuable asset.

Researchers receiving funding for their projects are required to update us with their progress at scheduled intervals in order to determine whether projects merit continued funding. We will know we are making progress when the prognosis for children diagnosed with pediatric cancers improves, when the federal government begins to spend a larger percentage of its budget on children, when "going gold" in September is as big as "going pink" in October, and when pharmaceutical companies are willing to invest in drugs specifically for children's cancers at the rate they spend on adult cancers.

So far we have provided funding for 3 promising research studies at top institutions including Johns Hopkins, Children's Hospital of Philadelphia and the University of Miami's Sylvester Comprehensive Cancer Center.

External Reviews

Financials

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Operations

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Board Leadership Practices

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section, which enables organizations and donors to transparently share information about essential board leadership practices.

SOURCE: Self-reported by organization

BOARD ORIENTATION & EDUCATION

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?

Not Applicable

CEO OVERSIGHT

Has the board conducted a formal, written assessment of the chief executive within the past year?

Not Applicable

ETHICS & TRANSPARENCY

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year?

Not Applicable

BOARD COMPOSITION

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?

Not Applicable

BOARD PERFORMANCE

Has the board conducted a formal, written self-assessment of its performance within the past three years?

Not Applicable