PLATINUM2023

Mithil Prasad Foundation

#EndDIPG

Mission

Supporting DIPG Research and Patients

Ruling year info

2018

President and Cofounder

Sarva Channarajurs

Main address

3085 Lismore Ct

San Jose, CA 95135 USA

Show more contact info

EIN

82-2331553

NTEE code info

Cancer Research (H30)

Cancer (G30)

Family Services (P40)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Blog

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Mission: Supporting DIPG Research and Patients Our Journey: We lost our son to a deadliest pediatric brain cancer called DIPG on Nov 27th 2016. During his sickness, Mithil showed tremendous strength, was always positive, and cared for others. Mithil also became very empathetic towards kids like him going through a tough time . He would say “I will never look at another kid on wheelchair the same way again” or “We should donate more to children’s hospital”. After Mithil passed away, we donated his brain and spine for medical research, with the hope that it will help researchers learn more about DIPG in any way possible. Less than 0.1% of the federal funding for all cancer is allocated to DIPG. Despite this, a handful of dedicated researchers are trying to find a better outcome for DIPG and part of Mithil Prasad Foundation’s mission is to help these amazing researchers by raising funds for their projects. We encourage you to be part of this community and donate towards finding a cure!

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Annual Fundraising Gala for DIPG

Annual fundraising gala for DIPG. Fundraising to support of mission of supporting DIPG Research and Patients.

Population(s) Served
Children and youth
Young adults
Terminally ill people

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of families served in cancer treatment

This metric is no longer tracked.
Totals By Year
Population(s) Served

Children and youth, Health

Related Program

Annual Fundraising Gala for DIPG

Type of Metric

Other - describing something else

Direction of Success

Increasing

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Our mission is to Support DIPG Research and Patients.

We would like to see a kid walking away cured from DIPG during OUR life time and make a difference to these statistics:

DIPG Statistics
#1 Deadliest Pediatric Brain Tumor
300 Children affected every year in US
10,000 Children affected every year worldwide
700,000 Potential years of life lost per year
7 Years, median age of children diagnosed
9 Months, median survival time
60 Years, with the same prognosis, no survivors
0.07 Percent of federal cancer fund for DIPG

1. Reaching our and maintaining current donors
2. Conducting local events
3. Conducting annual gala
4. Word of mouth - spreading awareness
5. Online presence on web, Facebook and Instagram
6. Advertisement

1. Mithil's immediate family cofounding the organization
2. Solid board members
3. Transparent in every activities (all of them online)
4. Encouraging current donors to spread awareness and bring additional donors

During last 2 years, we have donated:
1. $4000.00 to UCSF for DIPG child support
2. $10,000 to PBTF (Pediatric brain tumor foundation) for child support -2017
3. $80,000 to UCSF for clinical study (clinical trial - H3.3K27M specific peptide vaccine combined with poly-ICLC for the treatment of newly diagnosed HLA-A2+ H3.3K27M positive diffuse intrinsic pontine glioma (DIPG) , more details at http://www.pnoc.us/clinical-trials/h33k27m-specific-peptide-vaccine-combined-poly-iclc-treatment-newly-diagnosed-hla-a2
4. $15,000 to PBTF for child support (Pediatric brain tumor foundation) for child support -2018

Next:
We are monitoring and in touch with DIPG research communities
Closely watching potential clinical studies that would get steps closure to cure
Team of researches to volunteerlily assist us

Financials

Mithil Prasad Foundation
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
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  • Compare nonprofit financials to similar organizations

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Mithil Prasad Foundation

Board of directors
as of 10/04/2023
SOURCE: Self-reported by organization
Board chair

Sarva Channarajurs

Mithil Prasad Foundation

Term: 2017 -

Nicholas Vitanza

Pediatric neuro-oncologist at Seattle Children’s Hospital

Noah Bopp

Noah Bopp is SEGL’s Founder and Head of School

James Goodwin

https://www.linkedin.com/in/jamesgoodwiniii/

Rachna Prasad

Co-Founder and Vice President

Prasad Rao

Co-Founder, Secretary & Treasurer

Anand Kumar Neralagi Shivajappa

https://www.linkedin.com/in/neralagi/

Organizational demographics

SOURCE: Self-reported; last updated 10/3/2023

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
Indian American
Gender identity
Female

Race & ethnicity

No data

Gender identity

No data

 

No data

Sexual orientation

No data

Disability

No data