NO BABY BLISTERS

Saving the Sickest!

Walkertown, NC   |  https://www.nobabyblisters.org

Mission

No Baby Blisters is working to finally cure the excruciating pain and death to babies with genetic blistering skin diseases, especially to save EB (Epidermolysis bullosa) babies from blisters, skin loss, extreme pain, and death. Our Mission is to save the sickest, most medically neglected children, grandparents and pets suffering in severe pain with devastating terminal diseases, sadly forgotten by other charities. Their lives depend on your loving monthly donations. Any amount helps. All donations are tax-deductible. Please donate now to save the sickest.

Ruling year info

2017

President

Dr. Aaron Tabor MD

Main address

PO Box 717

Walkertown, NC 27051 USA

Show more contact info

EIN

82-2743807

NTEE code info

Birth Defects, Genetic Diseases Research (H20)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Communication

Blog

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

EB Fast Cure Plan

To save EB (Epidermolysis bullosa) babies from blisters, skin loss, extreme pain, and death. No Baby Blisters is working to finally cure the excruciating pain and death to babies with genetic blistering skin diseases, especially to save EB (Epidermolysis bullosa) babies from blisters, skin loss, extreme pain, and death. Our Mission is to save the sickest, most medically neglected children, grandparents and pets suffering in severe pain with devastating terminal diseases, sadly forgotten by other charities. Their lives depend on your loving monthly donations. Any amount helps. All donations are tax-deductible. Please donate now to save the sickest.

Population(s) Served
Infants and toddlers
Children
Adolescents
Seniors
People with diseases and illnesses

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of children with a source of ongoing care

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with diseases and illnesses, Children and youth, People of African descent, People of Asian descent, People of Middle Eastern descent

Related Program

EB Fast Cure Plan

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

We started raising funds for our first child with EB Blistering Skin Disease in 2019 and then quickly expanded to help hundreds. In 2021, we have helped over 1,000 children.

Number of children with disabilities receiving early intervention services

This metric is no longer tracked.
Totals By Year
Population(s) Served

Children and youth, People of African descent, People of Asian descent, People of Middle Eastern descent, People with diseases and illnesses

Related Program

EB Fast Cure Plan

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Our EB Blistering Skin Disease babies should not suffer excruciating pain and early deaths. Their families should not be destroyed and bankrupted trying to get them help. They should grow, live, love and play like other children. Every day is another day these babies must suffer and their parents must watch. We are asking for your tax-deductible donations to finalize our Fast Cure Plan.

Find fast cures for EB, ways to provide life-changing and life-sustaining medical help that will stop their pain and suffering and allow them to grow up as normal children
• End the despair and suffering of EB parents who can do little besides watch their children suffer and die … sometimes before their very first birthday
• End the injustice in medical funding that often overlook so-called “orphan diseases”
• Help us create a cure that is safe, effective, and affordable so that no child with EB needs to suffer
• Fund the right researchers—those who own the intellectual property rights to create affordable cures that we can distribute (without going through big companies)
• Commit to our goal of finding free or affordable treatments so that no family is bankrupted by EB treatments (that do not even cure the disease)
• Support all of us fighting the war against EB—smart scientists, dedicated researchers, avid fundraisers, parents, physicians, nurses, caregivers. This is a battle we can win, if we fight together!

We have expert physicians and physician researchers experienced in dermatology and rare diseases.

We have created a skin calming non-genetic serum. Our next step is to create more powerful pharmaceutical solutions.

Financials

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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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NO BABY BLISTERS

Board of directors
as of 5/23/2022
SOURCE: Self-reported by organization
Board chair

Dr. Aaron Tabor

No Baby Bisters

Term: 2017 -

Bill Moritz

Joy to The World Foundation

Organizational demographics

SOURCE: Self-reported; last updated 12/25/2021

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Male, Not transgender (cisgender)
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

No data

Gender identity

No data

 

No data

Sexual orientation

No data

Disability

No data