Medical Research

Hope for Miracles Inc - Childrens Neuroblastoma Research

"Together we can make miracles happen."

aka Hope for Miracles, Inc.

Jay, NY

Mission

Hope for Miracles is a non profit organization bringing hope to families of children with Neuroblastoma by funding research for life saving trials and cures.

Ruling Year

2019

Founder/CEO

Holly Lynn LaBombard-Hull

Main Address

183 Ridge Top Ln

Jay, NY 12941 USA

Keywords

Neuroblastoma Research

EIN

83-2949854

 Number

6477824113

Cause Area (NTEE Code)

Cancer Research (H30)

IRS Filing Requirement

This organization is required to file an IRS Form 990-N.

Social Media

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Programs + Results

What we aim to solve

What is Neuroblastoma? Neuroblastoma is a rare childhood cancer and accounts for 7 to 10% of childhood cancers. However, it is the most common type of cancer in infants; almost 50% of all cancer in infants are Neuroblastoma. They emerge from nerve cells called neuroblasts that form in the fetus. Neuroblastomas are most commonly found in adrenal glands, above the kidneys but are also found in the abdomen, chest, neck and spine. There are about 800 children diagnosed with Neuroblastoma in the United States each year, and most are diagnosed before the age of 5. Why should we fund research? There are many types of childhood cancers, and each requires different research and experimentation for treatment. Researchers and scientists are ready to start experiments and run trials to find a cure/s for Neuroblastoma, but NEED funding to move forward. Once funding is available, advancements can be made very quickly. As we learned from Ann Graham, President of MIB Agents, there have been more ad

Our programs

What are the organization's current programs, how do they measure success, and who do the programs serve?

SOURCE: Self-reported by organization

Care Packages

Where we work

Charting Impact

Five powerful questions that require reflection about what really matters - results.

SOURCE: Self-reported by organization

What is the organization aiming to accomplish?

What are the organization's key strategies for making this happen?

What are the organization's capabilities for doing this?

How will they know if they are making progress?

What have they accomplished so far and what's next?

Hope for Miracles was created out of love for our son Karson, and all children like him. Karson was diagnosed with a Neuroblastoma in 2014 at the age of three. He has endured two major surgeries to remove a neuroblastoma. Given that only 4% of all funds raised for cancer research go to childhood cancer and only 7 to 10% of all childhood cancers are Neuroblastoma, we felt hopeless, and left praying for miracles. We knew that in order to change this statistic we needed to do something; we needed to help. This is when Hope for Miracles was born. With your help we can significantly change this statistic. We will not give up until lifesaving research and trials are able to happen, and cures are found! Through our fundraising efforts we have met some tremendously kind and generous people, and as crazy and scary as this world can seem at times, there are angels out there and they have made a big difference; we can’t thank them enough! These people have made us very hopeful that we can help make miracles happen. It is our belief that there is an astronomical number of people out there wanting to do good and to help in some way. In this world of Technology and Social Media, we are hoping to reach YOU, and together, we can make miracles happen. Our Mission – ​Hope for Miracles is a non profit organization bringing hope to families of children with Neuroblastoma by funding research for life saving trials and cures. Our Vision – Hope for Miracles envisions a world where no family ever has to witness a child suffer from Neuroblastoma.

If you donate, what will you will receive? A connection with families and children waiting for research and cures, a sense of empowerment that YOU can be the change; YOU are making a difference, and lastly, overall knowledge that you will be helping current and future families and children with Neuroblastoma have HOPE!!! What will we do with your monetary donation? How will it be spent? Our CEO, Board Directors and Board Members are all volunteer, and will continue to be volunteer. We have had very minimal operational costs due to donations of time and services. We know that it can’t stay like this forever, but our goal is to stay at less than 4% operating costs. Therefore, a maximum of 100% and a minimum of 96% of your money will go straight to Neuroblastoma research! Our 990 Forms will be posted on this website, so you can verify that we have met this goal. We want to be completely transparent about our mission and how we reach it. If you have questions, please reach out to us. It is important to us that you feel good about making a donation. Please remember, Hope for Miracles, Inc. is a 501(c)3 public charity. Your donations are tax-deductible to the full extent of the law. If you would like to start a fundraiser in your area to benefit Hope for Miracles, we welcome you. Please reach out to us for some ideas and we will help you as much as we can. Together, every little bit counts and adds up to a whole lot of help and hope for these children and their families. If you’d like to donate, please click here. If you’d like to share your story, reach out to us, we’d love to add it to our page.

