SILVER2023

Osteosarcoma Collaborative Inc

Educate • Fund Research • Cure

Gaithersburg, MD   |  https://www.oscollaborative.org/

Mission

Bring together data, researchers, patients and families to find new cures for osteosarcoma. Through advocacy, fundraising, education and awareness regarding the disease, we will support new treatment options for patients with this extremely aggressive and often recurring disease.

Ruling year info

2018

President

Theresa Beech

Co Principal Officer

Ben Moody

Main address

588 Chestertown Street

Gaithersburg, MD 20878 USA

Show more contact info

EIN

82-3882732

NTEE code info

Fund Raising and/or Fund Distribution (H12)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Osteosarcoma Collaborative is focused on fundraising Osteosarcoma research, an orphaned pediatric cancer. The standard of care for newly diagnosed osteosarcoma patients has not changed, there is nothing new in thirty years. Our mission is to bring together data, researchers, patients and families to find new cures for osteosarcoma. Through advocacy, fundraising, education and awareness regarding the disease, we will support new treatment options for patients with this extremely aggressive and often recurring disease. "Osteosarcoma sometimes takes a limb to check you out. Then, if it likes you, it takes the rest." --John Green

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Fighting Osteosarcoma Together Super Grant

The OSC is made up of family and friends of our Osteosarcoma “Angels and Heroes”, Austin, Daniel, Arnav, David, Oliver, Claire, and Olivia. In our promise to accelerate Osteosarcoma research and find a cure the OSC is partnering with Michael and April Egge, Battle Osteosarcoma, CureSearch, The Zach Sobiech Fund at Children’s Research Fund and St. Baldrick’s Foundation to fund a 1.5-million-dollar Fight Osteosarcoma Together (FOT) SUPER GRANT Celebrating a Partnership For Progress in Osteosarcoma. This grant is 100% focused on funding innovative approaches to research and the rapid translation to new treatments.
Over the past few years, we have made significant progress together with the generosity of our communities and the efforts of the talented and dedicated researchers but we are nowhere near done, please see our Osteosarcoma Collaborative 2022 Impact Statement. The OSC believes that with your support in helping us fund this SUPER GRANT children diagnosed with osteosarcoma will ha

Population(s) Served
Children and youth
Adults

Where we work

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Collaborate with Patient/Family, Medical, and science communities:

--Provide increased funding for Osteosarcoma research and new treatments
--Encourage Genetic testing for all Osteosarcoma patients - changing Standard of Care
--Advocate with Surgeons and Pathologists on proper sample collection for bone tumors to be used for successful genetic testing
--Act as a clearinghouse for Osteosarcoma genetic information
--Advocate for better awareness and understanding of Osteosarcoma
--Partner with medical community to change decades old treatment for Osteosarcoma

Partner wit h St. Baldrick's Foundation
Have yearly Brave the Shave/Silent Auction event
Have birthday fundraisers on Facebook
Various fundraisers throughout the year

Partnership with St Baldricks
Fundraising

Awarded our first Osteosarcoma Collaborative/St Baldrick's research grant

Financials

Osteosarcoma Collaborative Inc
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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Osteosarcoma Collaborative Inc

Board of directors
as of 07/04/2023
SOURCE: Self-reported by organization
Board co-chair

Theresa Beech

Osteosarcoma Collaborative, Inc.

Term: 2018 -


Board co-chair

Miriam Cohen

Osteosarcoma Collaborative

Term: 2018 -

Theresa Beech

Osteosarcoma Collaborative, Inc.

Miriam Cohen

Osteosarcoma Collaborative, Inc.

Ben Moody

Osteosarcoma Collaborative, Inc.