Medical Research

Mithil Prasad Foundation

Save kids from pediatric cancer DIPG

Mission

Supporting DIPG Research and Patients

Ruling Year

2018

President and Cofounder

Sarva Rao

Main Address

3085 Lismore Ct

San Jose, CA 95135 USA

Keywords

pediatric brain cancer

EIN

82-2331553

 Number

6928398042

Cause Area (NTEE Code)

Cancer Research (H30)

Cancer (G30)

Family Services (P40)

IRS Filing Requirement

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Social Media

Blog

Programs + Results

What we aim to solve

Mission: Supporting DIPG Research and Patients Our Journey: We lost our son to a deadliest pediatric brain cancer called DIPG on Nov 27th 2016. During his sickness, Mithil showed tremendous strength, was always positive, and cared for others. Mithil also became very empathetic towards kids like him going through a tough time . He would say “I will never look at another kid on wheelchair the same way again” or “We should donate more to children’s hospital”. After Mithil passed away, we donated his brain and spine for medical research, with the hope that it will help researchers learn more about DIPG in any way possible. Less than 0.1% of the federal funding for all cancer is allocated to DIPG. Despite this, a handful of dedicated researchers are trying to find a better outcome for DIPG and part of Mithil Prasad Foundation’s mission is to help these amazing researchers by raising funds for their projects. We encourage you to be part of this community and donate towards finding a cure!

Our programs

What are the organization's current programs, how do they measure success, and who do the programs serve?

SOURCE: Self-reported by organization

Run for DIPG partnering with Sevathon

Second annual fundraising gala for DIPG (pediatric cancer) research

Where we work

Our Results

How does this organization measure their results? It's a hard question but an important one. These quantitative program results are self-reported by the organization, illustrating their committment to transparency, learning, and interest in helping the whole sector learn and grow.

SOURCE: Self-reported by organization

Number of death caused by cancer

TOTALS BY YEAR
Population(s) served

General/Unspecified,

Children and youth (0-19 years)

Related program

Second annual fundraising gala for DIPG (pediatric cancer) research

Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Holding steady

Context notes

400 deaths due to DIPG alone DIPG is a deadly pediatric cancer with no survivors from last 60+years

Number of families served in cancer treatment

TOTALS BY YEAR
Population(s) served

General/Unspecified

Related program

Run for DIPG partnering with Sevathon

Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Decreasing

Charting Impact

Five powerful questions that require reflection about what really matters - results.

SOURCE: Self-reported by organization

What is the organization aiming to accomplish?

What are the organization's key strategies for making this happen?

What are the organization's capabilities for doing this?

How will they know if they are making progress?

What have they accomplished so far and what's next?

Our mission is to Support DIPG Research and Patients. We would like to see a kid walking away cured from DIPG during OUR life time and make a difference to these statistics: DIPG Statistics #1 Deadliest Pediatric Brain Tumor 300 Children affected every year in US 10,000 Children affected every year worldwide 700,000 Potential years of life lost per year 7 Years, median age of children diagnosed 9 Months, median survival time 60 Years, with the same prognosis, no survivors 0.07 Percent of federal cancer fund for DIPG

1. Reaching our and maintaining current donors 2. Conducting local events 3. Conducting annual gala 4. Word of mouth - spreading awareness 5. Online presence on web, Facebook and Instagram 6. Advertisement

1. Mithil's immediate family cofounding the organization 2. Solid board members 3. Transparent in every activities (all of them online) 4. Encouraging current donors to spread awareness and bring additional donors

Foundation is just 2 years old and we do not want to spend any monitoring software. As of now we want to better last years total revenue and help another clinical study provided we have more than $100K in revenue. As such we are monitoring manually to check the progress and discuss during our bi-monthly board meetings.

During last 2 years, we have donated: 1. $4000.00 to UCSF for DIPG child support 2. $10,000 to PBTF (Pediatric brain tumor foundation) for child support -2017 3. $80,000 to UCSF for clinical study (clinical trial - H3.3K27M specific peptide vaccine combined with poly-ICLC for the treatment of newly diagnosed HLA-A2+ H3.3K27M positive diffuse intrinsic pontine glioma (DIPG) , more details at http://www.pnoc.us/clinical-trials/h33k27m-specific-peptide-vaccine-combined-poly-iclc-treatment-newly-diagnosed-hla-a2 4. $15,000 to PBTF for child support (Pediatric brain tumor foundation) for child support -2018 Next: We are monitoring and in touch with DIPG research communities Closely watching potential clinical studies that would get steps closure to cure Team of researches to volunteerlily assist us

External Reviews

Photos

Financials

Mithil Prasad Foundation

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Operations

The people, governance practices, and partners that make the organization tick.

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FREE: Gain immediate access to the following:

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Board Leadership Practices

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section, which enables organizations and donors to transparently share information about essential board leadership practices.

SOURCE: Self-reported by organization

BOARD ORIENTATION & EDUCATION

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?

Not Applicable

CEO OVERSIGHT

Has the board conducted a formal, written assessment of the chief executive within the past year?

Not Applicable

ETHICS & TRANSPARENCY

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year?

Not Applicable

BOARD COMPOSITION

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?

Not Applicable

BOARD PERFORMANCE

Has the board conducted a formal, written self-assessment of its performance within the past three years?

Not Applicable