Mithil Prasad Foundation

Save kids from pediatric cancer DIPG

Mission

Supporting DIPG Research and Patients

Ruling year info

2018

President and Cofounder

Sarva Channarajurs

Main address

3085 Lismore Ct

San Jose, CA 95135 USA

Show more contact info

EIN

82-2331553

NTEE code info

Cancer Research (H30)

Cancer (G30)

Family Services (P40)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Blog

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Mission: Supporting DIPG Research and Patients Our Journey: We lost our son to a deadliest pediatric brain cancer called DIPG on Nov 27th 2016. During his sickness, Mithil showed tremendous strength, was always positive, and cared for others. Mithil also became very empathetic towards kids like him going through a tough time . He would say “I will never look at another kid on wheelchair the same way again” or “We should donate more to children’s hospital”. After Mithil passed away, we donated his brain and spine for medical research, with the hope that it will help researchers learn more about DIPG in any way possible. Less than 0.1% of the federal funding for all cancer is allocated to DIPG. Despite this, a handful of dedicated researchers are trying to find a better outcome for DIPG and part of Mithil Prasad Foundation’s mission is to help these amazing researchers by raising funds for their projects. We encourage you to be part of this community and donate towards finding a cure!

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Run for DIPG partnering with Sevathon

Run for DIPG partnering with Sevathon

Population(s) Served
Adults
People with diseases and illnesses

Mithil Prasad Foundation is founded with a mission to support DIPG (Diffuse Intrinsic Pontine Glioma) research and patients. Foundation is having their 2nd Annual Gala to raise funds for DIPG research.

We lost our son to this deadliest cancer, which has no survivors from last 60+ years!

DIPG has dismal stats:
· DIPG is the #1, deadliest Pediatric Brain Tumor.
· 7 years, median age of children diagnosed.
· Median survival time is about 9 Months.
· Same prognosis since 60+ years, no survivors.
· Federal cancer fund for DIPG is merely 0.07%.

Which means we are effectively losing on an average 70 years of productive life per kid.

We need your support to DIPG research community! We need to reach out to philanthropists to help our foundation in tern help kids live their full life.

We had a successful fundraising 2018, raised over 100K USD and donated to Research and patient support.
Our foundation impacted:
1. Donated $80,000 to support PNOC007, an innovative new clinical trial using a vaccine against DIPG.
2. Donated $14,000 to 30 families, across 8 hospitals in collaboration with the Butterfly Fund and 4 families through UCSF Memorial Fund.

This year, our goal is to increase research funds by 25% and patient support by 50% which will enable us to fund two clinical trials and 45 new DIPG families. Your philanthropic support will help us reach this goal.

Population(s) Served
Adults

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of death caused by cancer

This metric is no longer tracked.
Totals By Year
Population(s) Served

Adults, Children and youth

Related Program

Second annual fundraising gala for DIPG (pediatric cancer) research

Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Holding steady

Context Notes

400 deaths due to DIPG alone DIPG is a deadly pediatric cancer with no survivors from last 60+years

Number of families served in cancer treatment

This metric is no longer tracked.
Totals By Year
Population(s) Served

Children and youth, Health

Related Program

Run for DIPG partnering with Sevathon

Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Increasing

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Our mission is to Support DIPG Research and Patients.

We would like to see a kid walking away cured from DIPG during OUR life time and make a difference to these statistics:

DIPG Statistics
#1 Deadliest Pediatric Brain Tumor
300 Children affected every year in US
10,000 Children affected every year worldwide
700,000 Potential years of life lost per year
7 Years, median age of children diagnosed
9 Months, median survival time
60 Years, with the same prognosis, no survivors
0.07 Percent of federal cancer fund for DIPG

1. Reaching our and maintaining current donors
2. Conducting local events
3. Conducting annual gala
4. Word of mouth - spreading awareness
5. Online presence on web, Facebook and Instagram
6. Advertisement

1. Mithil's immediate family cofounding the organization
2. Solid board members
3. Transparent in every activities (all of them online)
4. Encouraging current donors to spread awareness and bring additional donors

During last 2 years, we have donated:
1. $4000.00 to UCSF for DIPG child support
2. $10,000 to PBTF (Pediatric brain tumor foundation) for child support -2017
3. $80,000 to UCSF for clinical study (clinical trial - H3.3K27M specific peptide vaccine combined with poly-ICLC for the treatment of newly diagnosed HLA-A2+ H3.3K27M positive diffuse intrinsic pontine glioma (DIPG) , more details at http://www.pnoc.us/clinical-trials/h33k27m-specific-peptide-vaccine-combined-poly-iclc-treatment-newly-diagnosed-hla-a2
4. $15,000 to PBTF for child support (Pediatric brain tumor foundation) for child support -2018

Next:
We are monitoring and in touch with DIPG research communities
Closely watching potential clinical studies that would get steps closure to cure
Team of researches to volunteerlily assist us

Financials

Mithil Prasad Foundation
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Operations

The people, governance practices, and partners that make the organization tick.

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Mithil Prasad Foundation

Board of directors
as of 10/3/2021
SOURCE: Self-reported by organization
Board chair

Sarva Channarajurs

Mithil Prasad Foundation

Term: 2017 - 2025

Nicholas Vitanza

pediatric neuro-oncologist at Seattle Children’s Hospital

Noah Bopp

opp Noah Bopp is SEGL’s Founder and Head of School

Elias Herrera

plumbing contractor at the state of California

James Goodwin

SVP, F5 Networks San Jose R&D office, and site sponsor for the F5 Tel Aviv R&D office

Rachna Prasad

Senior at UCLA -Cofounder

Prasad Rao

https://www.linkedin.com/in/raoprasad/

Organizational demographics

SOURCE: Self-reported; last updated 10/03/2021

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
Asian American/Pacific Islanders/Asian
Gender identity
Female, Not transgender (cisgender)
Sexual orientation
Decline to state
Disability status
Person without a disability

Race & ethnicity

No data

Gender identity

No data

 

No data

Sexual orientation

No data

Disability

No data