Health Education and Welfare Incorporated
Educate. Encourage. Empower.
Programs and results
What we aim to solve
Health, Education & Welfare's mission is providing new and innovative programs in the areas of health, education, and social welfare. So far, we have identified two areas of need, both of which we are working to address: 1. Lack of awareness and educational opportunities relating to Lymphedema, a potentially life-threatening disease that affects and estimated 10 million Americans, and lack of financial aid for Lymphedema survivors to obtain their compression garments; and 2. Lack of arts-related programs for people who have experienced emotional trauma from health crises. In response, we created Wisconsin's first and only Lymphedema conference for Lymphedema survivors, their supporters, and healthcare professionals, providing them direct access to noted experts in Lymphedema, as well as national manufacturers of Lymphedema products. We established Wisconsin's first and only financial aid fund, The Compression Garment Fund, to help Lymphedema survivors.
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
Advances in Lymphedema Care Conferences (annually, beginning with November 2018)
HEW's Advances in Lymphedema Care Conferences are Wisconsin's first and only Lymphedema conference that is specifically for Lymphedema patients and survivors, bringing together healthcare professionals under one roof. We provide direct access to Lymphedema experts, and national manufacturers of Lymphedema products. Proceeds help to make possible HEW's Compression Garment Fund - Wisconsin's first and only financial aid program helping Lymphedema survivors.
10 million Americans suffer from Lymphedema. That is more than the combined total of people with Parkinsons, Alzheimers, ALS, AIDs, MS, and Muscular Dystrophy.
Lymphedema has no cure, and is potentially life threatening. People can be born with Lymphedema. Others develop Lymphedema from physical trauma, such as military personnel. The vast majority of those with secondary Lymphedema develop it as the result of cancer surgery and cancer treatments, such as radiation.
Health insurance does not always provide adequate coverage for compression garments. Medicare provides absolutely no coverage.
Without compression garments, patients are at high risk of developing cellulitis infection, which can lead to hospitalization and amputation, or sepsis, which is deadly.
The cost of compression garments can be expensive, but, the cost of the garments is much less than the cost of hospitalization. Prevention is a superior cost effective measure.
Health, Education & Welfare's Lymphedema Compression Garment Financial Aid Fund
HEW's Compression Garment Fund is Wisconsin's first and only financial assistance program that helps Lymphedema patients to afford their medically necessary compression garments. Currently open to Wisconsin residents, with a focus on Calumet, Outagamie, and Winnebago Counties. Applicants from outside of the tri-county region may qualify for the donated garment portion of The Fund.
Healing Through the Arts
HEW's Healing Through the Arts program is a comprehensive program of arts-related workshops combining arts instruction and mental health exercises and techniques, to aid participants in emotional healing from health crises. Our pilot program, Knitting With Hope, proved to be very successful, and provided us with a solid foundation for planning future workshops.
Where we work
External reviews

Our results
How does this organization measure their results? It's a hard question but an important one.
Number of paid participants in conferences
This metric is no longer tracked.Totals By Year
Population(s) Served
Social and economic status, Health
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
2018 marked HEW's premiere Advances in Lymphedema Care Conference, Wisconsin's first and only Lymphedema conference for survivors and healthcare professionals.
Number of free participants in conferences
This metric is no longer tracked.Totals By Year
Population(s) Served
Health, Social and economic status
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Number of clients who report a greater sense of purpose and improved overall wellness
This metric is no longer tracked.Totals By Year
Population(s) Served
Health, Social and economic status
Type of Metric
Outcome - describing the effects on people or issues
Direction of Success
Increasing
Number of clients served
This metric is no longer tracked.Totals By Year
Population(s) Served
Health, Social and economic status
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Goals & Strategy
Learn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
Providing new and innovative programs and services in the areas of health, education, and social welfare. Our two main areas of focus, at this time, are our Advances in Lymphedema Care conferences, which fund The Compression Garment Fund, and, our Healing Through the Arts program.