Hope for Miracles, Inc. has chosen Memorial Sloan Kettering Cancer Center as our recipient for funds raised. ​ Karson will continue with his All Star Team at UVMCH - we couldn’t ask for a better team, and we know that this is where Karson is meant to be. They have our heart and we will always support them. So, why did we choose Memorial Sloan Kettering for the recipient of our funds and to conduct research and clinical trials for Neuroblastoma? We chose Memorial Sloan Kettering Cancer Center because they are one of the top research centers on Neuroblastoma in the Country. Their experts are among the best in the world. They are pioneering therapies and doing groundbreaking research on Neuroblastoma. How can we help? Additional funding for research is critical. Children are dying because there is not enough funding for research. We CAN and WILL change this!

The more money we raise to fund research, the more research can be done and the closer we will be to a cure.

Through our events you have helped us raise: ~Experience the Woods Family Fun Day - $2,700 ~End of Summer Fling/Woodstock Revival at 20 Main – $3,400 ~Gala of Miracles - $25,000 § Facebook Fundraisers - $3,000 § Giving Tuesday Campaign - $5,100 §Craft Fairs & Donations - $4,800 Total Funds Raised in 2019 - $44,000 Total Operating Costs – $600 *99% of funds raised through HFM will go straight to Neuroblastoma research ~ not many (if any) nonprofits can say the same! * While we did not reach our goal of $60,000, we still believe that this year has been a GREAT success! Why? We have been able to spread our mission not just in NY, but in Vermont, New Hampshire and Florida as well! We have also been featured on TV and in the News – Mountain Lake PBS, My NBS 5 & Adirondack Daily Enterprise. We look forward to continuing and building upon relationships and connections as well as forging new paths in new locations.

How We Listen

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

Source: Self-reported by organization

the feedback loop
check_box We shared information about our current feedback practices.
How is the organization collecting feedback?
We regularly collect feedback through: electronic surveys (by email, tablet, etc.), focus groups or interviews (by phone or in person), case management notes, suggestion box/email.
How is the organization using feedback?
We use feedback to: to make fundamental changes to our programs and/or operations, to inform the development of new programs/projects, to strengthen relationships with the people we serve.
With whom is the organization sharing feedback?
We share feedback with: the people we serve, our board, our funders, our community partners.
What challenges does the organization face when collecting feedback?
It is difficult to: we don't have any major challenges to collecting feedback.

External Reviews

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Financials

Hope for Miracles Inc - Childrens Neuroblastoma Research

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Operations

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Board Leadership Practices

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section, which enables organizations and donors to transparently share information about essential board leadership practices.

SOURCE: Self-reported by organization

BOARD ORIENTATION & EDUCATION

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?

Yes

CEO OVERSIGHT

Has the board conducted a formal, written assessment of the chief executive within the past year?

Not Applicable

ETHICS & TRANSPARENCY

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year?

Yes

BOARD COMPOSITION

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?

Yes

BOARD PERFORMANCE

Has the board conducted a formal, written self-assessment of its performance within the past three years?

Not Applicable

Organizational Demographics

Who works and leads organizations that serve our diverse communities? This organization has voluntarily shared information to answer this important question and to support sector-wide learning. GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

SOURCE: Self-reported; last updated 04/26/2020

Leadership

No data

Race & Ethnicity

No data

Gender Identity

No data

Sexual Orientation

No data

Disability

No data