Disease, Disorders, Medical Disciplines

Kidney Cancer Action Network - KCAN

Taking Action, Curing Kidney Cancer

aka KCAN

Philadelphia, PA

Mission

We are the voice of kidney cancer advocacy in Washington, D.C. and the U.S.

Ruling Year

2018

President

Bryan Lewis

Main Address

8327 Germantown Avenue

Philadelphia, PA 19118 USA

Keywords

Policy Advocacy, Legislative advocacy

EIN

82-2181668

 Number

3687482667

Cause Area (NTEE Code)

Alliance/Advocacy Organizations (G01)

Alliance/Advocacy Organizations (H01)

Alliance/Advocacy Organizations (E01)

IRS Filing Requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Social Media

Programs + Results

What we aim to solve New!

Historically, kidney cancer research and awareness has lagged when compared to multiple other cancers. Nonetheless, there are almost 65,000 new cases of kidney cancer annually and more than 15,000 people die from this disease every year. Kidney cancer is the ninth most common form of cancer in the U.S.

Our programs

What are the organization's current programs, how do they measure success, and who do the programs serve?

SOURCE: Self-reported by organization

Policy Advocacy 1 - Protect and increase Kidney Cancer Research Funding

Build Awareness of Kidney Cancer & Educate Patients and related Stakeholders

Where we workNew!

Charting Impact

Five powerful questions that require reflection about what really matters - results.

SOURCE: Self-reported by organization

What is the organization aiming to accomplish?

What are the organization's key strategies for making this happen?

What are the organization's capabilities for doing this?

How will they know if they are making progress?

What have and haven't they accomplished so far?

We aim to address this inequity by raising awareness and funding for kidney cancer research.

Educate policymakers, the general public and patients and caregivers by providing current and relevant information. Provide advocacy opportunities for our stakeholders. Raise awareness through social media and communities of those impacted by this disease.

We have a network of concerned patients and caregivers. We have made significant progress with raising our voice on Capitol Hill and developing relationships with our elected representatives. We host networking opportunities for our stakeholders.

Increased awareness and attendance to our activities and advocacy events.

We have been able to secure $20 million in dedicated research funding for the kidney cancer community via the KCRP http://cdmrp.army.mil/kcrp/default. We plan to protect this program and increase the dedicated funding amounts. We plan to increase our presence and voice on matters of public policy such as "access to care, tele-medicine and the FDA approval process."

External Reviews

Financials

We do not have digitized financial information from the IRS for this organization. The information displayed below is self-reported by the organization.

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Operations

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Board Leadership Practices

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SOURCE: Self-reported by organization

BOARD ORIENTATION & EDUCATION

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?

Not Applicable

CEO OVERSIGHT

Has the board conducted a formal, written assessment of the chief executive within the past year?

Not Applicable

ETHICS & TRANSPARENCY

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year?

Not Applicable

BOARD COMPOSITION

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?

Not Applicable

BOARD PERFORMANCE

Has the board conducted a formal, written self-assessment of its performance within the past three years?

Not Applicable