HFC

Bringing Light to Alzheimer's

aka Hilarity for Charity   |   Los Angeles, CA   |  https://wearehfc.org/

Mission

HFC is a nonprofit organization, led by Seth Rogen and Lauren Miller Rogen, whose mission is to care for families impacted by Alzheimer’s disease, inspire the next generation of Alzheimer’s advocates, and be leaders in brain health research and education.#BringingLightToAlzheimers

Ruling year info

2017

Executive Director

Ms. Bonnie Wattles

Main address

9301 Wilshire Boulevard, Suite 507 c/o OLC, LLP

Los Angeles, CA 90210 USA

Show more contact info

EIN

82-2316072

NTEE code info

Alzheimer's (G83)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Alzheimer's is the 6th leading cause of death in the US. It’s estimated that the number of American families touched by Alzheimer’s will increase from approximately 5.7 million today to 16 million by 2050. Alzheimer’s is a national global emergency that has a devastating health, social and economic toll on millions of people , their families and caregivers. Unpaid family caregivers are a vital, yet overburdened and systemically unsupported, eldercare labor force. In the U.S. approximately 15.9 million family members provide 18.5 billion hours of unpaid care for dementia patients. Without a national paid leave plan to provide care, caregivers providing unpaid care need support. We now know that 4 in 10 cases of Alzheimer’s may be prevented through brain healthy lifestyle interventions. And, since the disease begins in the brain 20-30 years prior to the onset of symptoms, it is critical for young people to have access to the tools, knowledge, and skills to take care of their brains.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

HFCUniverse

HFCUniverse is an online digital experience that offers easy-to-access, celebrity-led coursework on Alzheimer's prevention and brain health education to high school and college students. Students also have access to a robust library of resources for each of HFC's brain health pillars and the opportunity to connect with other students to build brain health networks and communities.

Population(s) Served
Students

HFC and the Home Instead Senior Care network are working together to award in-home care grants to those providing care to their loved ones living with Alzheimer's disease or other dementias. HFC is proud to have awarded over 310,000 hours of in-home respite care across the United States and Canada.

Population(s) Served
Caregivers

HFC DIY is a national network of advocates raising awareness and much needed funds in the fight against Alzheimer's.

Population(s) Served
Adults

Designed to help individuals supporting loved ones affected by Alzheimer's Disease, our online support groups help caretakers navigating their way through this disease while attending school, raising families of their own or developing careers. Groups are offered in a variety of time zones to help fit caregivers’ busy schedules.

Population(s) Served
Caregivers

Where we work

Awards

Impact Award 2021

Justice In Aging

Affiliations & memberships

Milken Institute, Alliance to Improve Dementia Care, Steering Committee 2021

Paid Leave Alliance for Dementia Caregivers, Us Against Alzheimer's 2021

LEAD Coalition 2021

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of clients served

This metric is no longer tracked.
Totals By Year
Population(s) Served

Caregivers, Young adults, Older adults, Seniors

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Clients served includes participants in the following programs: HFC In-Home Care Grant program, Online Support Groups, Caregiver Coaching, and Caregiver Wellness.

Number of online groups served

This metric is no longer tracked.
Totals By Year
Related Program

Online Support Groups

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

29 ongoing support groups running with 275 people served. Groups include: Drop-in groups, bereavement, Spouse/Partner, Adult Children, Family members Under 50, and Spanish Speaking

Number of clients who report general satisfaction with their services

This metric is no longer tracked.
Totals By Year
Related Program

Grant Program

Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Increasing

Context Notes

85% of caregivers surveyed said the care grant was “helpful,” “very helpful,” or “extremely helpful” at meeting their needs. 91% about their role as caregivers. of caregivers said the respite time he

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Since 2012, HFC has been supporting families impacted by Alzheimer’s disease. HFC was created to inspire future generations to stand up and take action against Alzheimer’s, which has been historically considered “an old person’s disease.” Our legacy programs, including HFC Caregiver Respite Grants and Online Support Groups are free and geared to those families who otherwise could not afford these critical services.

