Precision Healthcare Ecosystem

Today's healthcare system is fragmented and challenging to navigate – especially for people with chronic, undiagnosed or challenging medical conditions. But with technology plus informed self-study Precision Healthcare Ecosystem (PHE) can revolutionize our "sick care" system and enable people to focus on wellness. PHE is developing programs, processes and tools that leverage wearable technology and education to enable patients to understand their data and be empowered to act. PHE incorporates a mind/body/spirit (Bio/Psycho/Social) model of the individual, family and community. Project Apollo enables patients with an alternative, empowered approach to care which can used by motivated people, regardless of their health conditions, means or backgrounds. In addition to its patient, researcher and clinical core, PHE includes business, education and healthcare advisors. PHE is patient-led, helping patients to communicate their "lived experience" of their conditions.

We are primarily focused on developing tools to enable patients to conduct valid self-study and visualize their health journeys, in order to better communicate with healthcare providers. These tools include self-study protocols and tools to create a timeline of their journey which incorporates symptoms, life events, traumas and medical treatments.

– Development of a scalable, web-based tool kit, that can be offered either on a fee-for-service basis or as a licensing model to disease-specific groups seeking to enhance their member experience. This kit is expected to include: an education module (to better prepare patients for self-study); self-awareness exercises (to focus awareness of patients' own knowledge and personal biases); links to interpretation support (to review patient-generated data); and implementation support (linked to turning research information into actionable wellness plans).

– Development of Focus Groups, which would make available a cohort of trained, willing patients, on a shared-revenue, data-protected basis, and operating under peer-review (IRB), to provide early feedback to companies developing new, innovative health devices or apps.

– Development of online training programs which can make Project Apollo's educational modules available to the public-at-large.

– Seeking to secure philanthropic funding to advance ongoing research methods and processes, and to provide scholarships for testing and unreimbursed treatment for financially challenged patients.

We are currently in R&D mode, testing our Bio/Psycho/Social framework for use across a wide spectrum of health conditions. We are also working with researchers on a timeline tool for our toolkit. Our current cohort of patients have formed numerous self-study groups to support their explorations. We meet virtually on a monthly basis to support the community at large.