PLATINUM2024

Diabetes Family Connection

Positively transforming life with diabetes through the power of community

RALEIGH, NC   |  www.thedfc.org

Mission

The mission of The Diabetes Family Connection is to positively transform life with diabetes through the power of community. Our organization provides recreation-based programs focused on building confidence, optimism, and support for families affected by diabetes.

Ruling year info

2019

Executive Director

Mrs. Anne Sutton

Main address

6325 FALLS OF NEUSE RD STE 35 # 241

RALEIGH, NC 27615 USA

Show more contact info

EIN

82-5369641

NTEE code info

Health - General and Rehabilitative N.E.C. (E99)

Youth Development Programs (O50)

Diseases of Specific Organs (G40)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Sign in or create an account to view Form(s) 990 for 2023, 2022 and 2021.
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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Type 1 diabetes (T1D) affects approximately 1.5 million people in the U.S., profoundly impacting both individuals and their families. Managing T1D requires constant attention to diet, glucose monitoring, and medication, often leading to emotional distress, including depression, anxiety, and burnout. Children and adolescents with T1D face an especially high risk of mental health challenges, with depression rates two to three times higher than their peers. Despite these struggles, access to comprehensive support and resources remains limited. Without proper education, ongoing support, and community connections, individuals and families with T1D may face greater difficulty managing the condition, leading to potential health complications and a diminished quality of life. Addressing these gaps is essential to help those affected by T1D live healthier, more fulfilling lives without being defined by the disease.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Camp Morris

Camp Morris is a one-week, action packed summer camp serving youth living with diabetes. Kids and teens looking to experience an independent camp program will find this week chock-full of excitement, friendship, and learning opportunities. Campers are assigned cabins by age and supervised by experienced counselors (many of whom are living with diabetes themselves) and a dedicated team of healthcare professionals including: pediatric endocrinologists; registered nurses; registered dietitians; pharmacists; and certified diabetes educators. Camp Morris is a “challenge-by-choice” environment where campers have the opportunity to participate in traditional camp activities that include: archery; canoeing; camp fires; swimming; zip-lines; arts and crafts; multiple challenge courses; and so much more! Our staff and volunteers are experts at “meeting campers where they’re at,” using teachable moments throughout the week to promote healthy, age-appropriate independence in diabetes management.

Population(s) Served
People with diseases and illnesses
Children and youth

Our family retreats allow families of children with diabetes, including parents and siblings, to share the camp experience. With active programming for the kids throughout the day, along with activities and learning opportunities for their parents, our Family Retreat is growing in popularity. Allowing parents to share and network with other parents going through similar experiences with their children helps foster a sense of community and a support system that families can rely on for years. We are mindful to keep both groups (parents and kids) engaged separately to allow for the free expression of their thoughts and concerns. But we also build special activities to build those family memories that our attendees cherish forever.

Population(s) Served
People with diseases and illnesses
Families

This annual retreat looks to serve what we believe is the most underserved age group living with diabetes. Teenagers with diabetes often experience feelings of isolation, depression, and frustration around a disease they have limited control over…all while not wanting to be different from a typical adolescent. As well as looking to build their independence and shape their own future and relationships, teenagers often struggle to navigate those parts of their life given the care and concern of their parents or loved ones around their diabetes. Our Teen Programming is designed to help with many of those challenges. Growing up with confidence, managing diabetes on your own, and working through relationships and social pressures are all topics we work through with attendees. We are also keen to ensure they have plenty of social time to build like-minded friendships with others like them.

Population(s) Served
People with diseases and illnesses
Adolescents

The DFC’s Camp to Community program is a one-day event that provides children aged 5-15 living with type 1 diabetes and their family members with fun, laughter, education, and community connection through recreational-based programming supported by diabetes care professionals. Our outstanding volunteer staff and medical counselors, most of them living with diabetes themselves, design activities that offer teachable moments about diabetes management, team problem-solving opportunities, and challenges that empower and build campers’ confidence in themselves and their diabetes management and leadership skills. By offering children with diabetes the opportunity to experience camp, they learn from one another, build more authentic relationships with medical professionals, find role models in our staff, and make enduring friendships that last a lifetime.

We do not stop there. We offer families the opportunity to find resources in their area, learn from experts, and share their stories with

Population(s) Served
Caregivers
Families
People with diseases and illnesses
Low-income people
Children

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of children served

This metric is no longer tracked.
Totals By Year
Related Program

Camp Morris

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of camps offered

This metric is no longer tracked.
Totals By Year
Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

In 2023, The DFC hosted three in-person events and one online support program, PMA Care Packages.

Number of clients who report feeling less isolated

This metric is no longer tracked.
Totals By Year
Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Increasing

Context Notes

Through our post-program surveys over 95% of our campers feel they have made new friends and found a community of support by participating in the DFC program.

