Active Surveillance Patients International

Live, Learn and Thrive with ASPI

East Stroudsburg, PA   |  http://www.aspatients.org

Mission

Active Surveillance Patients International (ASPI) will empower men diagnosed with low and intermediate risk prostate cancer, including Gleason 3+3 and favorable intermediate prostate cancer, Gleason 3+4 , by providing the latest information to allow for informed decisions with your physician, regarding approaches to active surveillance. Our vision is to develop proactive patients by providing the latest data and fostering the understanding necessary to pursue the best outcomes with the least intervention.

Ruling year info

2019

Chairman

Mark Lichty

Main address

188 Winchester Dr

East Stroudsburg, PA 18301 USA

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EIN

82-5386351

NTEE code info

Nonmonetary Support N.E.C. (E19)

IRS filing requirement

This organization is required to file an IRS Form 990-N.

Communication

Blog

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Active Surveillance 101

Like 101-level courses in colleges, AS 101 is aimed at teaching the basics. In this case, it’s the basics of active surveillance, close monitoring of low- to favorable intermediate-risk prostate cancer.
The program features conversations between actual patients and their partners/spouses and leading experts. The goal of this series is to reach all AS candidates, including those who have not yet been diagnosed with prostate cancer but have rising PSAs (prostate-specific antigen) blood levels and offer them an introduction to AS and help them formulate questions when they go to their family doctors, urologists, or oncologists.
The first episode features a couple , Nancy and Larry White in a simulated office visit with Dr. Steve Spann, a top family physician and dean of the University of Houston College of Medicine. They discuss Larry’s rising PSA and what it may meanASPI at its September 24, 2022 meeting will be premiering the first of a new video series named “Active Surveillance 101.

Population(s) Served

Where we work

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.
  • Who are the people you serve with your mission?

    Over 1,000 men (and growing annually) with low to favorable intermediate prostate cancer who follow a management protocol called Active Surveillance.

  • How is your organization collecting feedback from the people you serve?

    Electronic surveys (by email, tablet, etc.), Community meetings/Town halls, Suggestion box/email,

  • How is your organization using feedback from the people you serve?

    To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals,

  • What significant change resulted from feedback?

    We instituted a program of "Back to the Basics" - with taped interviews with doctors and specialists talking with patients who either have yet to be screened for prostate cancer or who are newly diagnosed.

  • With whom is the organization sharing feedback?

    The people we serve, Our board, Our funders, Our community partners,

  • How has asking for feedback from the people you serve changed your relationship?

    Many men have expressed their appreciation for us through surveys we send after each webinar or program we present,

  • Which of the following feedback practices does your organization routinely carry out?

    We collect feedback from the people we serve at least annually, We take steps to get feedback from marginalized or under-represented people, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We tell the people who gave us feedback how we acted on their feedback, We ask the people who gave us feedback how well they think we responded,

  • What challenges does the organization face when collecting feedback?

    We don't have any major challenges to collecting feedback,

Financials

Active Surveillance Patients International
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

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Active Surveillance Patients International

Board of directors
as of 11/15/2022
SOURCE: Self-reported by organization
Board chair

Mark Lichty

Active Surveillance Patients International

Term: 2019 -

Bill Manning

Geoffrey McLennan

Alexandra Scholz

Joseph Gallo

Thrainn Torvaldsen

Martin Gewirtz

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes

Organizational demographics

SOURCE: Self-reported; last updated 10/17/2022

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Male, Not transgender (cisgender)
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

No data

Gender identity

No data

 

No data

Sexual orientation

No data

Disability

No data