Medical Research

Saras Cure

Stomping Out Sarcoma

CHARLESTON, SC

Mission

Sara’s Cure is a grassroots, race-against-time campaign focused on funding critical research to find a cure for Clear Cell Sarcoma. The mission of Sara’s Cure is to make clear cell sarcoma survivable through education and scientific research while ensuring all patients and caregivers impacted have a voice and platform to enact change and strive toward the cure.

Ruling Year

2018

President

Mrs Laneen Duke Woods

Main Address

P.O. Box 13418

CHARLESTON, SC 29422 USA

Keywords

Cancer, research, cure, Sarcoma,

EIN

82-5445706

 Number

3758301006

Cause Area (NTEE Code)

Cancer Research (H30)

Fund Raising and/or Fund Distribution (G12)

IRS Filing Requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Social Media

Programs + Results

What we aim to solve

Sara’s Cure is working with several entities to fast tract a treatment for patients with clear cell sarcoma. We offer patients a platform to voice their concerns, struggles, treatments, reports and more. We are an organization that lets them know that although their cancer is Ultra Rare they are not alone. We are creating a seat at the table with the pharmaceutical world, oncology world, rare disease community and the government. We will continue to grow and push for a treatment with hopes to be able to one day offer financial support to patients, also. First, a viable treatment!

Our programs

What are the organization's current programs, how do they measure success, and who do the programs serve?

SOURCE: Self-reported by organization

Sara’s Cure Research Funding

Patient Registry

Where we work

Charting Impact

Five powerful questions that require reflection about what really matters - results.

SOURCE: Self-reported by organization

What is the organization aiming to accomplish?

What are the organization's key strategies for making this happen?

What are the organization's capabilities for doing this?

How will they know if they are making progress?

What have they accomplished so far and what's next?

We are working to find a treatment and get a trial going for clear cell sarcoma patients. We are in the process of developing a patient registry to give the patients, medical world, and scientist access to the data necessary to help these patients. Sara’s Cure is also tirelessly working to be heard and supported in the cancer community.

Sara’s Cure is funding research at a lab that is testing repurposed drugs on clear cell sarcoma cell lines to find a combination that works for this horrible cancer. We are working with other pharmaceutical companies that are helping us towards a possible trial along with the FDA and others. We are establishing a patients registry through NORD that will compile critical information for doctors, scientists and patients. We also plan to continue to attend major summits/conferences to get in front of the major players in the industry so they will hear our story and know our name.

Sara’s Cure will continue to hold events and share our mission globally for support. This support will allow us to continue these critical, possibly life saving steps.

Sara’s Cure know that we are making progress each time we connect with someone important in the industry and they call us and offer to help. We have several plans in the works for the future. We also receive quarterly reports from the lan that we fund with updates on their funding.

Sara’s Cure has made steps in repurposed drug testing through the lab that we fund. We have grown in patients that we support and have grown in supporters. Our next biggest step is to get the patient registry up and running and properly funded over the course of time. We will, of course, continue to push forward in every way possible to find a treatment.

External Reviews

Financials

Saras Cure

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  • Address, website and contact information
  • Forms 990 for 2018

Operations

The people, governance practices, and partners that make the organization tick.

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  • Address, website and contact information
  • Forms 990 for 2018

Board Leadership Practices

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section, which enables organizations and donors to transparently share information about essential board leadership practices.

SOURCE: Self-reported by organization

BOARD ORIENTATION & EDUCATION

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?

Not Applicable

CEO OVERSIGHT

Has the board conducted a formal, written assessment of the chief executive within the past year?

Not Applicable

ETHICS & TRANSPARENCY

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year?

Not Applicable

BOARD COMPOSITION

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?

Not Applicable

BOARD PERFORMANCE

Has the board conducted a formal, written self-assessment of its performance within the past three years?

Not Applicable