Brades Place

Unique medical care for unique kids

Orem, UT   |  https://bradesplace.org

Mission

Brades' Place provides specialized medical care for children living with serious illness and their families. We provide medical care for the whole child (physical, emotional, and spiritual) and supportive care for their families, including parents and siblings. By attending to unmet medical needs, unique challenges, and stress management we strive to reduce caregiver burden, strengthen siblings, and provide the much-needed respite and supportive care needed to live well and resiliently with serious pediatric illness as well as better meet the medical needs of these unique children. Many of these services are not offered through typical health insurance and are dependent on philanthropy.

Ruling year info

2017

Executive Director

Rebecca R Oakley, FNP-C, MSN

Main address

417 S Palisades Dr

Orem, UT 84097 USA

Show more contact info

EIN

82-1267516

NTEE code info

Home Health Care (includes Visiting Nurse Associations) (E92)

IRS filing requirement

This organization is required to file an IRS Form 990-N.

Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Nearly 1 in every 8 USA households have 1 or more children with severe and life-changing diagnoses, including an estimated 85,000 of Utah's children. These children typically have 2 or more chronic health conditions, take 5 medications daily, and average 13 different physicians. In spite of all this medical care, we identify an average of 8 unmet medical needs for our patients, compared to the average of two for non-seriously ill children, indicating a health disparity for these children. This disparity exists for parents as well. 70% of Utah parents with seriously ill children report that their own health and well-being is 'severely negatively affected.' Only 40% of the services needed to live well with serious pediatric illness for patients and their families are covered by health insurance, hence Brades' Place relies on philanthropy for the remaining 60%. We meet these whole person (physical, emotional, and spiritual) medical needs for both the patient and their family.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Home and Community-Based Pediatric Palliative Care

Medical care for children and their families who are facing medically-complex diagnoses. Medical care is provided in their home to address physical, emotional, & spiritual wellbeing of both the patient and their families through well-rounded medical care.

Population(s) Served
People with diseases and illnesses
People with disabilities

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

How many people in Utah have qualified for "Services for people with disabilities" through DSPD, yet are not receiving those services?

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with disabilities, People with diseases and illnesses

Related Program

Home and Community-Based Pediatric Palliative Care

Type of Metric

Context - describing the issue we work on

Direction of Success

Decreasing

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Brades’ Place is a nonprofit organization that provides unique medical care designed specifically for children living with serious, life-long medical diagnoses and their families. Because these severe diagnoses affect all aspects of the patient’s health and their family, we provide whole person and family medical care 24/7, in their home and community.

We do this through patient and family-centered medical care, a connection to their medical team at all times of day and night, multi-modality medical focus, coordination of their existing medical team and services, parent support services, sibling support services, and care provided in their home, where they need it most.

Our outcomes include:
1. By providing specialized and individualized medical care, we will increase the comfort and function of our patients.
2. By working with their existing medical team with support and coordination, we will meet or reduce the child's presently unmet medical needs, resolving their health disparity.
3. By reducing caregiver stress and burden, we will increase parent health and wellness as we reduce the effects of caring for a seriously ill child on parent health.
4. By attending to sibling needs and resiliency through sibling support, we will increase sibling resiliency and increase their emotional wellbeing to minimize the effects of living with 24/7 stress and sibling priority.
5. We will increase social supports and support systems in the lives of our families.
6. By offering educational opportunities to families and communities, we will increase knowledge about how illnesses happen, specific diseases, and how to live well with pediatric serious illnesses.

Children who are born with or develop lifelong illnesses are subject to greater healthcare needs than their peers, and often lack sufficient support to provide for those needs. Barriers to care are often economic, social, geographical, or some combination thereof.

Brades' Place works to identify patients with unmet medical needs and remove or minimize the barriers that keep them from accessing the medical care they need. We do this, and will continue to do this, by providing our services with as little financial burden as possible (implementation of patient grants, foundations, sliding-scale fees, etc), by providing care in the home and utilizing telehealth (improving accessibility), and by providing holistic, supportive services to patients and their families that increase overall health and wellness and decrease the need for more acute medical interventions.