Our founders, Lauren Miller Rogen and Seth Rogen, have leveraged their celebrity platforms to reframe Alzheimer’s, the only top ten cause of death that is still on the rise, as a disease that desperately needs national attention and action. HFC remains 100% aligned with our founding principles and is committed to changing the trajectory of Alzheimer’s disease through prevention and brain health education, while also providing critical support to families impacted by the disease today. We are excited to move forward with humor, innovation, and science.

HFC seeks to:
Be an informative and comforting resource for families at any point in their Alzheimer’s journey;
Create an environment where we learn to actively care for our brains; and
Raise the visibility of HFC as an innovative leader in the Alzheimer’s space.

HFC is changing the trajectory of Alzheimer’s and dementia through empowering people with the tools, knowledge and skills to take care of their brain health while also providing critical support to families impacted by the disease.

HFC seeks to drive awareness and inspire changing by ending the shame, secrecy and stigma associated with Alzheimer’s disease. Building on HFC’s celebrity ties, the organization is a nationally-visible entity that effectively brings Alzheimer’s discussions into a variety of popular culture platforms.

HFC provides care for caregivers and seeks to transform the caregiving experience for young people and families impacted by Alzheimer’s disease. HFC supports family caregivers throughout their Alzheimer’s caregiving journey by providing free and tailored services focused on emotional support, respite, skillbuilding, coaching, and brain health education. Two of HFC’s most robust ongoing care programs are our Alzheimer’s and Dementia Care Grant Relief program, which provides free, professional respite to families caring for loved ones with Alzheimer’s and other dementias; and our online Caregiver Support Groups, which are facilitated by licensed social workers and provide a safe, virtual space with opportunities to connect, learn, share, laugh, and build relationships

HFC aims to be a leading voice in brain health education & Alzheimer’s prevention for young people and is committed to raising awareness about preventing cognitive decline. HFC’s new digital platform, HFCUniverse, is focused on generating broad scale awareness and educating young people about brain health and prevention. The goals are to: 1) identify the disease earlier in the process, 2) reduce stigma by encouraging open discussion and 3) reduce incidence or delay onset through prevention education. Our proprietary digital coursework, created in partnership with the nation's only Alzheimer’s prevention clinic and headed by renowned physician, Dr. Richard Issacson, was featured in the prestigious journal Neurology, the journal of the American Academy of Neurology, for our joint efforts to test the efficacy of online Alzheimer’s education.


HFC invests in Brain Health Prevention and Education and supports promising experts in the field. HFC’s research funding strategy focuses on innovative and promising prevention focused research. At HFC, we are committed to supporting future research and projects that advance the understanding and effectiveness of Alzheimer’s prevention among people aged 50 and younger, including brain healthy lifestyle interventions so that one day we can prevent or delay onset.

HFC aims to support family caregivers throughout their experience of Alzheimer’s and related dementias (ADRD) by providing free and tailored services focused on emotional support, respite, skillbuilding, coaching, and brain health education. Two of HFC’s most robust ongoing care programs are our Alzheimer’s and Dementia Care Grant Relief program, which provides free, professional respite to families caring for loved ones with ADRD; and our online Caregiver Support Groups, which are facilitated by licensed social workers and provide a safe, virtual space with opportunities to connect, learn, share, laugh, and build relationships. HFC is the only national non-profit organization that offers full-service grants for lengthy sessions of respite care. Ranging from three to six months, HFC grants, in partnership with Home Instead (a leading national provider of professional in-home care), place professional caregivers in the home, giving family caregivers time off for self-care, essential tasks, and critical social connection. HFC’s online support groups bring together an intergenerational cohort of participants at different stages in their caregiving trajectories. These groups are a rich source of shared knowledge and learning. By improving the caregiver’s quality of life, the quality of patient care is also elevated, benefiting everyone involved.
HFC remains committed to scaling our growth by focusing on and engaging young people, an under-represented and often overlooked group in the Alzheimer’s space. Through our celebrity platform, we are creating a social movement designed to destigmatize Alzheimer’s and other dementias and educate the public about the importance of living a brain healthy life. In partnership with the nation's only Alzheimer’s prevention clinic embedded at New York Presbyterian-Weill Cornell Medicine and spearheaded by renowned physician Dr. Richard Issacson, HFC has created digital coursework led by “Professor Seth Rogen.” Designed for high school, college, and medical students, the courses aim to change knowledge, attitudes, beliefs, and behaviors through evidenced-based, proven educational modules. Through HFC’s recently launched digital platform, HFCUniverse, thousands of young people across the country will be able to access our proprietary and innovative brain health education digital coursework.