Number of practicing medical doctors

This metric is no longer tracked.
Totals By Year
Type of Metric

Context - describing the issue we work on

Direction of Success

Increasing

Context Notes

The doctors involved in DFC programs are award-winning and from the largest medical institutions in North Carolina, including Atrium Health, Duke Health, UNC Health, and Cone Health , Novant Health.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

1. To promote comprehensive program support for individuals impacted by a T1D diagnosis. One of our core goals at the DFC is to provide thorough, year-round support for individuals and their families living with T1D. Managing a chronic illness requires continuous attention and care. At The DFC, we aim to reduce the burden of managing by offering programming beyond the disease's clinical aspects. Through recreational and community-based initiatives, we provide resources, tools, knowledge, and support a family needs to feel empowered to effectively manage their disease. Through story sharing, we build authentic, collaborative communities focused on helping each other with a positive mindset and lessening the feelings of isolation that lead to depression.
2. To educate and empower those impacted by T1D. Education is at the heart of the DFC's mission. Through education and connection, individuals and their families can gain the knowledge, tools, and skills they need to manage T1D more effectively, thus reducing the rate of complications and adverse health outcomes. The DFC provides education on diabetes management through real-life practicable moments that teach the art of balancing insulin, carbohydrates, exercise, and the hundreds of other factors that impact diabetes management. These moments have a stronger impact on lifelong habit formation and changes, as well as create community through shared experiences
3. To cultivate confidence, resilience, and a positive mindset among individuals and families affected byT1D. Living with a chronic condition like T1D can be overwhelming, and it’s easy for those impacted to feel defeated by the constant demands of disease management. However, by focusing on the positive and fostering a mindset of confidence and resilience, individuals can approach these challenges with strength, optimism, and a belief in their ability to succeed—both in managing their diabetes and in accomplishing broader life goals.
4. To create a community where all individuals impacted by T1D feel like they belong. At the heart of the DFC is a singular guiding goal to create a community where all those affected by the disease feel like they truly belong. Whether it’s navigating daily blood glucose monitoring, insulin management, or the emotional and social challenges of living with the condition that others may not fully understand, many individuals with T1D can feel disconnected from the broader community. The DFC is committed to changing this by building a strong, inclusive, and supportive network where individuals with T1D can come together, share their experiences, and thrive as part of a larger family of people who truly understand their journey.

All of these goals are critical to supporting those affected by T1D and creating an environment that promotes not only positive mental health but also the best physical health outcomes for the individuals living with T1D and those who love them.

Priority 1: Expand community connections
Expand our outreach by offering mission-driven programs, resources, and support to everyone impacted by Type 1 Diabetes (T1D), including individuals living with T1D and those affected by it.
- The DFC will host at least 5 mission-based programs that expose individuals and their families to The DFC's mission, values, programs, engagement activities, and support resources.

Priority 2: Build strong, authentic and meaningful relationships
Foster meaningful relationships with participants, volunteers, donors, and staff to cultivate future leaders who will advance the DFC’s mission and support the T1D community.
- The DFC will increase community involvement by at least 25% through various volunteer opportunities throughout 2024.
- The DFC will increase its online presence in 2024 by completing a rebranding, website update, and social media overhaul in partnership with Bowstern’s MayDay Grant award.

Priority 3: Diversify revenue streams
Diversifying revenue sources will increase fundraising opportunities, ensure the organization's financial sustainability, and continue delivering our programs and community support.
- The DFC will hit the 1.1 million dollar budget goal for 2024 by leveraging individual donors, a crowdfunding campaign, corporate donations and sponsorships, and grant support.

Priority 4: Implement data-driven decision-making
Develop efficient processes and policies to collect and analyze data, enabling informed decision-making that supports The DFC’s programs, resources, staff, and board development and drives the organization’s success.
- The DFC will collect and maintain demographic information for all participants, donors, volunteers, and staff to assess the impact of our programs and identify areas for development.
- After every event, the DFC will solicit feedback from all program participants and volunteers to ensure program effectiveness.
- Leadership will develop and refine processes and policies throughout the year through committee review to ensure the DFC prioritizes mission-based programs and resources.

