More Than Walking Incorporated

Sharing The Path To Independence After Spinal Cord Injury

aka More Than Walking   |   Stratford, CT   |  www.morethanwalking.com

Mission

Our mission is to share the path to independent living after spinal cord injury worldwide by recruiting peer mentors and therapists to film stories and technique demonstrations on the path to independence. We share these videos through an online course to newly injured patients, whom we then connect to peers in their own communities and empower to share their own experiences with the world.

Ruling year info

2018

CEO & President

Jonathan Sigworth

Main address

155 Peace Acre Lane

Stratford, CT 06614 USA

Show more contact info

Formerly known as

Mobile Mentors

EIN

82-3271603

NTEE code info

Health Support Services (E60)

IRS filing requirement

This organization is required to file an IRS Form 990-N.

Sign in or create an account to view Form(s) 990 for 2022, 2021 and 2020.
Register now

Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Every year 500,000 people suffer a spinal cord injury (SCI) worldwide (WHO). Most lose the ability to walk, control bowel & bladder, and engage with society. They gain crushing social stigma, financial hardship, nerve pain, and depression. Patients must relearn how to use available movement for the most basic tasks like getting up from bed or speaking with a ventilator in order to pursue independence. In the US, patients may receive specialized therapy for an average 34 days (NSCISC 2018), which is not enough to face the inaccessibility and isolation outside the hospital. In India and Colombia, patients often do not have specialized therapy or independent living as a goal due to lack of awareness among medical providers and access to assistive technologies. Providers cannot intervene outside the hospital and patients everywhere rarely find peer mentors during hospitalization due to mentor unavailability, restrictive hospital policies, or a patient’s emotional state.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Spinal Cord Injury Patient Education Video Course

500,000 people worldwide suffer a spinal cord injury every year. Most lose the ability to walk, control bowel & bladder, and engage with society. What they often gain is crushing social stigma, financial hardship, nerve pain, and depression. Patients often feel alienated, even with their own doctors and therapists, and return home without knowing how they can ever live independently again.

More Than Walking's massive open online video course educates patients on independence skills, connects them to community, and empowers them to share what they learn with the world. We do that by filming the stories of local peer mentors and using their demonstration videos of independent living skills to create step-by-step courses for every type of spinal cord injury. From peer recommendations, we make viewers aware of medical suppliers and disability-related businesses and services in their area through a global resource map.

Population(s) Served
People with physical disabilities
Caregivers

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of people with disabilities who volunteer as peer mentors and share their story or independence skills on film.

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with physical disabilities

Related Program

Spinal Cord Injury Patient Education Video Course

Type of Metric

Input - describing resources we use

Direction of Success

Increasing

Context Notes

This reflects new and previous years' volunteers who submitted videos in the current year.

Number of new volunteers

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with disabilities

Related Program

Spinal Cord Injury Patient Education Video Course

Type of Metric

Input - describing resources we use

Direction of Success

Increasing

Number of peer mentor interviews submitted

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with disabilities

Related Program

Spinal Cord Injury Patient Education Video Course

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of peer mentor demonstrations submitted

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with disabilities

Related Program

Spinal Cord Injury Patient Education Video Course

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of help/mentee trequests

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with disabilities

Related Program

Spinal Cord Injury Patient Education Video Course

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

We are creating a massive open online video course to connect SCI patients to community, educate them on independence skills, and empower them to share what they learn with the world. Patients will understand what they need to learn to maximize independence and to find mentors, adaptive recreation, medical suppliers, and existing support programs in their community. Improved independence and community reintegration of patients leads to employment and reduced costs ­ 73% of SCI survivors in US remain unemployed 10 years after injury, costing over $1 million in the first year and $50,000 ­ $200,000 each year thereafter (NSCISC 2018). Regardless of experience with SCI, therapists will better understand the perspective of their patients, arrange for peer mentor visits, and communicate therapy goals, mobility strategies, and community resources to patients and caregivers. Physical & Occupational Therapy, Nursing, and medical students will understand the diversity within SCI populations and

We do this regionally by recording stories of peer mentors of every SCI type from adaptive sports teams, editing their demonstration videos of 16 activities of independent living, and distributing this to SCI­ treating hospitals as a patient education course. Demonstrations related to bed mobility, sitting, transfers, wheelchair skills, standing, and walking are accompanied by a therapist analysis video that breaks down each activity and explains key muscles, precautions, and progression strategies. As SCI viewers learn new skills, they can become mentors too and submit their own demonstrations.

Our services are unique in that we are connecting course users to all available regional resources that they otherwise may not find. We provide video production assistance for community members and patients to become peer mentors and share their experiences. We incorporate physical and occupational therapy insight alongside regionally specific mentor demonstrations to facilitate patient education in any context. We structure peer mentor and therapy independence strategies in a course that patients can easily follow and contribute to with their own insight.

We have 4 output objectives for 2020. 1) Interview at least 40 additional peer mentor volunteers from the USA and around the world by the end of 2020. Last year we interviewed 37 individuals. Over a recorded video call, participants share their pre- and post-injury story, the challenges they have faced, and the methods by which they have or are pursuing independence, speaking to newly-injured viewers who need to know that life after injury is possible. 2) Publish at least 25 demonstrations of skills filmed and submitted by peer mentors volunteers, from bed sore prevention to walking with orthotics. 3) Complete and set-up a pilot version of the compiled online course in collaboration with rehabilitation providers. 4) Connect at least 100 SCI/D video viewers/participants to our virtual community groups on Facebook, e-mail, and Zoom, in addition to those of allied organizations.

1) We will reach out to the 76 volunteer peer mentors who have shared their stories through us so far to recommend additional peer mentors in their communities to reach out to. We will also contact existing support group leaders in all 50 US states as well as in countries where we have international volunteers - India, Colombia, and Nigeria - to offer our free services of facilitating virtual peer mentor introductions for their local communities. 2) We will continue to challenge all our interviewees with the opportunity to reach hundreds or thousands of viewers via practical videos they submit for us to publish and distribute. 3) We will evaluate which online course platform is best suited for our purpose and begin building content from our 136+ videos. 4) We hope to hire a community facilitator to help mentors and mentees find the community support that they require.

Financials

More Than Walking Incorporated
lock

Unlock financial insights by subscribing to our monthly plan.

Subscribe

Unlock nonprofit financial insights that will help you make more informed decisions. Try our monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights?
Learn more about GuideStar Pro.

Operations

The people, governance practices, and partners that make the organization tick.

lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

More Than Walking Incorporated

Board of directors
as of 02/25/2021
SOURCE: Self-reported by organization
Board chair

Jonathan Sigworth

Organizational demographics

SOURCE: Self-reported; last updated 12/29/2020

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Male, Not transgender
Sexual orientation
Heterosexual or Straight
Disability status
Person with a disability

Race & ethnicity

No data

Gender identity

No data

Transgender Identity

No data

Sexual orientation

No data

Disability

No data