We seek to increase awareness of Lymphedema, a potentially life threatening disease for which there is no cure, and which affects nearly 10 million Americans; provide education for Lymphedema survivors, their supporters and the medical community; and, help those in financial need to obtain their medically necessary compression garments. Insurance does not provide adequate coverage; Medicare provides NO coverage, and most healthcare systems provide NO financial assistance. That's why we created our Advances in Lymphedema Care conferences, and The Compression Garment Fund - both Wisconsin's first and only.
Our Healing Through the Arts provides arts related workshops, led by noted artists and emotional health professionals, and are for people who have experienced emotional trauma from health crises. We held our pilot workshop, Knitting with Hope, which was a great success. We are developing more workshops, for example: sketching, painting, scrapbooking, stamp art; wreath making, woodblock printing; journaling, poetry writing, prose writing, and more.
What are the organization's key strategies for making this happen?
1. Advances in Lymphedema Care conferences. We have already held two of these conferences, both of which were successes in terms of quality of presenters, audience size, quality of topics discussed, and interest for future conferences. Both conferences raised funds for The Compression Garment Fund.
We have developed valuable networks among healthcare providers, experts in Lymphedema, national manufacturers of Lymphedema products, Lymphedema patients and their supporters, media, and in the business and nonprofit world, and all of our partners and friends combine to make our conferences a success.
2. Healing Through the Arts program. We use our network of supporters, local businesses and nonprofits, artisans and crafts people, and local educational organizations, and emotional health professionals to develop our workshops.
3. Careful and realistic budgeting. So far, we are happy to report that all of our programs have more than paid for themselves.
Health, Education & Welfare emphasizes collaborations and partnerships with other organizations to make these important programs and services a reality, to reach more people in need, and, this helps us to be better stewards of our supporters' donations to HEW.
Because we are an all volunteer operated organization, we can devote our proceeds to making our programs and services possible.
What are the organization's capabilities for doing this?
So far we are happy to report that we have been meeting our goals. We have successfully presented our Advances in Lymphedema Care conferences for two consecutive years, 2018 (we formed in May 2018) and 2019, and are planning our conference for 2020. Each conference has raised funds for The Compression Garment Fund, as well as paid for themselves. We are fortunate to have generous supporters in the business community, nonprofit world and from individuals.
For our Healing Through the Arts program, we ran a pilot workshop for the purpose of assessing what adjustments could be made to improve upon our original model, and we are planning future workshops. We obtained ample sponsorships and funding for the pilot workshop well before our first session began.
We have a small, but committed and talented group of volunteers and board members who help make HEW's goals possible.
Our founder has owned and operated their own business for over 26 years, and has worked with nonprofits as a consultant, board member, and officer, for over 30 years. She is very careful to keep expenses as low as possible, seeking in-kind donations for materials, services, etc., where possible.
What have they accomplished so far and what's next?
In 2020, HEW celebrated our 2nd birthday. Since 2019, our Compression Garment Fund (Wisconsin's first and only) has awarded over $4,000.00 worth of compression garments to Lymphedema survivors in need! Also, Health, Education & Welfare has:
1. Presented Advances in Lymphedema Care conferences, Wisconsin's first and only Lymphedema conference. Ample funds were raised for The Compression Garment Fund - both of which are Wisconsin's first and only - we've made Wisconsin history;
2. We also established Wisconsin's first and only award recognizing excellence in Lymphedema advocacy, the Shellie Stellrecht Award.
3. We have been selected to receive large quantities of donations of unused compression garments, from a major national seller of compression garments, to distribute to those in need. We are the only organization, west of the Eastern Seaboard, to be so chosen. We currently have in excess of $20,000 worth of unused, donated compression garments to distribute.
With this new partnership, we hope to expand our reach throughout the US and then internationally, to help people in need of compression garments, but who can not afford them.
4. Healing Through the Arts Program - we continue to develop workshops.
5. Launched our website in January 2020. https://hew-wisc.org/
How we listen
Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.
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Who are the people you serve with your mission?
