Human Services

Aeron’s Foundation

To build a future free from the suffering caused by SIDS.

Sherman Oaks, CA

Mission

To equip families with resources to prevent sudden unexpected infant death (SIDS/SUID), and to support those affected.

Ruling Year

2018

Founder, Board President

James Lee

Main Address

PO Box 56061

Sherman Oaks, CA 91413 USA

Keywords

Family Services, Safe Sleep Advocacy

EIN

83-0885927

 Number

3636832062

Cause Area (NTEE Code)

Family Services (P40)

IRS Filing Requirement

This organization is required to file an IRS Form 990-N.

Programs + Results

What we aim to solve

Aeron’s Foundation was established in May 2018 after we lost our son, Aeron, to SIDS. SIDS is the most common cause of death in children under the age of 1 year. While this tragedy is not always preventable, many cases are. We hope to educate families on the “SAFE TO SLEEP” Public Education Campaign led by the National Institute of Child Health and Human Development (NICHD) to prevent this tragedy from ever occurring. But, in the cases where tragedy strikes, we would like to be there to offer up a small amount of support and emotional relief for families during this terrible experience.

Our Sustainable Development Goals

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3

Our programs

What are the organization's current programs, how do they measure success, and who do the programs serve?

SOURCE: Self-reported by organization

SIDS Financial Assitance

Where we work

Charting Impact

Five powerful questions that require reflection about what really matters - results.

SOURCE: Self-reported by organization

What is the organization aiming to accomplish?

What are the organization's key strategies for making this happen?

What are the organization's capabilities for doing this?

How will they know if they are making progress?

What have they accomplished so far and what's next?

Aeron’s Foundation is unique because our goal is not only to increase community awareness of infant safe sleep practices but also to support families who have also suffered from this tragedy.

1) Providing financial assistance for funeral services through an application process. 2) Providing a route to explore familial genetic testing and counseling, particularly in cases in which multiple family members have died of unknown causes, or if the Medical Examiner’s Office has determined there to be a particular cause of death that may benefit from further genetic evaluation. 3) Providing resources for surviving siblings, with age-appropriate recommendations for parents on how to explain death to a child. We are also in the process of completing a children’s book specifically targeted for surviving siblings, with ideas on how to remember and continue their relationship with a loved one who is no longer physically present.

Our board members are either people who work in the Pediatric field (general pediatricians, specialists, a member of SIDS council in California), people who have experience running and working in non-profit organizations, and close family and friends who are motivated to help spread our cause. The founder is also involved in medical education of Pediatric residents and medical students where education of future healthcare professionals comes naturally. A few of the board members are also general pediatricians that see patients in the clinic and in the nurseries to also promote this powerful message of safe sleep. Other board members who have experience in other non-profits currently have experience in fundraising to allow us to reach out and raise money to support our various activities (providing free sleep sacks, providing financial assistance for families who have lost a child to SIDS). We also have a board member with IT experience to help us maintain an online presence and keep our information up to date. We have been apart of regional SIDS conferences and one of our board members was recently selected to be a member of the California SIDS council. Finally we also working with the State Board dealing with SIDS to also promote our story and organization. We recently completed a video shoot to be on a state website discussing SIDS. Finally we have partnered with our county's Dept of Public Health nurse who is in charge of connecting with the families who have suffered from SIDS to promote our programs to help offer financial assistance.

Looking at money raised and maintaining sustainability by budgeting appropriately. Looking to see if our donor counts are increasing. Looking at sleep sacks provided. Looking at how many families we have been able to provide financial assistance. Making progress with our children's book.

We were established in 2018 and currently in the middle of 2020, we have been able to collect a great board of directors that meet frequently to help guide the mission of Aeron's Foundation. The first year or so focused on fundraising. Now in 2020, we are in the process of obtaining sleep sacks to provide to at-risk families in Pediatric clinics and nurseries. We have also been in contact with the company HALO to promote safe sleep and provide free sleep sacks as well. We will continue to have annual fundraisers to specifically support the free sleep sack campaign. We have also connected with the SIDS nurse in LA county and in the process of looking over our very first application for financial assistance for a family who has also suffered from SIDS. With this relationship, we hope to reach out to every family in 2020 first and then go back to families that have suffered from SIDS in 2019 to see if they would like any assistance.

External Reviews

Financials

Aeron’s Foundation

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Operations

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Board Leadership Practices

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SOURCE: Self-reported by organization

BOARD ORIENTATION & EDUCATION

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?

Not Applicable

CEO OVERSIGHT

Has the board conducted a formal, written assessment of the chief executive within the past year?

Not Applicable

ETHICS & TRANSPARENCY

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year?

Not Applicable

BOARD COMPOSITION

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?

Not Applicable

BOARD PERFORMANCE

Has the board conducted a formal, written self-assessment of its performance within the past three years?

Not Applicable