HFC’s mission is to care for families affected by Alzheimer’s disease today, activate the next generation of Alzheimer’s advocates, and be a leader in brain health prevention research and education. Since 2012, HFC has been bringing light to Alzheimer’s through its signature celebrity events and direct service programs designed to support families impacted by the disease. Founded by actors, writers, and producers Lauren Miller Rogen and Seth Rogen, HFC first operated as a fund within the Alzheimer’s Association. In 2017, HFC received its own 501(c)(3) status, positioning the organization as a leader in the Alzheimer’s landscape. HFC’s professional staff, in collaboration with an expanding Board of Trustees, Science Advisory Board, and Care Advisory Board, are now focused on driving broad-scale awareness, activating young people in the fight against Alzheimer’s and delivering significant impact for families facing this disease today through its innovative programming. HFC’s In-Home Care Grant program and Online Support Groups are giving hope and relief to families who currently have a loved one with Alzheimer’s or other dementia. HFC is also invested in prevention as the current and most promising cure for Alzheimer’s and, to this end, engages and educates young people about living a brain healthy life. To date, HFC has raised more than $15 million dollars, organized nine variety shows, a large-scale carnival, and two virtual game shows. HFC has awarded more than 360,000 hours of respite care; offers over 20 free, online support groups for caregivers, funds cutting-edge prevention research, and engages young people in raising awareness, storytelling and brain health education. Additionally, HFC runs expanded caregiver resources and programs, including virtual book clubs, drop-in support groups, caregiver wellness webinars, and more. HFC continues to increase its public reach through active social media accounts and special digital events, including Instagram Live interviews with high profile figures such as Yvette Nicole Brown, Sean Hayes, Dr. Lisa Mosconi, Kevin Curry, Ben Robinson, and Sarah Rafferty. In 2020, HFC reached over 260,000 people through its programs, events, and social media platforms.

HFC’s 2021 impact study revealed that 85% of caregivers felt their care grant was “helpful,” “very helpful,” or “extremely helpful” in meeting their needs and 91% said the respite time helped them manage their stress. Of those who participated in HFC’s support groups, 80% of caregivers said the support groups were “helpful,” “very helpful,” or “extremely helpful” in learning both how to provide better care and about Alzheimer’s or other dementia and 79% felt more emotionally prepared to provide care as a result of the support groups.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.
  • How is your organization collecting feedback from the people you serve?

    Electronic surveys (by email, tablet, etc.), Paper surveys, Focus groups or interviews (by phone or in person), Suggestion box/email,

  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals,

  • With whom is the organization sharing feedback?

    The people we serve, Our staff, Our board, Our funders, Our community partners,

  • Which of the following feedback practices does your organization routinely carry out?

    We collect feedback from the people we serve at least annually, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive,

  • What challenges does the organization face when collecting feedback?

    It is difficult to find the ongoing funding to support feedback collection,

Financials

HFC
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

HFC

Board of directors
as of 3/4/2022
SOURCE: Self-reported by organization
Board chair

Daniel Miller

Gabelli Funds, LLC

Term: 2017 -

Lauren Rogen

LYLAS Pictures

Seth Rogen

Point Grey Pictures

Allison Statter Statter

Blended Strategy Group

Raffi Adlan

Partizan

Matthew Bass

Screenwriter

Justin Meltzer

DLA Piper LLP

David Leventhal

Ogulnick Leventhal Cajka LLP

Isabel Feinstein

Arizona Otolaryngology Consultants, PC

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Not applicable
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 03/04/2022

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender (cisgender)

Race & ethnicity

Gender identity

 

Sexual orientation

No data

Disability

Equity strategies

Last updated: 03/04/2022

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We review compensation data across the organization (and by staff levels) to identify disparities by race.
  • We ask team members to identify racial disparities in their programs and / or portfolios.
  • We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
  • We disaggregate data by demographics, including race, in every policy and program measured.
  • We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
Policies and processes
  • We use a vetting process to identify vendors and partners that share our commitment to race equity.
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.