The FARIS FOUNDATION

Bringing brighter days and better treatments to children with cancer

SUGAR LAND, TX   |  http://www.thefarisfoundation.org

Mission

The Faris Foundation is inspired by the shimmering light of Faris D. Virani who during his three year journey with a rare form of bone cancer, Ewing sarcoma, said, "Mommy cancer is not hard" and carried his family with his sublime thinking and triumphant way of being. The Faris Foundation works to bring brighter days and better treatments for children with cancer. Our core values that guide us to improve the quality of life for children with cancer are: Creativity, Collaboration, and Community. Our work is focused in three key areas: childhood cancer research; meaningful opportunities for creative expression at children’s cancer centers (as well as for homebound children); and public engagement and awareness.

Ruling year info

2019

Executive Director

Asha Virani

Main address

13135 DAIRY ASHFORD RD STE 560

SUGAR LAND, TX 77478 USA

Show more contact info

EIN

83-3109684

NTEE code info

Arts, Cultural Organizations - Multipurpose (A20)

Cancer (G30)

Patient Services - Entertainment, Recreation (E86)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Childhood cancer is the leading cause of death for children in the US, more than all other childhood diseases combined. Yet, since the 1970s only 3 new drugs have been developed and approved specifically for pediatric cancer treatment. Only 4% of our federal cancer research budget goes towards pediatric cancer research. It is our moral imperative to do better for our children. At the Faris Foundation, we invest in transformative research for those cancers that are underfunded and where the mortality rate hasn't changed in decades. Our investment is deep and we look specifically for those grants that will lead to a clinical trial in a short period of time. Our emphasis is on immunotherapy for children with solid tumors and most importantly, what distinguishes us is that we invest in research projects as "if our child's life depends on it"

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Childhood Cancer Research

We make transformative investments in the country’s brightest and boldest pediatric cancer researchers and physicians working in rare childhood cancers.

Population(s) Served

This program supports the creative arts in cancer centers. An art therapist (art fairy) is embedded in the cancer center and works closely with the foundation to bring magical programs for children being treated in the cancer center, their siblings and family. There is also a robust volunteer art engagement and artist in residence program.

Population(s) Served

This program is the foundation's response to childhood cancer. This is a robust educational campaign to bring greater awareness to lack of funding in childhood cancer, the inequities in targeted , less toxic treatment and the lack of recognition in our society of September and the associated gold ribbon. We have gold parades in children's hospitals in September to celebrate and recognize the children and families facing cancer

Population(s) Served

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of advocates and donors galvanized around childhood cancer awareness campaign

This metric is no longer tracked.
Totals By Year
Related Program

Let there be GOLD

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Our public awareness campaign galvanized 112,000 customers in 46 states to become advocates for childhood cancer during the month of September through our point of sale and educational campaign.

Number of children , family members and volunteers involved in art encounters at children's cancer centers

This metric is no longer tracked.
Totals By Year
Related Program

Art is My Life

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

In just our first year, our Art is my Life program has impacted over 300 children and families in cancer centers.

Number of grants and research funding awarded to the institution

This metric is no longer tracked.
Totals By Year
Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Increasing

Context Notes

Grant made for immunotherapy scholar for sarcomas at Texas Children's Cancer Center. Through this grant, we have seen both collaboration and research publications

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

We work in three key areas:
1. Childhood cancer research -we want to bring more clinical trials for patients with solid tumors where the mortality rate has not changed in decades. We want to invest in breakthrough research in targeted therapies like immunotherapy that is safer, less toxic, and gives hope where there isn't.
2. Creative arts programs in childhood cancer centers- We believe art should be a part of every child's treatment plan. A dose of medicine ...a dose of art. We aim to do this by embedding our first art therapist at Texas Children's Cancer Center, one of the largest pediatric cancer centers in our country. What we learn from here, the impact measured- we want to bring this program to other cancer centers so that it is standard of care. We believe art is necessary part of hope and healing and every child should have access to this.
3. Public Awareness and Education around Childhood Cancer-We are growing every year with our corporate partners like AT&T to educate and bring awareness to the public about this platform . We want to grow this movement so that no child with cancer ever feels like they don't matter and that the community and corporations are not rallying around them. This is about recognizing September and the color of the ribbon being gold in civic organizations, etc.

1. Childhood Cancer Research- We are seeking out grants for the boldest and most transformative translational research endeavors. We follow the research carefully ; hold the researchers accountable and get updates and meet with the researchers before giving full funding. Accountability and progress are key to our approach.
2. Creative Arts Programs- We hope each year to bring in art therapists to different cancer centers; have an internship program ; develop capacity and hold conferences for Art therapists in childhood cancer.
3. Public Awareness- Continue to spread the gold message; build advocacy around it, community to rally for the cause, grow our digital reach, and use creative ways to engage the public.

We are well poised to grow our programs with our budgets in place and fiscal stewardship and continued growth as a foundation that is unique in that it is truly led by a chief angel officer. We are impact driven and entrepreneurial in our approach.

We have supported research that is now on track for a clinical trial for children with otherwise no hope
Our researchers have published and the work has been accepted in prestigious science journals.
We have developed close relationships with updates and continued accountability.
Our arts program has served over 900 children last year and the impact of having art therapist for the child and family is something we look forward to accessing.
Our awareness campaign is in 2000 stores in 46 states and galvanized the support of 111,000 customers for childhood cancer . Our digital campaign and educational platform is robust and continues to grow as our efforts to raise awareness- through civic engagement, media, and communal efforts is amplified.

Financials

The FARIS FOUNDATION
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
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The FARIS FOUNDATION

Board of directors
as of 9/21/2020
SOURCE: Self-reported by organization
Board chair

Asha Virani