Mission
No Baby Blisters is working to finally cure the excruciating pain and death to babies with genetic blistering skin diseases, especially to save EB (Epidermolysis bullosa) babies from blisters, skin loss, extreme pain, and death. Our Mission is to save the sickest, most medically neglected children, grandparents and pets suffering in severe pain with devastating terminal diseases, sadly forgotten by other charities. Their lives depend on your loving monthly donations. Any amount helps. All donations are tax-deductible. Please donate now to save the sickest.
Ruling year
2017
President
Dr. Aaron Tabor MD
Main address
PO Box 717
Walkertown, NC 27051 USA
EIN
82-2743807
NTEE code
Birth Defects, Genetic Diseases Research (H20)
IRS filing requirement
This organization is required to file an IRS Form 990 or 990-EZ.
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Communication
Programs and results
What we aim to solve
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
EB Fast Cure Plan
To save EB (Epidermolysis bullosa) babies from blisters, skin loss, extreme pain, and death. No Baby Blisters is working to finally cure the excruciating pain and death to babies with genetic blistering skin diseases, especially to save EB (Epidermolysis bullosa) babies from blisters, skin loss, extreme pain, and death. Our Mission is to save the sickest, most medically neglected children, grandparents and pets suffering in severe pain with devastating terminal diseases, sadly forgotten by other charities. Their lives depend on your loving monthly donations. Any amount helps. All donations are tax-deductible. Please donate now to save the sickest.
Where we work
External reviews
Videos
Our results
How does this organization measure their results? It's a hard question but an important one.
Number of children with a source of ongoing care
This metric is no longer tracked.Totals By Year
Population(s) Served
People with diseases and illnesses, Children and youth, People of African descent, People of Asian descent, People of Middle Eastern descent
Related Program
EB Fast Cure Plan
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
We started raising funds for our first child with EB Blistering Skin Disease in 2019 and then quickly expanded to help hundreds. In 2022, we have helped over 1,500 children.
Number of children with disabilities receiving early intervention services
This metric is no longer tracked.Totals By Year
Population(s) Served
Children and youth, People of African descent, People of Asian descent, People of Middle Eastern descent, People with diseases and illnesses
Related Program
EB Fast Cure Plan
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
We started raising funds for our first child with EB Blistering Skin Disease in 2019 and then quickly expanded to help hundreds. In 2022, we have helped over 1,500 children.
Goals & Strategy
Reports and documents
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Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
Our EB Blistering Skin Disease babies should not suffer excruciating pain and early deaths. Their families should not be destroyed and bankrupted trying to get them help. They should grow, live, love and play like other children. Every day is another day these babies must suffer and their parents must watch. We are asking for your tax-deductible donations to finalize our Fast Cure Plan.
What are the organization's key strategies for making this happen?
Find fast cures for EB, ways to provide life-changing and life-sustaining medical help that will stop their pain and suffering and allow them to grow up as normal children
• End the despair and suffering of EB parents who can do little besides watch their children suffer and die … sometimes before their very first birthday
• End the injustice in medical funding that often overlook so-called “orphan diseases”
• Help us create a cure that is safe, effective, and affordable so that no child with EB needs to suffer
• Fund the right researchers—those who own the intellectual property rights to create affordable cures that we can distribute (without going through big companies)
• Commit to our goal of finding free or affordable treatments so that no family is bankrupted by EB treatments (that do not even cure the disease)
• Support all of us fighting the war against EB—smart scientists, dedicated researchers, avid fundraisers, parents, physicians, nurses, caregivers. This is a battle we can win, if we fight together!
What are the organization's capabilities for doing this?
We have expert physicians and physician researchers experienced in dermatology and rare diseases.
What have they accomplished so far and what's next?
We have created a skin calming non-genetic serum. Our next step is to create more powerful pharmaceutical solutions.
Financials
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Operations
The people, governance practices, and partners that make the organization tick.
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Connect with nonprofit leaders
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NO BABY BLISTERS
Board of directorsas of 02/23/2023
Dr. Aaron Tabor
No Baby Bisters
Term: 2017 -
Bill Moritz
Joy to The World Foundation
Organizational demographics
Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.
Leadership
The organization's leader identifies as:
Race & ethnicity
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