PLATINUM2023

United Brain Association, Inc.

Vails Gate, NY   |  https://unitedbrainassociation.org

Mission

Our Mission is to treat all matters of the mind with equal respect and determination, realizing that all brain and mental health-related disorders take place within one mind. We generate crowd-sourced funding to promote Education and Research into finding cures for the more than 600 known Brain and Mental Health-related issues, with the common goal of uniting the treatment of the neurological and psychological aspects of the mind as one. At the United Brain Association, No Mind is Left Behind.

Notes from the nonprofit

Our Mission is to treat all matters of the mind with equal respect and determination, realizing that all brain and mental health-related disorders occur within one mind. The United Brain Association is a 501(c)3 nonprofit raising funds to support Education and Research into over 600 brain and mental health-related issues and disorders facing each of us today, and our children tomorrow. At the United Brain Association, No Mind is Left Behind.

Ruling year info

2018

President

John Boulton

Vice President and Executive Director

Jay Matey

Main address

6 Old Temple Hill Road #675

Vails Gate, NY 12584-9800 USA

Show more contact info

EIN

82-4935768

NTEE code info

Fund Raising and/or Fund Distribution (H12)

Fund Raising and/or Fund Distribution (G12)

Fund Raising and/or Fund Distribution (F12)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Sign in or create an account to view Form(s) 990 for 2022, 2021 and 2019.
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Communication

Blog

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

The United Brain Association is a 501(c)3 nonprofit raising funds to support Education and Research into over 600 brain and mental health-related issues and disorders facing each of us today, and our children tomorrow. UBA is working to eliminate the stigma often associated with mental health diagnoses, to educate the public about the close-knit relationship between brain and mental health-related issues and disorders, and to support research into treatments and cures for brain and mental health disorders.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Educational Programs

The American Brain Society (ABS) mission is to find treatments and cures for brain and mental health disorders by educating the public, supporting those affected, and funding innovative research.

ABS is funded solely by donations, with the goal of ending Brain and Mental Health Disorders one contribution at a time.

Population(s) Served
Families
Caregivers

American Brain Society has funded $56,000 in Brain and Mental Health Disorder research as follows:
$30,000 for Psilocybin & Depression Research at JHMI
$5,000 for Anorexia Nervosa Research at JHMI
$10,000 for Parkinson's Disease Research at JHMI
$3,000 for Psilocybin & Alcoholism Research at Yale
$6,000 for PTSD Research at JHMI

Population(s) Served
Families
Caregivers

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of website sessions

This metric is no longer tracked.
Totals By Year
Population(s) Served

Adults, Children and youth

Related Program

Funding of Brain and Mental Health Disorder Research

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

The American Brain Society website launched in May 2019 and therefore does not have metrics for Website Sessions prior to 5/1/19. ABS amended its name to United Brain Association on May 20, 2020.

Number of new website visitors

This metric is no longer tracked.
Totals By Year
Population(s) Served

Adults

Related Program

Educational Programs

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

The American Brain Society website launched in May 2019 and therefore does not have metrics for Website Sessions prior to 5/1/19. ABS amended its name to United Brain Association on May 20, 2020.

Number of return website visitors

This metric is no longer tracked.
Totals By Year
Population(s) Served

Adults

Related Program

Educational Programs

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

The American Brain Society website launched in May 2019 and therefore does not have metrics for Website Sessions prior to 5/1/19. ABS amended its name to United Brain Association on May 20, 2020.

Number of website pageviews

This metric is no longer tracked.
Totals By Year
Population(s) Served

Adults

Related Program

Educational Programs

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Amount of Donations generated by website and advertising traffic

This metric is no longer tracked.
Totals By Year
Population(s) Served

Adults

Related Program

Educational Programs

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

The American Brain Society website launched in May 2019 and therefore does not have metrics for Website Sessions prior to 5/1/19. ABS amended its name to United Brain Association on May 20, 2020.

Number of research studies funded

This metric is no longer tracked.
Totals By Year
Population(s) Served

Chronically ill people, Terminally ill people, Substance abusers

Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Increasing

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

The United Brain Association, Inc. (UBA) is raising monies to support education and research into treatments and cures for the over 600 brain and mental health-related issues and disorders facing each of us today, and our children tomorrow.