We also recognize that true healthcare equality must happen on a micro and macro level. We are presently working to form a coalition of pediatric palliative care providers in our geographical region, and have regular meetings with our health department to problem solve the need for greater support for children with lifelong illnesses. We have laid the groundwork for legislative action to increase the available resources to these children and their families, and will continue to advocate for these patients in their greater communities.

Our organization's capabilities are rich with diversity and outstanding leadership from our Board of Directors. We have a business plan which outlines our stages of growth and prioritizes our core services. We are committed to keeping lean as an organization so that over 95% of our donations continue to go to direct services.

We are also committed to slow family and patient growth to ensure that the families we serve receive all the services they need during this growth phase.

We have strong support from the community at large, as demonstrated by existing statewide and national partnerships that are formed and we prioritize strengthening.

Beginning in 2017 as a nonprofit and created our founding board of directors. Beginning in 2018, we provide bi-annual community and family events, which have nearly doubled each year in attendance, having over 200 attendees at our 2021 Family Event. In 2019 we graduated our family nurse practitioner with an emphasis on medical care for children with disabilities. In 2020 we added a mobile office and started in-home palliative care services. 2021 welcomed the beginning of parent supportive services and events as well as siblings services and events. We were also able to begin offering supportive breaks away from caregiving for the families in 2021 with in-home respite for all family members.

2022 will bring greater patient census and refinement of our in-home palliative care program on all levels and partnerships nationwide with collaboration to advance the mission of pediatric palliative care. Brades' Place has worked with legislators and state human service and health directors to better meet the needs of these children and their families outside of just Brades' Place. We intend to form a Pediatric Palliative Care Coalition in Utah to stand independently to ensure the needs of Utah's seriously ill children.

Before 2025 we will build a facility to house these needs and provide out of home respite as well.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We demonstrated a willingness to learn more by reviewing resources about feedback practice.
done We shared information about our current feedback practices.
  • Who are the people you serve with your mission?

    Children with lifelong illnesses and their families, communities, and health providers.

  • How is your organization collecting feedback from the people you serve?

    Electronic surveys (by email, tablet, etc.), Paper surveys, Focus groups or interviews (by phone or in person), Case management notes, Suggestion box/email,

  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals,

  • What significant change resulted from feedback?

    We recently hosted an event, and gathered feedback from the participants. We have had a roundtable discussion reviewing the feedback, and are implementing changes for next years events based on it.

  • With whom is the organization sharing feedback?

    Our staff, Our board, Our funders,

  • How has asking for feedback from the people you serve changed your relationship?

    We believe that our mission can only be met by responsively listening to and engaging with those we serve. Every decision we make as a company is based on their feedback.

  • Which of the following feedback practices does your organization routinely carry out?

    We collect feedback from the people we serve at least annually, We take steps to get feedback from marginalized or under-represented people, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We tell the people who gave us feedback how we acted on their feedback, We ask the people who gave us feedback how well they think we responded,

  • What challenges does the organization face when collecting feedback?

    It is difficult to get the people we serve to respond to requests for feedback, The people we serve tell us they find data collection burdensome,

Financials

Brades Place
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

Brades Place

Board of directors
as of 03/01/2022
SOURCE: Self-reported by organization
Board chair

Rebecca Oakley

Brades' Place

Term: 2017 - 2021

Eden Rasmussen

Business Owner

Hannah Johnson

Special Needs School Teacher

Joseph Johnson

Pediatrician

Karen Acerson

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 9/20/2021

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender (cisgender)
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

Gender identity

 

Sexual orientation

Disability

We do not display disability information for organizations with fewer than 15 staff.

Equity strategies

Last updated: 09/20/2021

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We review compensation data across the organization (and by staff levels) to identify disparities by race.
  • We ask team members to identify racial disparities in their programs and / or portfolios.
  • We analyze disaggregated data and root causes of race disparities that impact the organization's programs, portfolios, and the populations served.
  • We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
  • We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
  • We disaggregate data by demographics, including race, in every policy and program measured.
  • We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
Policies and processes
  • We use a vetting process to identify vendors and partners that share our commitment to race equity.
  • We have a promotion process that anticipates and mitigates implicit and explicit biases about people of color serving in leadership positions.
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We have community representation at the board level, either on the board itself or through a community advisory board.
  • We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
  • We measure and then disaggregate job satisfaction and retention data by race, function, level, and/or team.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.