Medical Research
Mithil Prasad Foundation
Save kids from pediatric cancer DIPG
Mission
Supporting DIPG Research and Patients
Ruling Year
2018
President and Cofounder
Sarva Rao
Main Address
3085 Lismore Ct
San Jose, CA 95135 USA
Keywords
pediatric brain cancer
EIN
82-2331553
6928398042
Cancer Research (H30)
Cancer (G30)
Family Services (P40)
IRS Filing Requirement
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Social Media
Programs + Results
What we aim to solve
Mission: Supporting DIPG Research and Patients Our Journey: We lost our son to a deadliest pediatric brain cancer called DIPG on Nov 27th 2016. During his sickness, Mithil showed tremendous strength, was always positive, and cared for others. Mithil also became very empathetic towards kids like him going through a tough time . He would say “I will never look at another kid on wheelchair the same way again” or “We should donate more to children’s hospital”. After Mithil passed away, we donated his brain and spine for medical research, with the hope that it will help researchers learn more about DIPG in any way possible. Less than 0.1% of the federal funding for all cancer is allocated to DIPG. Despite this, a handful of dedicated researchers are trying to find a better outcome for DIPG and part of Mithil Prasad Foundation’s mission is to help these amazing researchers by raising funds for their projects. We encourage you to be part of this community and donate towards finding a cure!
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
SOURCE: Self-reported by organization
Where we work
Our Results
How does this organization measure their results? It's a hard question but an important one. These quantitative program results are self-reported by the organization, illustrating their committment to transparency, learning, and interest in helping the whole sector learn and grow.
SOURCE: Self-reported by organization
Number of death caused by cancer
Population(s) served
General/Unspecified,
Children and youth (0-19 years)
Related program
Second annual fundraising gala for DIPG (pediatric cancer) research
Type of Metric
Outcome - describing the effects on people or issues
Direction of Success
Holding steady
Context notes
400 deaths due to DIPG alone DIPG is a deadly pediatric cancer with no survivors from last 60+years
Number of families served in cancer treatment
Population(s) served
General/Unspecified
Related program
Run for DIPG partnering with Sevathon
Type of Metric
Outcome - describing the effects on people or issues
Direction of Success
Decreasing
Charting Impact
Five powerful questions that require reflection about what really matters - results.
SOURCE: Self-reported by organization
What is the organization aiming to accomplish?
What are the organization's key strategies for making this happen?
What are the organization's capabilities for doing this?
How will they know if they are making progress?
What have they accomplished so far and what's next?
Our mission is to Support DIPG Research and Patients. We would like to see a kid walking away cured from DIPG during OUR life time and make a difference to these statistics: DIPG Statistics #1 Deadliest Pediatric Brain Tumor 300 Children affected every year in US 10,000 Children affected every year worldwide 700,000 Potential years of life lost per year 7 Years, median age of children diagnosed 9 Months, median survival time 60 Years, with the same prognosis, no survivors 0.07 Percent of federal cancer fund for DIPG
1. Reaching our and maintaining current donors 2. Conducting local events 3. Conducting annual gala 4. Word of mouth - spreading awareness 5. Online presence on web, Facebook and Instagram 6. Advertisement
1. Mithil's immediate family cofounding the organization 2. Solid board members 3. Transparent in every activities (all of them online) 4. Encouraging current donors to spread awareness and bring additional donors
Foundation is just 2 years old and we do not want to spend any monitoring software. As of now we want to better last years total revenue and help another clinical study provided we have more than $100K in revenue. As such we are monitoring manually to check the progress and discuss during our bi-monthly board meetings.
During last 2 years, we have donated: 1. $4000.00 to UCSF for DIPG child support 2. $10,000 to PBTF (Pediatric brain tumor foundation) for child support -2017 3. $80,000 to UCSF for clinical study (clinical trial - H3.3K27M specific peptide vaccine combined with poly-ICLC for the treatment of newly diagnosed HLA-A2+ H3.3K27M positive diffuse intrinsic pontine glioma (DIPG) , more details at http://www.pnoc.us/clinical-trials/h33k27m-specific-peptide-vaccine-combined-poly-iclc-treatment-newly-diagnosed-hla-a2 4. $15,000 to PBTF for child support (Pediatric brain tumor foundation) for child support -2018 Next: We are monitoring and in touch with DIPG research communities Closely watching potential clinical studies that would get steps closure to cure Team of researches to volunteerlily assist us
External Reviews
Photos
Financials
Mithil Prasad Foundation
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Operations
The people, governance practices, and partners that make the organization tick.
FREE: Gain immediate access to the following:
- Address, phone, website and contact information
- Forms 990 for 2018 and 2017
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FREE: Gain immediate access to the following:
- Address, phone, website and contact information
- Forms 990 for 2018 and 2017
- A Pro report is also available for this organization.
See what's included
Board of Directors
as of 11/26/2019
Board Chair
Sarva Channarajurs
Mithil Prasad Foundation
Term: 2017 - 2025
Nicholas Vitanza
pediatric neuro-oncologist at Seattle Children’s Hospital
Noah Bopp
opp Noah Bopp is SEGL’s Founder and Head of School
Elias Herrera
plumbing contractor at the state of California
James Goodwin
SVP, F5 Networks San Jose R&D office, and site sponsor for the F5 Tel Aviv R&D office
Rachna Prasad
Senior at UCLA -Cofounder
Prasad Rao
https://www.linkedin.com/in/raoprasad/
SOURCE: Self-reported by organization
Board Leadership Practices
GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section, which enables organizations and donors to transparently share information about essential board leadership practices.
SOURCE: Self-reported by organizationBOARD ORIENTATION & EDUCATION
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?
Not Applicable
CEO OVERSIGHT
Has the board conducted a formal, written assessment of the chief executive within the past year?
Not Applicable
ETHICS & TRANSPARENCY
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year?
Not Applicable
BOARD COMPOSITION
Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?
Not Applicable
BOARD PERFORMANCE
Has the board conducted a formal, written self-assessment of its performance within the past three years?
Not Applicable
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