Kidney Donor Conversations, Inc.

Breaking the silence of Living Kidney Donation

Whitehouse, OH   |  www.MyKDC.org

Mission

Kidney Donor Conversations is a 501(c)3 nonprofit corporation dedicated to providing education and support about Living Kidney Donation so everyone has one healthy kidney.

Notes from the nonprofit

This is Kidney Donor Conversation's fourth year as we provide education about Living Kidney Donation to help those on the kidney transplant waiting list. Thank you for your support to help find more living kidney donors.

Ruling year info

2018

Co-Executive Director

Glenna Frey

Co-Executive Director

Amanda Frey

Main address

6835 Berkey Southern Road

Whitehouse, OH 43571 USA

Show more contact info

EIN

82-4566431

NTEE code info

Kidney (G44)

IRS filing requirement

This organization is required to file an IRS Form 990-N.

Communication

Blog

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

There are over 95,000 people on the kidney transplant list. There were 21,000 transplants in 2018; 15,000 from deceased donors and 6,000 from living donors. Donate Life America focuses on registering people to be organ donors after people die. This strategy is not adequate for the number of people who need transplants, since <1% of those that sign their driver's license will actually donate. There is no group focused solely on providing education and support for living kidney donation.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Kidney Donor Awareness

Provide education and support for living kidney donation.
Our vision is to have more kidney donors waiting to donate than people who need a kidney transplant.

Population(s) Served
Adults

Where we work

Affiliations & memberships

Otsuka NephU 2020

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of clients participating in educational programs

This metric is no longer tracked.
Totals By Year
Population(s) Served

Adults

Related Program

Kidney Donor Awareness

Type of Metric

Output - describing our activities and reach

Direction of Success

Holding steady

Context Notes

Living Kidney Donor presentations have been presented online in collaboration with other kidney advocate groups. COVID has impacted the ability to reach people in person.

Number of educational blog posts and videos posted on social media

This metric is no longer tracked.
Totals By Year
Population(s) Served

Adults

Related Program

Kidney Donor Awareness

Type of Metric

Output - describing our activities and reach

Direction of Success

Holding steady

Number of views from YouTube Educational Videos

This metric is no longer tracked.
Totals By Year
Population(s) Served

Adults

Related Program

Kidney Donor Awareness

Type of Metric

Output - describing our activities and reach

Direction of Success

Holding steady

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Kidney Donor Conversations' goal is to help prevent people from going on dialysis or help get them off dialysis by discovering more kidney donors to improve their quality of life and extend the length of their life. This is achieved by providing education and support for living kidney donation to the general public.

Education is provided through in-person and online presentations, information on social media (blogs & videos).
Support is done with online and telephone discussions before and after living kidney donation.
Resources include information for potential kidney donors transplant centers, websites, books, social media, etc. where they can find additional support, facts, and guidance.

Kidney Donor Conversations has staff that is highly experienced with kidney disease and counseling.

Glenna Frey, APRN-CNS, co-founder, and co-executive director has over 30 years of experience as a nephrology nurse (including kidney transplants, hemodialysis, peritoneal dialysis, diabetes, and palliative care). She donated her kidney to a stranger in 2017. Her husband and daughter have kidney disease.

Amanda Frey, co-founder, and co-executive director has Polycystic Kidney Disease and is a marriage and family counselor.

They actively network with other kidney-related organizations across the country to keep up to date on the latest kidney donor and kidney transplant issues.

We have moved from in-person community events to an online educational presence and have expanded our networking with National Kidney Foundation and other kidney donor-related groups throughout the US.
Our plan for 2022 is to increase our educational reach through:
-Presentations
-Blog posts on our website about kidney donation
-Educational videos about kidney donation
- Increase social media presence by sharing education
- Write a book about the process of living kidney donation

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.
  • Who are the people you serve with your mission?

    Potential kidney donors People on the kidney transplant waiting list Family and friends of potential kidney donors and potential kidney transplant recipients General population

  • How is your organization collecting feedback from the people you serve?

    Electronic surveys (by email, tablet, etc.), Focus groups or interviews (by phone or in person), Suggestion box/email,

  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To strengthen relationships with the people we serve,

  • What significant change resulted from feedback?

    We are providing more online education due to a decrease desire to have in-person presentations (due to COVID-19). We are creating a 15 minute video for potential donors per request of someone looking for a living donor.

  • With whom is the organization sharing feedback?

    The people we serve, Our staff, Our board, Our funders, Our community partners,

  • How has asking for feedback from the people you serve changed your relationship?

    We strive to be transparent with our work through monthly newsletters and have a shared decision-making model.

  • Which of the following feedback practices does your organization routinely carry out?

    We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We tell the people who gave us feedback how we acted on their feedback, We ask the people who gave us feedback how well they think we responded,

  • What challenges does the organization face when collecting feedback?

    It is difficult to get the people we serve to respond to requests for feedback, We don’t have the right technology to collect and aggregate feedback efficiently, It is difficult to find the ongoing funding to support feedback collection, Staff find it hard to prioritize feedback collection and review due to lack of time,

Financials

Kidney Donor Conversations, Inc.
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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Connect with nonprofit leaders

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Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

Kidney Donor Conversations, Inc.

Board of directors
as of 02/22/2022
SOURCE: Self-reported by organization
Board chair

Dave Switzer

Dave Switzer

Glenna Frey

ProMedica Cancer Institute

Tara O'Brien

Ohio State University

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 2/18/2022

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender (cisgender)
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

The organization's co-leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender (cisgender)
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

Gender identity

 

Sexual orientation

Disability

We do not display disability information for organizations with fewer than 15 staff.

Equity strategies

Last updated: 02/12/2021

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We analyze disaggregated data and root causes of race disparities that impact the organization's programs, portfolios, and the populations served.
  • We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
  • We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
  • We disaggregate data by demographics, including race, in every policy and program measured.
  • We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
Policies and processes
  • We use a vetting process to identify vendors and partners that share our commitment to race equity.
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.