Project 8P Foundation

Constant innovation and creativity are required to solve our puzzle. We prioritized 4 key goals. Moreover, we need to build capacity to grow our operations. The 4 goals are interdependent and will inform our decisions and overall impact.

1. Accelerate Research for 8p Related Disorders
- Fund sponsored research to support innovations and identify therapeutic targets
- Build a robust data platform with the Chromosome 8p Registry to leverage knowledge into meaningful outcomes for 8p heroes
- Partner with established and emerging Key Opinion Leaders (“KOLs”)

2. Deliver a High Quality Standard of Care
- Build evidence to define high quality of care for 8p heroes
- Manage and maintain a scalable Neurogenetics Multidisciplinary Clinical Research Network
- Gather intelligence from families to inform patient needs and research priorities

3. Partner with Global Difference Makers
- Solidify diversified and sustainable funding sources
- Educate our investors about their value in our collective global impact
- Create community activation partnerships

4. Empower Community
- Provide education and advocacy tools to the patient community
- Significantly increase and maintain engagement with a user experience (“UX”) that transforms into a sustainable patient-led and patient-centered platform
- Define content strategies for the patient community that connect to and influence the broader community