Bright Heart Foundation

Through Hope We Help Heal Hearts

Brentwood, TN   |  www.brightheartfoundation.org

Mission

Bright Heart Foundation advocates for and supports children and their families living with the challenges of Congenital Heart Defects (CHD) while also providing support for the physicians who treat them.

Notes from the nonprofit

Thirty years ago, CHD killed all babies that had it. Today with the help of the tireless researchers, healthcare teams, and volunteer efforts, babies with CHD are going home and living on through adulthood. We must continue to push the needle forward for CHD awareness, research, and support programs so that soon CHD will be as commonly known as cancer. Babies cannot advocate for themselves. Families who are torn apart by CHD cannot advocate for themselves. Healthcare heroes that are exhausted by CHD cannot advocate for this disease. Bright Heart Foundation advocates for and supports children and their families living with the challenges of Congenital Heart Defects (CHD) while also providing support for the physicians who treat them.

Ruling year info

2018

Principal Officer

Linda Pilkinton

Main address

P.O. Box 3463

Brentwood, TN 37024 USA

Show more contact info

EIN

83-0986892

NTEE code info

Patient Services - Entertainment, Recreation (E86)

Hospital (Specialty) (E24)

Fund Raising and/or Fund Distribution (F12)

IRS filing requirement

This organization is required to file an IRS Form 990-N.

Sign in or create an account to view Form(s) 990 for 2018.
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Communication

Blog

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Congential Heart Defects are killing twice as many babies & children as cancer is; however, funding for research is only 1/5 what it is for cancer research. CHD currently has no cure.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

SURVIVE

Provide support tools to doctors and nurses to use for their inpatient babies and children crucial to keeping their spirits elevated during their months/ years of hospital stays as they fight to survive CHD.

Population(s) Served

Provide developmental support equipment to the inpatient and outpatient healthcare team in OT, PT, and Speech Therapy to use for patients as they work to reach their full ability potential and thrive.

Population(s) Served

Provide mental health care to those living with CHD, family members that care for those with CHD, and CHD healthcare providers.

Population(s) Served

Where we work

Affiliations & memberships

TN CHD Coalition - Co Founder 2019

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

C - CARE: Provide the babies with developmental support equipment, and parents with the encouragement tools crucial to keeping their spirits elevated during their months/ years of hospital stays. The children must survive their treatments and then go on to become thriving individuals.

H - Hospital: Support the Pediatric Cardiac Surgery Endowment Fund at Monroe Carrell Jr. Children’s Hospital at Vanderbilt in their vital and ongoing research in the fight against CHD. Support the physicians as they provide the expert care for this group of very sick children.


D - Disease Awareness: So many people have never heard of this disease that takes the lives of so many every year. We want to bring awareness and education to people to hopefully move them to donate toward the rearch and patient care as listed above.

So far Bright Heart Foundation has done the following:

November 2018 - Raise Money- we told Luke's story and launched Bright Heart Foundation + Luke's surgeon Dr. Bret Mettler spoke

December 2018 - Give Back- $10,000 back to Pediatric Cardiac Surgery Endowment Fund at Vandy + $2000 ($50 each to all 40 families on 5a & 7a inpatient at the holidays) in honor of Luke's first birthday

February 2019 - Help others Raise Money- Luke was the guest of honor for AHA Knoxville's Heart Gala (assisted them in raising $1.6 million that night)

March 2019 - Raise Money - we honored Jacob Bilodeau and his family (baby also has 1/2 a heart) as they told his story + Dr. Kavanaugh spoke

Feb & Mar - Met with AHA Knoxville, AHA Nashville, Brett Boyer Foundation, Tori Goddard, World of Broken Hearts, etc (networking to learn more about other groups helping the cause)

March 2019 - Give Back- lunch for the PCICU break room for the staff + $500 to August Bunn's family (Augst has been inpatient since he was born...13 months old now)

April 2019 - Give Back-

1) we hope to fill the wishlist of the outpatient in-home therapists that are helping the CHD kids thrive outside of the hospital

2) Got our first shipment from Wubbanub pacifiers for their donation

3) All 8 non-profits are having a "summit" to figure out the pieces of the CHD puzzle and make sure we aren't falling short for support

4) Received word about our grant from Nashville Preds for $5,000....we want to take that can call it "Pekka's Pacis" and have it known that the preds sponsor wubbanub paci to the cardiac babies at Vandy ---- we will be able to supply about 785 to that unit this year!!!

What we all kept realizing is that people don't know what CHD is and that it could affect any baby. So I'm staring with what I know, Rachel....sales. I need to sell the idea of something as simple as providing sick babies with pacifiers to soothe them. Then maybe people go "oh what's the poor baby sick with" ....then we have awareness....which hopefully leads to funding the CHD reseach.

