Aeron’s Foundation
To build a future free from the suffering caused by SIDS.
Programs and results
What we aim to solve
Aeron’s Foundation was established in May 2018 after we lost our son, Aeron, to SIDS. SIDS is the most common cause of death in children under the age of 1 year. While this tragedy is not always preventable, many cases are. We hope to educate families on the “SAFE TO SLEEP” Public Education Campaign led by the National Institute of Child Health and Human Development (NICHD) to prevent this tragedy from ever occurring. But, in the cases where tragedy strikes, we would like to be there to offer up a small amount of support and emotional relief for families during this terrible experience.
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
SIDS Financial Assitance
providing financial assistance for costs like funeral services through an application process.
Where we work
External reviews
Our results
How does this organization measure their results? It's a hard question but an important one.
Amount of financial aid provided to families who have suffered from SIDS
This metric is no longer tracked.Totals By Year
Related Program
SIDS Financial Assitance
Type of Metric
Output - describing our activities and reach
Direction of Success
Holding steady
Our Sustainable Development Goals
Learn more about Sustainable Development Goals.
Goals & Strategy
Learn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
Aeron’s Foundation is unique because our goal is not only to increase community awareness of infant safe sleep practices but also to support families who have also suffered from this tragedy.
What are the organization's key strategies for making this happen?
1) Providing financial assistance for funeral services through an application process.
2) Providing a route to explore familial genetic testing and counseling, particularly in cases in which multiple family members have died of unknown causes, or if the Medical Examiner’s Office has determined there to be a particular cause of death that may benefit from further genetic evaluation.
3) Providing resources for surviving siblings, with age-appropriate recommendations for parents on how to explain death to a child. We are also in the process of completing a children’s book specifically targeted for surviving siblings, with ideas on how to remember and continue their relationship with a loved one who is no longer physically present.
What are the organization's capabilities for doing this?
Our board members are people who work in the Pediatric field (general pediatricians, specialists, a member of the SIDS council in California), people who have experience running and working in non-profit organizations, and close family and friends who are motivated to help spread our cause.
The founder is also involved in the medical education of Pediatric residents and medical students where the education of future healthcare professionals comes naturally. A few of the board members are also general pediatricians who see patients in the clinic and in the nurseries to promote this powerful message of safe sleep. Other board members who have experience in other non-profits currently have experience in fundraising to allow us to reach out and raise money to support our various activities (providing free sleep sacks, providing financial assistance for families who have lost a child to SIDS). We also have a board member with IT experience to help us maintain an online presence and keep our information up to date.
We have been a part of regional SIDS conferences and one of our board members was recently selected to be a member of the California SIDS council. Finally, we also working with the State Board dealing with SIDS to promote our story and organization. We recently completed a video shoot to be on a state website discussing SIDS.
Finally, we have partnered with our county's Dept of Public Health nurse who is in charge of connecting with the families who have suffered from SIDS to promote our programs to help offer financial assistance.
What have they accomplished so far and what's next?
We were established in 2018 and currently, in the middle of 2023, we have been able to collect a great board of directors that meet frequently to help guide the mission of Aeron's Foundation. The first couple of years focused on fundraising and figuring out logistics. Over these 5 years now, we have donated $22750 in financial assistance, 1000 sleep sacks, and 1000 safe sleep books. We will continue to have various fundraisers to specifically support the free Sleep Sack campaign and financial assistance programs. We have partnered with 2 hospitals and 1 FQHC (Venice Family Clinic - Colen) to be the main locations for our sleep sack distribution to new families.
We have developed a strong connection with the SIDS nurse in LA county to spread the message of our organization to those families who have suffered through a SIDS loss of their child.
Finally, we have published our children's book and providing it to families who have experienced SIDS/SUID, especially if they have other children in the household. We are working to publish a Spanish version and paperback versions to easily provide it to children's hospitals as a resource for families who experience the loss of their child.
Financials
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Operations
The people, governance practices, and partners that make the organization tick.
Connect with nonprofit leaders
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Connect with nonprofit leaders
SubscribeBuild relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.
Aeron’s Foundation
Board of directorsas of 09/13/2023
James Lee
Jennifer Su
Mark Lee
James Le
Amanda Kosack
Eric Peters
Kamala Vallabhaneni
Adam Su
Organizational demographics
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Leadership
The organization's leader identifies as: