Health—General & Rehabilitative

Bright Heart Foundation

Through Hope We Help Heal Hearts

Brentwood, TN   |  www.brightheartfoundation.org

Mission

Bright Heart Foundation was established to advocate for and support children and their families living with the challenges of Congenital Heart Defects (CHD) while also providing support for the physicians who treat them.

Ruling year info

2018

Principal Officer

Linda Pilkinton

Main address

P.O. Box 3463

Brentwood, TN 37024 USA

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EIN

83-0986892

Cause area (NTEE code) info

Patient Services - Entertainment, Recreation (E86)

Fund Raising and/or Fund Distribution (E12)

Hospital (Specialty) (E24)

IRS filing requirement

This organization is required to file an IRS Form 990-N.

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Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Congential Heart Defects are killing twice as many babies & children as cancer is; however, funding for research is only 1/5 what it is for cancer research. CHD currently has no cure.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Preds Pacis

Nashville Predators Foundation Grant - $5,000 Bright Heart Foundation uses the grant money to purchase Wubbanub pacifiers and loveys directly from the company and distribute to the Pediatric Cardiac Intensive Care Unit at Vanderbilt Children's hospital.  We hope to provide a soothing item to every cardiac child that is inpatient sponsored by the Nashville Predators. Children that live in Middle Tennessee and suffer from CHD spend much of their life inpatient at Vanderbilt Children's Hospital.  These comfort tools go a long way to life their spirits, encourage their parents and support teams and spread awareness about CHD.

Population(s) Served
Children and Youth (0 - 19 years)
Non-adult children

Babies with CHD experience developemental delays due to their extended hospital stays and initial focus on just surviving their defects and complications that come with treatment. Bright Heart Foundation is working with Vanderbilt Outpatient Speech, Occupational Therapists, and Physical Therapists that are home health based.  We are granting them $3,000 to be split toward Speech, OT and PT  disciplines to provide those therapists with tools that can be used between patients to further their development needs.  We hope to equip the therapists with everything they need to help those babies/ children/ teens "THRIVE" once they are outpatient.

Population(s) Served
Children and Youth (0 - 19 years)
Non-adult children

Bright Heart Foundation raises money and donates spefically to the Pediatric Cardiac Surgery Endowment Fund at Vanderbilt to help them grow their pedatric cardiac programs and research.

Population(s) Served
Children and Youth (0 - 19 years)
Non-adult children

Where we work

Charting impact

SOURCE: Self-reported by organization

Five powerful questions that require reflection about what really matters - results.

What is the organization aiming to accomplish?

C - CARE: Provide the babies with developmental support equipment, and parents with the encouragement tools crucial to keeping their spirits elevated during their months/ years of hospital stays. The children must survive their treatments and then go on to become thriving individuals. H - Hospital: Support the Pediatric Cardiac Surgery Endowment Fund at Monroe Carrell Jr. Children’s Hospital at Vanderbilt in their vital and ongoing research in the fight against CHD. Support the physicians as they provide the expert care for this group of very sick children. D - Disease Awareness: So many people have never heard of this disease that takes the lives of so many every year. We want to bring awareness and education to people to hopefully move them to donate toward the rearch and patient care as listed above.

So far Bright Heart Foundation has done the following: November 2018 - Raise Money- we told Luke's story and launched Bright Heart Foundation + Luke's surgeon Dr. Bret Mettler spoke December 2018 - Give Back- $10,000 back to Pediatric Cardiac Surgery Endowment Fund at Vandy + $2000 ($50 each to all 40 families on 5a & 7a inpatient at the holidays) in honor of Luke's first birthday February 2019 - Help others Raise Money- Luke was the guest of honor for AHA Knoxville's Heart Gala (assisted them in raising $1.6 million that night) March 2019 - Raise Money - we honored Jacob Bilodeau and his family (baby also has 1/2 a heart) as they told his story + Dr. Kavanaugh spoke Feb & Mar - Met with AHA Knoxville, AHA Nashville, Brett Boyer Foundation, Tori Goddard, World of Broken Hearts, etc (networking to learn more about other groups helping the cause) March 2019 - Give Back- lunch for the PCICU break room for the staff + $500 to August Bunn's family (Augst has been inpatient since he was born...13 months old now) April 2019 - Give Back- 1) we hope to fill the wishlist of the outpatient in-home therapists that are helping the CHD kids thrive outside of the hospital 2) Got our first shipment from Wubbanub pacifiers for their donation 3) All 8 non-profits are having a "summit" to figure out the pieces of the CHD puzzle and make sure we aren't falling short for support 4) Received word about our grant from Nashville Preds for $5,000....we want to take that can call it "Pekka's Pacis" and have it known that the preds sponsor wubbanub paci to the cardiac babies at Vandy ---- we will be able to supply about 785 to that unit this year!!! What we all kept realizing is that people don't know what CHD is and that it could affect any baby. So I'm staring with what I know, Rachel....sales. I need to sell the idea of something as simple as providing sick babies with pacifiers to soothe them. Then maybe people go "oh what's the poor baby sick with" ....then we have awareness....which hopefully leads to funding the CHD reseach.

So far Bright Heart Foundation has done the following: November 2018 - Raise Money- we told Luke's story and launched Bright Heart Foundation + Luke's surgeon Dr. Bret Mettler spoke December 2018 - Give Back- $10,000 back to Pediatric Cardiac Surgery Endowment Fund at Vandy + $2000 ($50 each to all 40 families on 5a & 7a inpatient at the holidays) in honor of Luke's first birthday February 2019 - Help others Raise Money- Luke was the guest of honor for AHA Knoxville's Heart Gala (assisted them in raising $1.6 million that night) March 2019 - Raise Money - we honored Jacob Bilodeau and his family (baby also has 1/2 a heart) as they told his story + Dr. Kavanaugh spoke Feb & Mar - Met with AHA Knoxville, AHA Nashville, Brett Boyer Foundation, Tori Goddard, World of Broken Hearts, etc (networking to learn more about other groups helping the cause) March 2019 - Give Back- lunch for the PCICU break room for the staff + $500 to August Bunn's family (Augst has been inpatient since he was born...13 months old now) April 2019 - Give Back- 1) we hope to fill the wishlist of the outpatient in-home therapists that are helping the CHD kids thrive outside of the hospital 2) Got our first shipment from Wubbanub pacifiers for their donation 3) All 8 non-profits are having a "summit" to figure out the pieces of the CHD puzzle and make sure we aren't falling short for support 4) Received word about our grant from Nashville Preds for $5,000....we want to take that can call it "Pekka's Pacis" and have it known that the preds sponsor wubbanub paci to the cardiac babies at Vandy ---- we will be able to supply about 785 to that unit this year!!! What we all kept realizing is that people don't know what CHD is and that it could affect any baby. So I'm staring with what I know, Rachel....sales. I need to sell the idea of something as simple as providing sick babies with pacifiers to soothe them. Then maybe people go "oh what's the poor baby sick with" ....then we have awareness....which hopefully leads to funding the CHD reseach.

If we can get CHD awareness out there - then we have moved mountains! We hope to eventually be able to donate up to $100,000 to the back to Pediatric Cardiac Surgery Endowment Fund at Vanderbilt. If we are granted the "Preds Paci" program up to $10,000 every year to cover the items needed by the inpatient and outpatient children and their therapists. We are still a very young organization, but we are heavily invested as our own son was born with 1/2 a heart and a CHD called Hypoplastic Left Heart Syndrome.

So far Bright Heart Foundation has done the following: November 2018 - Raise Money- we told Luke's story and launched Bright Heart Foundation + Luke's surgeon Dr. Bret Mettler spoke December 2018 - Give Back- $10,000 back to Pediatric Cardiac Surgery Endowment Fund at Vandy + $2000 ($50 each to all 40 families on 5a & 7a inpatient at the holidays) in honor of Luke's first birthday February 2019 - Help others Raise Money- Luke was the guest of honor for AHA Knoxville's Heart Gala (assisted them in raising $1.6 million that night) March 2019 - Raise Money - we honored Jacob Bilodeau and his family (baby also has 1/2 a heart) as they told his story + Dr. Kavanaugh spoke Feb & Mar - Met with AHA Knoxville, AHA Nashville, Brett Boyer Foundation, Tori Goddard, World of Broken Hearts, etc (networking to learn more about other groups helping the cause) March 2019 - Give Back- lunch for the PCICU break room for the staff + $500 to August Bunn's family (Augst has been inpatient since he was born...13 months old now) April 2019 - Give Back- 1) we hope to fill the wishlist of the outpatient in-home therapists that are helping the CHD kids thrive outside of the hospital 2) Got our first shipment from Wubbanub pacifiers for their donation 3) All 8 non-profits are having a "summit" to figure out the pieces of the CHD puzzle and make sure we aren't falling short for support 4) Received word about our grant from Nashville Preds for $5,000....we want to take that can call it "Pekka's Pacis" and have it known that the preds sponsor wubbanub paci to the cardiac babies at Vandy ---- we will be able to supply about 785 to that unit this year!!! What we all kept realizing is that people don't know what CHD is and that it could affect any baby. So I'm staring with what I know, Rachel....sales. I need to sell the idea of something as simple as providing sick babies with pacifiers to soothe them. Then maybe people go "oh what's the poor baby sick with" ....then we have awareness....which hopefully leads to funding the CHD reseach.

Financials

Bright Heart Foundation
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Operations

The people, governance practices, and partners that make the organization tick.

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Bright Heart Foundation

Board of directors
as of 10/22/2019
SOURCE: Self-reported by organization
Board chair

Linda Pilkinton

Bright Heart Foundation + Belle Meade Plantation

Term: 2018 - 2028

Alice Hendry

Alice Hendry Wedding Planning

Susan Willis

Community Volunteer

Beth Parks

Discovery Network

Lili Eubank

Bright Event Productions

Carrie Mills

Community Volunteer

Keywords

Congenital Heart Defects, heart problems, sick children, health, children in hospitals, family services, physician support