So far Bright Heart Foundation has done the following:

November 2018 - Raise Money- we told Luke's story and launched Bright Heart Foundation + Luke's surgeon Dr. Bret Mettler spoke

December 2018 - Give Back- $10,000 back to Pediatric Cardiac Surgery Endowment Fund at Vandy + $2000 ($50 each to all 40 families on 5a & 7a inpatient at the holidays) in honor of Luke's first birthday

February 2019 - Help others Raise Money- Luke was the guest of honor for AHA Knoxville's Heart Gala (assisted them in raising $1.6 million that night)

March 2019 - Raise Money - we honored Jacob Bilodeau and his family (baby also has 1/2 a heart) as they told his story + Dr. Kavanaugh spoke

Feb & Mar - Met with AHA Knoxville, AHA Nashville, Brett Boyer Foundation, Tori Goddard, World of Broken Hearts, etc (networking to learn more about other groups helping the cause)

March 2019 - Give Back- lunch for the PCICU break room for the staff + $500 to August Bunn's family (Augst has been inpatient since he was born...13 months old now)

April 2019 - Give Back-

1) we hope to fill the wishlist of the outpatient in-home therapists that are helping the CHD kids thrive outside of the hospital

2) Got our first shipment from Wubbanub pacifiers for their donation

3) All 8 non-profits are having a "summit" to figure out the pieces of the CHD puzzle and make sure we aren't falling short for support

4) Received word about our grant from Nashville Preds for $5,000....we want to take that can call it "Pekka's Pacis" and have it known that the preds sponsor wubbanub paci to the cardiac babies at Vandy ---- we will be able to supply about 785 to that unit this year!!!

What we all kept realizing is that people don't know what CHD is and that it could affect any baby. So I'm staring with what I know, Rachel....sales. I need to sell the idea of something as simple as providing sick babies with pacifiers to soothe them. Then maybe people go "oh what's the poor baby sick with" ....then we have awareness....which hopefully leads to funding the CHD reseach.

So far Bright Heart Foundation has done the following:

November 2018 - Raise Money- we told Luke's story and launched Bright Heart Foundation + Luke's surgeon Dr. Bret Mettler spoke

December 2018 - Give Back- $10,000 back to Pediatric Cardiac Surgery Endowment Fund at Vandy + $2000 ($50 each to all 40 families on 5a & 7a inpatient at the holidays) in honor of Luke's first birthday

February 2019 - Help others Raise Money- Luke was the guest of honor for AHA Knoxville's Heart Gala (assisted them in raising $1.6 million that night)

March 2019 - Raise Money - we honored Jacob Bilodeau and his family (baby also has 1/2 a heart) as they told his story + Dr. Kavanaugh spoke

Feb & Mar - Met with AHA Knoxville, AHA Nashville, Brett Boyer Foundation, Tori Goddard, World of Broken Hearts, etc (networking to learn more about other groups helping the cause)

March 2019 - Give Back- lunch for the PCICU break room for the staff + $500 to August Bunn's family (Augst has been inpatient since he was born...13 months old now)

April 2019 - Give Back-

1) we hope to fill the wishlist of the outpatient in-home therapists that are helping the CHD kids thrive outside of the hospital

2) Got our first shipment from Wubbanub pacifiers for their donation

3) All 8 non-profits are having a "summit" to figure out the pieces of the CHD puzzle and make sure we aren't falling short for support

4) Received word about our grant from Nashville Preds for $5,000....we want to take that can call it "Pekka's Pacis" and have it known that the preds sponsor wubbanub paci to the cardiac babies at Vandy ---- we will be able to supply about 785 to that unit this year!!!

What we all kept realizing is that people don't know what CHD is and that it could affect any baby. So I'm staring with what I know, Rachel....sales. I need to sell the idea of something as simple as providing sick babies with pacifiers to soothe them. Then maybe people go "oh what's the poor baby sick with" ....then we have awareness....which hopefully leads to funding the CHD reseach.

Financials

Bright Heart Foundation
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

Bright Heart Foundation

Board of directors
as of 11/4/2020
SOURCE: Self-reported by organization
Board chair

Linda Pilkinton

Bright Heart Foundation + Belle Meade Plantation

Term: 2018 - 2028

Alice Hendry

Alice Hendry Wedding Planning

Susan Willis

Community Volunteer

Beth Parks

Discovery Network

Lili Eubank

Bright Event Productions

Carrie Mills

Community Volunteer

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Not applicable
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Not applicable
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Not applicable
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Not applicable
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Not applicable