GOLD2024

Avery's Hope

#CaringForRare

aka Avery's Hope   |   New Hope, PA   |  averys-hope.org

Mission

Avery's Hope raises money and awareness for rare, ultra rare and undiagnosed pediatric GI patient families assisting with out-of-pocket and insurance denied expenses.

Ruling year info

2017

Founder & Executive Director

Caryl Harris

Board President

Carie Chester

Main address

P.O. Box 256 11 Arden Way

New Hope, PA 18938 USA

Show more contact info

EIN

82-0872653

NTEE code info

(Fund Raising and/or Fund Distribution) (T12)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Blog

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

#caringforrare

Annual charity bike ride that is 100% volunteer and 100% to charity. This event raises money specifically for the HOPE Family Fund at Children's Hospital of Philadelphia's Department of Gastroenterology.

Population(s) Served
Children and youth

This event offers a virtual component so people can participate from all over the world. You don't have to just run or walk. You can roll, stroll, hop, skip or dance your way to 3.1 miles. Money raised is put towards pediatric GI Departments at major hospitals and individual awards for families in need.

Population(s) Served

All Fundraising Events help to serve rare pediatric GI patient families.

Population(s) Served
Families
Families

Where we work

Affiliations & memberships

Horizon RareIs Grant 2023

Patients Rising Senate 2024

EveryLife Foundation 2024

Global Genes 2024

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of program/model/intervention innovations

This metric is no longer tracked.
Totals By Year
Related Program

Monthly Fundraising Events

Type of Metric

Context - describing the issue we work on

Direction of Success

Increasing

Context Notes

We now assist five patient assistance funds at Children's Hospital of Philadelphia, Children's Hospital of Pittsburgh, St. Jude Children's Research Hospital, Boston Children's Hospital and Texas.

Number of attendees present at rallies/events

This metric is no longer tracked.
Totals By Year
Related Program

Monthly Fundraising Events

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Between our 5K, TopGolf Outing and #CaringForRare Cycling Event, we have about 750 people present at our events each year, raising money and awareness for the rare GI patient families we serve.

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.
  • How is your organization using feedback from the people you serve?

    To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals

  • Which of the following feedback practices does your organization routinely carry out?

    We take steps to get feedback from marginalized or under-represented people, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We ask the people who gave us feedback how well they think we responded

  • What challenges does the organization face when collecting feedback?

    We don't have any major challenges to collecting feedback

Financials

Avery's Hope

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Operations

The people, governance practices, and partners that make the organization tick.

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lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

Avery's Hope

Board of directors
as of 03/05/2024
SOURCE: Self-reported by organization
Board chair

Carie Chester

Eric Harris

Parul Mehta

Tom Corrigan

Elaine Huber, M.D.

Lisa Jordan

Sam Chung

Dan Jordan

Bob Fascinski

James Dunn

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 3/5/2024

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

The organization's co-leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

Gender identity

Transgender Identity

Sexual orientation

Disability

No data

Equity strategies

Last updated: 09/05/2023

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We ask team members to identify racial disparities in their programs and / or portfolios.
  • We analyze disaggregated data and root causes of race disparities that impact the organization's programs, portfolios, and the populations served.
  • We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
  • We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
  • We disaggregate data by demographics, including race, in every policy and program measured.
  • We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
Policies and processes
  • We use a vetting process to identify vendors and partners that share our commitment to race equity.
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We have community representation at the board level, either on the board itself or through a community advisory board.
  • We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.