Health, Education & Welfare's mission is providing new and innovative programs and services in the areas of health, education, and social welfare. While we serve all members of the community, our areas of focus so far have been: 1. Lymphedema patients, survivors, and healthcare and business professionals who serve those affected by Lymphedema; 2. Individuals who have experienced emotional trauma resulting from health crises; and 3. high school journalists. We created Wisconsin's first and only Lymphedema conference that brings together patients, healthcare professionals and manufacturers of Lymphedema products, under one roof, and Wisconsin's first and only financial aid program The Compression Garment Fund, for patients in financial need.
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How is your organization collecting feedback from the people you serve?
Electronic surveys (by email, tablet, etc.), Paper surveys, Case management notes, Suggestion box/email, Feedback from board members, healthcare providers, representatives of collaborating organizations,
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How is your organization using feedback from the people you serve?
To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To discover new areas of need and gaps in existing programs and services, To understand people's needs and how we can help them achieve their goals,
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What significant change resulted from feedback?
Health, Education & Welfare's Compression Garment Fund Program is Wisconsin's first and only financial aid program helping Lymphedema patients who can not afford their compression garments. Started in 2019, The Fund provided over $6,000.00 worth of compression garments to Lymphedema patients in need. Health insurance does not always provide coverage; Medicare provides no coverage; and healthcare systems provide little to no financial aid. Because HEW is an all-volunteer nonprofit, and is only 3 years old, our Compression Garment Fund Program budget is very modest. The Fund's geographic limit was originally the tri-county region of Calumet, Outagamie and Winnebago counties. Due to feedback, and requests from healthcare providers elsewhere, HEW expanded The Fund to all of Wisconsin.
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With whom is the organization sharing feedback?
The people we serve, Our staff, Our board, Our funders, Our community partners,
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How has asking for feedback from the people you serve changed your relationship?
Health, Education & Welfare has always solicited feedback from the people we serve, from the very start. We place a high priority on collaborations, as well as being as responsive as possible to the needs of the people we strive to help. We are all partners and members of the same team, striving towards united and shared goals. We rely upon one another to help make HEW the best it can be. Attendees to our Advances in Lymphedema Care conferences are asked to suggest improvements, and also tell us what topics and speakers they'd like to have at future conferences, and we then seek those out. We develop networks among Lymphedema survivors so we can all share ideas and learn more about what is needed out there amongst those affected by Lymphedema.
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Which of the following feedback practices does your organization routinely carry out?
We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We tell the people who gave us feedback how we acted on their feedback, We ask the people who gave us feedback how well they think we responded,
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What challenges does the organization face when collecting feedback?
It is difficult to get the people we serve to respond to requests for feedback, We don’t have the right technology to collect and aggregate feedback efficiently, The people we serve tell us they find data collection burdensome, It is difficult to find the ongoing funding to support feedback collection, Staff find it hard to prioritize feedback collection and review due to lack of time,
Financials
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Operations
The people, governance practices, and partners that make the organization tick.
Connect with nonprofit leaders
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- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.
Connect with nonprofit leaders
SubscribeBuild relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.
Health Education and Welfare Incorporated
Board of directorsas of 10/26/2021
Jennifer Edmondson
Phyllis Callaway
Mary Kay Cosmetics
Evelyn Rudolph
Organic Food Industry
Cheryl Lunde
Finance
Board leadership practices
GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.
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Board orientation and education
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes -
CEO oversight
Has the board conducted a formal, written assessment of the chief executive within the past year ? Not applicable -
Ethics and transparency
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes -
Board composition
Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes -
Board performance
Has the board conducted a formal, written self-assessment of its performance within the past three years? Not applicable
Organizational demographics
Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.
Leadership
The organization's leader identifies as:
Race & ethnicity
Gender identity
No data
No data
Sexual orientation
No data
Disability
No data
Equity strategies
Last updated: 12/13/2020GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more
- We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
- We have community representation at the board level, either on the board itself or through a community advisory board.
- We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.