Mithil Prasad Foundation
#EndDIPG
Mission
Supporting DIPG Research and Patients
Ruling year
2018
President and Cofounder
Sarva Channarajurs
Main address
3085 Lismore Ct
San Jose, CA 95135 USA
EIN
82-2331553
NTEE code
Cancer Research (H30)
Cancer (G30)
Family Services (P40)
IRS filing requirement
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Communication
Programs and results
What we aim to solve
Mission: Supporting DIPG Research and Patients Our Journey: We lost our son to a deadliest pediatric brain cancer called DIPG on Nov 27th 2016. During his sickness, Mithil showed tremendous strength, was always positive, and cared for others. Mithil also became very empathetic towards kids like him going through a tough time . He would say “I will never look at another kid on wheelchair the same way again” or “We should donate more to children’s hospital”. After Mithil passed away, we donated his brain and spine for medical research, with the hope that it will help researchers learn more about DIPG in any way possible. Less than 0.1% of the federal funding for all cancer is allocated to DIPG. Despite this, a handful of dedicated researchers are trying to find a better outcome for DIPG and part of Mithil Prasad Foundation’s mission is to help these amazing researchers by raising funds for their projects. We encourage you to be part of this community and donate towards finding a cure!
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
Annual Fundraising Gala for DIPG
Annual fundraising gala for DIPG. Fundraising to support of mission of supporting DIPG Research and Patients.
Where we work
External reviews
Photos
Videos
Our results
How does this organization measure their results? It's a hard question but an important one.
Number of families served in cancer treatment
This metric is no longer tracked.Totals By Year
Population(s) Served
Children and youth, Health
Related Program
Annual Fundraising Gala for DIPG
Type of Metric
Other - describing something else
Direction of Success
Increasing
Goals & Strategy
Learn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
Our mission is to Support DIPG Research and Patients.
We would like to see a kid walking away cured from DIPG during OUR life time and make a difference to these statistics:
DIPG Statistics
#1 Deadliest Pediatric Brain Tumor
300 Children affected every year in US
10,000 Children affected every year worldwide
700,000 Potential years of life lost per year
7 Years, median age of children diagnosed
9 Months, median survival time
60 Years, with the same prognosis, no survivors
0.07 Percent of federal cancer fund for DIPG
What are the organization's key strategies for making this happen?
1. Reaching our and maintaining current donors
2. Conducting local events
3. Conducting annual gala
4. Word of mouth - spreading awareness
5. Online presence on web, Facebook and Instagram
6. Advertisement
What are the organization's capabilities for doing this?
1. Mithil's immediate family cofounding the organization
2. Solid board members
3. Transparent in every activities (all of them online)
4. Encouraging current donors to spread awareness and bring additional donors
What have they accomplished so far and what's next?
During last 2 years, we have donated:
1. $4000.00 to UCSF for DIPG child support
2. $10,000 to PBTF (Pediatric brain tumor foundation) for child support -2017
3. $80,000 to UCSF for clinical study (clinical trial - H3.3K27M specific peptide vaccine combined with poly-ICLC for the treatment of newly diagnosed HLA-A2+ H3.3K27M positive diffuse intrinsic pontine glioma (DIPG) , more details at http://www.pnoc.us/clinical-trials/h33k27m-specific-peptide-vaccine-combined-poly-iclc-treatment-newly-diagnosed-hla-a2
4. $15,000 to PBTF for child support (Pediatric brain tumor foundation) for child support -2018
Next:
We are monitoring and in touch with DIPG research communities
Closely watching potential clinical studies that would get steps closure to cure
Team of researches to volunteerlily assist us
Financials
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Operations
The people, governance practices, and partners that make the organization tick.
Connect with nonprofit leaders
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Connect with nonprofit leaders
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- Analyze a variety of pre-calculated financial metrics
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Mithil Prasad Foundation
Board of directorsas of 10/04/2023
Sarva Channarajurs
Mithil Prasad Foundation
Term: 2017 -
Nicholas Vitanza
Pediatric neuro-oncologist at Seattle Children’s Hospital
Noah Bopp
Noah Bopp is SEGL’s Founder and Head of School
James Goodwin
https://www.linkedin.com/in/jamesgoodwiniii/
Rachna Prasad
Co-Founder and Vice President
Prasad Rao
Co-Founder, Secretary & Treasurer
Anand Kumar Neralagi Shivajappa
https://www.linkedin.com/in/neralagi/
Organizational demographics
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Leadership
The organization's leader identifies as:
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