The United Brain Association aims to accomplish the following goals:

• Generate crowd-sourced funding to support Education, via our online Brain Resources, on 600 brain and mental health-related issues and disorders.
• Generate crowd-sourced funding to support research into treatments and cures for the above-referenced brain and mental health disorders.
• Generate Major Gifts and Grants in support of UBA’s education and research programs.
• Build an inclusive online community comprised of the recently diagnosed and those well on their journey along the road of a brain and/or mental health diagnosis. This community relies on the Brain Stories shared on the UBA website and social media platforms.
• Engage our online community with outreach programs to combat modern-day addictions including vaping, opioids, and stimulants
• Provide caregiver tips and information for those caring for loved ones affected by brain and mental health-related issues


The United Brain Association (UBA) employs the following strategies to support education and research into over 600 brain and mental health-related issues and disorders:

• UBA engages with the public via our website and social media platforms to provide detailed and relatable content for those who need answers. Through this personal engagement, we garner financial support (donations) to further our programs.
• UBA has built and supports a state-of-the-art website hosting the following information for those in need of answers and support:
• Brain Resources: detailed information on 340 (as of Feb 2023) of the 600 brain and mental health-related issues and disorders - ranging from the definition, diagnosis, treatments, and caregiving, to the underlying science of the disorder, to research currently in the recruiting phase.
• Brain Stories: engaging personal stories of our community members as they describe their journey along their brain and mental health diagnosis.
• Blogs: A wide range of current topics are presented on brain and mental health-related issues and disorders.
• Community Outreach: Our staff hosts fundraisers and classroom presentations where current brain and mental health-related topics are presented to our public.
• Social media advertising and messaging – via our Facebook, Instagram, Twitter, LinkedIn, YouTube, and TikTok platforms, UBA promotes and advertises our resources and obtains donations supporting our education and research programs.

The United Brain Association, Inc. (UBA) currently has the following capabilities and technical staff to support fundraising for education and research into brain and mental health-related issues and disorders:

• Website: unitedbrainassociation.org with supports the following:
o Accomplishments – projects funded to date
o Brain Resources – 340 of the 600 know brain and mental health issues and disorders
o Brain Stories – 25 personal stories from our community
o Memorials – Donations in memory of a loved one to support research
o Fundraisers: Public and Virtual Events, Personal Honorees
• Social Media Posts and Ads: Facebook, Instagram, Linkedin, Twitter, YouTube, and TikTok
• Psychiatric resident on UBA retainer
• Social Media Influencer with over 1 million followers
• Highly accomplished public relations firm

To date, The United Brain Association, Inc. (UBA) has accomplished the following significant milestones:
• Published (340) of (600) brain and mental health-related resources
• Published (25) Brain Stories from members of our community about their brain and mental health journeys
• Published more than (500) Blogs, Post, and Videos on brain and mental health-related topics
• Funded more than $80,000 in research projects in the areas of Depression, Anorexia Nervosa, Bulimia, Parkinson's Disease, Alcoholism, and PTSD

UBA has also reached over 3 million users across (273) countries, and traffic is continuing to grow. Our following on Facebook has grown to over 7,500 people with over 65,000 site visits per month and continues to trend upward. Instagram, Twitter, YouTube, and TikTok activity is also increasing steadily.

UBA has launched several new advertising campaigns this year and has begun utilizing social media influencing to expand our reach to younger demographics and across several social platforms. We have established ourselves as a bonified resource for brain and mental health-related issues and disorders, and our yearly donations continue to increase exponentially.

UBA will continue to build upon our Brain Resources, Brain Stories, Blogs, Memorials, and our social presence in a continual effort to raise funds in support of education and research.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We demonstrated a willingness to learn more by reviewing resources about feedback practice.
done We shared information about our current feedback practices.
  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve

  • Which of the following feedback practices does your organization routinely carry out?

  • What challenges does the organization face when collecting feedback?

    We don't have any major challenges to collecting feedback

Financials

United Brain Association, Inc.
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

United Brain Association, Inc.

Board of directors
as of 03/06/2023
SOURCE: Self-reported by organization
Board chair

John Boulton

United Brain Association, Inc

Term: 2022 - 2023

John A. Boulton

United Brain Association, Inc.

Thomas O. Morel

United States Military Academy

Jay Matey

United Brain Association, Inc.

Collin Krzyzaniak

United Brain Association, Inc,

Jordon E. Swain

United States Military Academy

Lacey D. Angioletti

United Brain Association, Inc.

Jessica M. Williams

Black Dirt Designs

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Not applicable
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? No
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? No
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No

Organizational demographics

SOURCE: Self-reported; last updated 2/5/2021

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Male, Not transgender
Sexual orientation
Heterosexual or Straight
Disability status
Person with a disability

The organization's co-leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Male, Not transgender
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

Gender identity

Transgender Identity

Sexual orientation

Disability

We do not display disability information for organizations with fewer than 15 staff.

Equity strategies

Last updated: 02/05/2021

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We review compensation data across the organization (and by staff levels) to identify disparities by race.
Policies and processes
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.