The DFC’s capabilities to achieve the outlined priorities are grounded in our strong organizational infrastructure, commitment to mission-driven work, and a successful community engagement track record.
Priority 1: Expand Community Connections
- Leverage Established Networks: Using our deep connections with local communities, healthcare professionals, and T1D groups. This network allows us to reach new participants and their families effectively.
- Utilize Existing Partnerships: We will work closely with hospitals, schools, nurses, and other T1D organizations to extend our reach and create programs that maximize resources and impact.
- Track Engagement: we will monitor participation rates and feedback to refine our outreach efforts and ensure that we are meeting the needs of the T1D community.
Priority 2: Build Strong, Authentic, and Meaningful Relationships
- Increase Volunteer Engagement: actively promote volunteer opportunities through targeted outreach, regular communication, and dedicated volunteer engagement activities.
- Rebrand and Strengthen Online Presence: In partnership with Bowstern’s Mayday Grant award, the DFC will undergo a comprehensive rebranding, including a website update and social media overhaul. These changes will enhance our visibility, improve user experience, and better engage the community online. Increased digital engagement will also provide donors, volunteers, and participants more opportunities to connect with the DFC.
- Build Relationships Through Events: Through the mission-driven programs and community outreach events planned for 2024, the DFC will continue to nurture authentic connections with key stakeholders, ensuring that relationships remain strong, mutually beneficial, and focused on long-term community impact.
Priority 3: Diversify Revenue Streams
Cultivate Individual Donors and Corporate Partnerships: We will prioritize building relationships with both individual donors and corporate partners, ensuring that they feel connected to our mission and their support's impact on the T1D community. This includes developing customized giving programs and sponsorship packages for businesses.
-Engage the Board in identifying and cultivating relationships with participants, their circle of influence, and community member leads who self-identify as interested in doing more with and for The DFC.
Priority 4: Implement Data-Driven Decision-Making
-Collect and Analyze Demographic Data: Systematically collect demographic information from participants, donors, volunteers, and staff to evaluate the effectiveness of our programs and identify trends, ensuring that we meet the needs of our diverse community.
Solicit Participant Feedback: After each event, the DFC will actively gather feedback and assess the program's area improvement and effectiveness.
- Refine Processes and Policies: leadership will engage in regular committee reviews to refine processes and policies that prioritize mission-based programs and resources.

In 2024, the DFC has made significant progress across our strategic priorities:

Priority 1: Expand Community Connections
Through our mission-based programs, resources, and support, we have reached over 1,000 individuals and families impacted by T1D. This includes successful events such as Camp Morris, Hickory, and Boone Camp to Community, Teen and Family Retreats, the Leadership and Staff Retreat, JDRF Summit Kids Camp, and conference attendees. Additionally, we have sent out over 60 PMA care packages and provided support to more than 30 individuals through our year-round peer support program, Coffee & Conversations.

Priority 2: Build Strong, Authentic, and Meaningful Relationships
We have significantly increased volunteer engagement, growing our volunteer base from 131 to over 370 individuals. Our social media presence has also surged, with a 270% increase in reach over the past 11 months. These efforts are helping us build stronger, more meaningful relationships with participants, volunteers, and the broader T1D community.

Priority 3: Diversify Revenue Streams
While we are still working toward achieving our $1.1 million budget goal for 2024, we have launched a crowdfunding campaign to help us reach this target. Our strategy includes targeted communications, match days, and a donor impact event on Giving Tuesday to engage our supporters and drive contributions.

Priority 4: Implement Data-Driven Decision-Making
We have restructured our board to support the increased program attendance and are preparing to add four new members in 2025. This expansion will help us better align with the growing needs of the T1D community and strengthen our leadership capabilities.

Overall, 2024 has been a year of growth and momentum for the DFC, with strong strides in expanding our community connections, building relationships, increasing our revenue base, and enhancing our organizational capacity.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We demonstrated a willingness to learn more by reviewing resources about feedback practice.
done We shared information about our current feedback practices.
  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve

  • Which of the following feedback practices does your organization routinely carry out?

    We collect feedback from the people we serve at least annually, We aim to collect feedback from as many people we serve as possible, We act on the feedback we receive

  • What challenges does the organization face when collecting feedback?

    We don't have any major challenges to collecting feedback

Financials

Diabetes Family Connection
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

Diabetes Family Connection

Board of directors
as of 11/19/2024
SOURCE: Self-reported by organization
Board chair

Mrs. Lesley Day

Solas Financial

Term: 2023 - 2026

Jessi Thaller Moran

Brooks, Pierce, McLendon, Humphrey & Leonard, LLP

Justin Thomas

Tandem Diabetes Care

Jakub Mieszczak

Pediatric Endocrinologist - Atrium Health

Brent Gilbert

Benshaw, Inc.

Emily Barger

BRG Communications

Patrick Mertes

Dexcom

Galen Horton

Dexcom

Blair Burns

Ahead

Diana Miller

Sanofi

Amanda White

First Horizon

Christopher Ciapciak

Northwestern Mutual

Deanna Adkins

Duke Children's Hospital

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes

Organizational demographics

SOURCE: Self-reported; last updated 11/18/2024

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

Gender identity

Transgender Identity

Sexual orientation

Disability

We do not display disability information for organizations with fewer than 15 staff.

Equity strategies

Last updated: 08/21/2023

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We ask team members to identify racial disparities in their programs and / or portfolios.
  • We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
  • We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
Policies and processes
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.