Mission
Supporting DIPG Research and Patients
Ruling year
2018
President and Cofounder
Sarva Channarajurs
Main address
3085 Lismore Ct
San Jose, CA 95135 USA
EIN
82-2331553
NTEE code
Cancer Research (H30)
Cancer (G30)
Family Services (P40)
IRS filing requirement
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Communication
Programs and results
What we aim to solve
Mission: Supporting DIPG Research and Patients Our Journey: We lost our son to a deadliest pediatric brain cancer called DIPG on Nov 27th 2016. During his sickness, Mithil showed tremendous strength, was always positive, and cared for others. Mithil also became very empathetic towards kids like him going through a tough time . He would say “I will never look at another kid on wheelchair the same way again” or “We should donate more to children’s hospital”. After Mithil passed away, we donated his brain and spine for medical research, with the hope that it will help researchers learn more about DIPG in any way possible. Less than 0.1% of the federal funding for all cancer is allocated to DIPG. Despite this, a handful of dedicated researchers are trying to find a better outcome for DIPG and part of Mithil Prasad Foundation’s mission is to help these amazing researchers by raising funds for their projects. We encourage you to be part of this community and donate towards finding a cure!
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
Run for DIPG partnering with Sevathon
Run for DIPG partnering with Sevathon
Second annual fundraising gala for DIPG (pediatric cancer) research
Mithil Prasad Foundation is founded with a mission to support DIPG (Diffuse Intrinsic Pontine Glioma) research and patients. Foundation is having their 2nd Annual Gala to raise funds for DIPG research.
We lost our son to this deadliest cancer, which has no survivors from last 60+ years!
DIPG has dismal stats:
· DIPG is the #1, deadliest Pediatric Brain Tumor.
· 7 years, median age of children diagnosed.
· Median survival time is about 9 Months.
· Same prognosis since 60+ years, no survivors.
· Federal cancer fund for DIPG is merely 0.07%.
Which means we are effectively losing on an average 70 years of productive life per kid.
We need your support to DIPG research community! We need to reach out to philanthropists to help our foundation in tern help kids live their full life.
We had a successful fundraising 2018, raised over 100K USD and donated to Research and patient support.
Our foundation impacted:
1. Donated $80,000 to support PNOC007, an innovative new clinical trial using a vaccine against DIPG.
2. Donated $14,000 to 30 families, across 8 hospitals in collaboration with the Butterfly Fund and 4 families through UCSF Memorial Fund.
This year, our goal is to increase research funds by 25% and patient support by 50% which will enable us to fund two clinical trials and 45 new DIPG families. Your philanthropic support will help us reach this goal.
Where we work
External reviews
Photos
Videos
Our results
How does this organization measure their results? It's a hard question but an important one.
Number of death caused by cancer
This metric is no longer tracked.Totals By Year
Population(s) Served
Adults, Children and youth
Related Program
Second annual fundraising gala for DIPG (pediatric cancer) research
Type of Metric
Outcome - describing the effects on people or issues
Direction of Success
Holding steady
Context Notes
400 deaths due to DIPG alone DIPG is a deadly pediatric cancer with no survivors from last 60+years
Number of families served in cancer treatment
This metric is no longer tracked.Totals By Year
Population(s) Served
Children and youth, Health
Related Program
Run for DIPG partnering with Sevathon
Type of Metric
Outcome - describing the effects on people or issues
Direction of Success
Increasing
Goals & Strategy
Learn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
Our mission is to Support DIPG Research and Patients.
We would like to see a kid walking away cured from DIPG during OUR life time and make a difference to these statistics:
DIPG Statistics
#1 Deadliest Pediatric Brain Tumor
300 Children affected every year in US
10,000 Children affected every year worldwide
700,000 Potential years of life lost per year
7 Years, median age of children diagnosed
9 Months, median survival time
60 Years, with the same prognosis, no survivors
0.07 Percent of federal cancer fund for DIPG
What are the organization's key strategies for making this happen?
1. Reaching our and maintaining current donors
2. Conducting local events
3. Conducting annual gala
4. Word of mouth - spreading awareness
5. Online presence on web, Facebook and Instagram
6. Advertisement
What are the organization's capabilities for doing this?
1. Mithil's immediate family cofounding the organization
2. Solid board members
3. Transparent in every activities (all of them online)
4. Encouraging current donors to spread awareness and bring additional donors
What have they accomplished so far and what's next?
During last 2 years, we have donated:
1. $4000.00 to UCSF for DIPG child support
2. $10,000 to PBTF (Pediatric brain tumor foundation) for child support -2017
3. $80,000 to UCSF for clinical study (clinical trial - H3.3K27M specific peptide vaccine combined with poly-ICLC for the treatment of newly diagnosed HLA-A2+ H3.3K27M positive diffuse intrinsic pontine glioma (DIPG) , more details at http://www.pnoc.us/clinical-trials/h33k27m-specific-peptide-vaccine-combined-poly-iclc-treatment-newly-diagnosed-hla-a2
4. $15,000 to PBTF for child support (Pediatric brain tumor foundation) for child support -2018
Next:
We are monitoring and in touch with DIPG research communities
Closely watching potential clinical studies that would get steps closure to cure
Team of researches to volunteerlily assist us
Financials
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Operations
The people, governance practices, and partners that make the organization tick.
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Connect with nonprofit leaders
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Mithil Prasad Foundation
Board of directorsas of 10/3/2021
Sarva Channarajurs
Mithil Prasad Foundation
Term: 2017 - 2025
Nicholas Vitanza
pediatric neuro-oncologist at Seattle Children’s Hospital
Noah Bopp
opp Noah Bopp is SEGL’s Founder and Head of School
Elias Herrera
plumbing contractor at the state of California
James Goodwin
SVP, F5 Networks San Jose R&D office, and site sponsor for the F5 Tel Aviv R&D office
Rachna Prasad
Senior at UCLA -Cofounder
Prasad Rao
https://www.linkedin.com/in/raoprasad/
Organizational demographics
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Leadership
The organization's leader identifies as:
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