StacheStrong

#LiveStacheStrong

VESTAL, NY   |  www.stachestrong.org

Mission

StacheStrong is a 501(c)3 non-profit devoted to raising funds and awareness for brain cancer research. Defeating brain cancer and improving the quality of patients’ lives is our daily focus. Our organization has become a beacon of hope for countless individuals and families afflicted by this disease and we serve as an ardent advocate for all those impacted by brain cancer. Net proceeds raised go towards brain cancer research initiatives and together we WILL flip the script on brain cancer.

Ruling year info

2018

President

Colin Gerner

Main address

511 CASTLEMAN RD

VESTAL, NY 13850 USA

Show more contact info

EIN

82-4875614

NTEE code info

Fund Raising and/or Fund Distribution (H12)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Our organization is devoted to funding brain cancer research to extend life expectancy and ultimately fight for a cure. Currently, 94% of those diagnosed with GBM do not survive to 5 years and the average life expectancy is 12-18 months. These are unacceptable statistics that we are focused on improving.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

StacheStrong 5K Run/Walk

5K Run/Walk to raise funds and awareness for brain cancer research. 2020 Event raised over $50,000 and had1,114 participants in all 50 states.

Population(s) Served
Adults
Children and youth

Community sponsor of TCS New York City Marathon. 5 bibs granted to create StacheStrong team with a minimum commitment of $3,500 per runner, or $17,500 in total. Runners will use social media to promote their training efforts and journey towards completing the 26.2 miles.

Population(s) Served

Every November, people around the globe grow out their facial hair to participate in the phenomenon known as Movember or No Shave November. StacheStrong invites you to participate with us during November by letting your mustache grow wild as we aim to further spread our mission to combat the deadliest brain cancer. Make GBM awareness the reason behind why you’re growing out your mustache, because we’ve learned first-hand how difficult it is for a lot of people to talk about brain cancer. Patients and their families feel isolated during what is seemingly an insurmountable uphill battle. Let’s start the conversation today, one ‘Stache at a time!!!

What’s StacheStrong, you might ask? It is a 501(c)3 Charity we founded in 2018 as a result of a grim diagnosis of GBM to my brother, George “GJ” Gerner. Statistically, GBM has a life expectancy of 10-15 months and simply put, this is the most dire of brain cancers. GJ subsequently endured two emergency brain surgeries to remove golf ball sized tumors, several rounds of chemotherapy and radiation, as well as plenty of other treatments. Everyone has heroes, but ours was one of the strongest you could ever meet. After a 25 month battle, our hero gained his wings on 9/17/19 as he passed the torch to us to continue his fight.

We had a tremendous amount of support in 2020 from different police and fire departments, as well as several individuals from around the United States. Their efforts helped us raise over $25,000 for brain cancer research during November. This is where we need your help as we aim to GROW this campaign! If you or someone you know is interested, please email us and we will set up a donation page for your group on our website. We mustache you to tag @StacheStrong and use #GrowStacheStrong and #LiveStacheStrong in all social media posts. Together, we CAN make a difference!

Population(s) Served

Every May is Brain Cancer Awareness Month, which is of major importance to our family and organization to continually raise awareness and funds for this underrepresented space. We've been brewing a collab beer with Oskar Blues the past few years and decided that with the success of that partnership, we could have a baseline and story to make this happen at breweries across the US. We've coined the campaign #BrewStacheStrong and are aiming to have breweries take their stab at a S.M.A.S.H for Stache beer in support of our organization. All proceeds we raise go directly to brain cancer research and we think this can be a major annual campaign in the beer community. OB was even able to have local suppliers donate hops/malt/etc. to help raise even more dollars for brain cancer research. Please check out the attached informational document to see how you can join the collaboration. Together we ARE making a difference!

Population(s) Served
Adults
Adults
Adults

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of organizations applying for grants

This metric is no longer tracked.
Totals By Year
Population(s) Served

Terminally ill people

Type of Metric

Context - describing the issue we work on

Direction of Success

Increasing

Average grant amount

This metric is no longer tracked.
Totals By Year
Population(s) Served

Terminally ill people

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of research studies funded

This metric is no longer tracked.
Totals By Year
Population(s) Served

Terminally ill people

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Total dollar amount of grants awarded

This metric is no longer tracked.
Totals By Year
Population(s) Served

Terminally ill people

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of participants attending course/session/workshop

This metric is no longer tracked.
Totals By Year
Population(s) Served

Terminally ill people

Related Program

StacheStrong 5K Run/Walk

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Our organization is committed to advancing brain cancer research through funding research grants and clinical trials. Working with top institutions across the country will ensure we're funding top scientific proposals and focusing on brain cancer related opportunities.

Our strategies are focused around impactful annual events to continually engage our existing supporters, while also focusing on growing new supporters. Specifically, we have built an annual collaboration to fund one quarter million dollars, as well as a 5K run/walk that will see upwards of 1,500 participants across the country.

Our team is composed of all volunteers and we have built committees around each event to ensure annual progression and new ideas. Building these volunteer committees has helped us handle the multitude of events and impact we now oversee.

We have had steady annual growth and have become a $1,000,000 organization for brain cancer research in just over 3 years. We anticipate similar growth and sustained support of our mission and goals.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.
  • Who are the people you serve with your mission?

    Those fighting brain cancer.

  • How is your organization collecting feedback from the people you serve?

    Suggestion box/email,

  • How is your organization using feedback from the people you serve?

    To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals,

  • What significant change resulted from feedback?

    Moving our 5K to Virtual to allow participation and involvement by those regardless of geographic location.

  • With whom is the organization sharing feedback?

    Our board,

  • Which of the following feedback practices does your organization routinely carry out?

  • What challenges does the organization face when collecting feedback?

Financials

StacheStrong
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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lock

Connect with nonprofit leaders

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Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

StacheStrong

Board of directors
as of 5/18/2021
SOURCE: Self-reported by organization
Board chair

Colin Gerner

Norm Snyder

Avitae USA, LLC

Greg Rose

EY

Lou McKercher

Oskar Blues

Constantinos Hadjipanayis

Mount Sinai

Kelly Gerner

Nassau Candy Distributors, Inc.

Josh Perry

Self

Ben Sorber

DiCaudo, Pitchford & Yoder

Stacey Stack

Retired

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? No
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No

Organizational demographics

SOURCE: Self-reported; last updated 05/18/2021

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Male, Not transgender (cisgender)
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

Gender identity

 

Sexual orientation

No data

Disability

No data