SILVER2024

The Avalon Foundation of Toledo

kids caring for kids with rare disease

aka The Avalon Foundation   |   Ottawa Hills, OH   |  kidscaringforkids.org

Mission

The Avalon Foundation is BY KIDS - FOR KIDS! We are committed to our mission of youth-centered leadership development through service to the rare disease community. By proving emotional support to pediatric patients and their families during life-changing and critical transitions, we help shape a healthier & more positive experience that ensures compliancy with treatments as well as family unity. Within this mission, the kc4k Leadership Program is dedicated to creating self-awareness of an individual's own abilities and power to be able to make a positive impact on the world. Our kiddos develop lifelong leadership skills, cultivate compassion & commitment, and learn the importance of personal contribution to the betterment of society!

Ruling year info

2017

Principal Officer

Deb Ayres

Main address

3328 Brantford Rd

Ottawa Hills, OH 43606 USA

Show more contact info

EIN

82-1240132

NTEE code info

Youth Development Programs (O50)

Specifically Named Diseases (G80)

IRS filing requirement

This organization is required to file an IRS Form 990-N.

Communication

Blog

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

PainBox Program

This program is a customized incentive program for pediatric patients undergoing painful medical treatments to ensure compliancy. Individual care packages are created by kids to extend encouragement, offer support, and increase resilience during the most challenging time of treatment. This program also offers support to other family members and is overseen by health care professionals.

Population(s) Served
People with diseases and illnesses
Children and youth

This program is committed to being kid driven & lead; while adult monitored & guided.
The kc4k Leadership Program is dedicated to creating self-awareness of an individual’s own abilities and power to be able to make a positive impact on the world. Our program is designed to help them:
- develop lifelong leadership skills
- cultivate compassion and commitment
- teach them to personally contribute to the betterment of society.

By instilling these skills and values in our youth at a young age, we are creating a lifelong imprint that positively impacts the world.

Pillars of the Program:
Leadership
Compassion
Commitment
Contribution

Population(s) Served
Children and youth

Where we work

Awards

Rare Impact Award 2022

National Organization of Rare Disorders

Affiliations & memberships

NORD 2023

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.
  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals

  • Which of the following feedback practices does your organization routinely carry out?

    We collect feedback from the people we serve at least annually, We take steps to get feedback from marginalized or under-represented people, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive

  • What challenges does the organization face when collecting feedback?

    It is difficult to get the people we serve to respond to requests for feedback, The people we serve tell us they find data collection burdensome, Staff find it hard to prioritize feedback collection and review due to lack of time

Financials

The Avalon Foundation of Toledo
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Operations

The people, governance practices, and partners that make the organization tick.

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lock

Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

The Avalon Foundation of Toledo

Board of directors
as of 02/23/2024
SOURCE: Self-reported by organization
Board chair

Deborah Ayres

Marcy McMahon

Douglas Hoblet

Todd Whited

Megan Jackson

Miranda Moscinski

Allison Hendricks

Kristy Cranston

Bethany Hefflinger

Deborah Ayres

Matt Ayres

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Not applicable
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No

Organizational demographics

SOURCE: Self-reported; last updated 2/23/2024

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

No data

Gender identity

Transgender Identity

Sexual orientation

No data

Disability

Equity strategies

Last updated: 02/23/2024

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We ask team members to identify racial disparities in their programs and / or portfolios.
  • We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
Policies and processes
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We have community representation at the board level, either on the board itself or through a community advisory board.
  • We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.