Disease, Disorders, Medical Disciplines

MAST CELL HOPE INC

Where actions meet results.

Southington, CT

Mission

The Mission of Mast Cell Hope, Inc. is to advance research to find new treatments and ultimately cures for Mast Cell Diseases and to educate care providers on treating Mast Cell Disease. We will advance frontline research into exploration of new ideas underlying the root cause of mast cell diseases. Our goal is to help patients by encouraging physicians, nurses and staff to understand Mast Cell Diseases, and to support researchers in identifying new treatment modalities.

Ruling Year

2019

President

Bonnie Sica

Main Address

73 Huckleberry Lane

Southington, CT 06489 USA

Keywords

Fundraising for research, education in Mast Cell Diseases.

EIN

83-4544114

 Number

0590919464

Cause Area (NTEE Code)

Fund Raising and/or Fund Distribution (G12)

IRS Filing Requirement

This organization is required to file an IRS Form 990-N.

Programs + Results

What we aim to solve

Since we are just starting up the biggest issue is fundraising. We received a capacity building grant from Global Genes. This grant has helped us grow into a strong and active non profit. We are looking for donations and more grant opportunities to continue to achieve our mission.

Our programs

What are the organization's current programs, how do they measure success, and who do the programs serve?

SOURCE: Self-reported by organization

Genome Study of Mast Cell patients and families.

Education of Medical Professionals

Where we work

Charting Impact

Five powerful questions that require reflection about what really matters - results.

SOURCE: Self-reported by organization

What is the organization aiming to accomplish?

What are the organization's key strategies for making this happen?

What are the organization's capabilities for doing this?

How will they know if they are making progress?

What have they accomplished so far and what's next?

We are now working internationally and are currently supporting physicians and researchers creating new testing and treatments for mast cell diseases. We will be building our physician, pharmacist, nurse and respiratory therapist continuing education credit program. We are offering patient inspiration to our community and helping patients who need support. Also, we continue to work towards using the genome study of mast cell patients to find FDA approved medications that may work for mast cell patients as well.

We have built a full fundraising software package and will be reaching out to patients, caregivers, families, physicians, and pharma to fund our kick off genome project. We have worked very hard to be extremely wise with our spending and can run our entire organization on only a few thousand dollars a year. We have created our own stuffed toy named Max the mast cell for our pediatric patients and some of our young at heart adult patients. We have created T-shirts and expanded our branding and outreach to raise awareness. We continue to build meaningful connections with other mast cell disease organizations around the world. These relationships build a stronger community and help us to use our resources and connections to move research faster.

Our capabilities are complete. We have talented nurses, Phd's and physicians willing to help make our goal a reality. We have business professionals who help keep us organized and fiscal responsible and frugal.

We will be able to offer new tests and treatments to patients within the two years. Patients will be more accepted in the healthcare system because of the education that we will be offering to providers.

Looking back on our first year is amazing. We recieved our first grant, built international relationships. Mast Cell Hope feels like a household name in the mast cell community and not the new kid on the block. We have three research initiative working. We are attending three professional conferences this year and hope to continue to make connections with biotech and pharma. The sky is the limit! We look forward to fundraising to support our research projects and our Education initiatives in the form of continuing education credits for physicians. We are welcoming and transparent. mastcellhope.org

External Reviews

Financials

MAST CELL HOPE INC

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Operations

The people, governance practices, and partners that make the organization tick.

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Board Leadership Practices

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section, which enables organizations and donors to transparently share information about essential board leadership practices.

SOURCE: Self-reported by organization

BOARD ORIENTATION & EDUCATION

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?

Not Applicable

CEO OVERSIGHT

Has the board conducted a formal, written assessment of the chief executive within the past year?

Not Applicable

ETHICS & TRANSPARENCY

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year?

Not Applicable

BOARD COMPOSITION

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?

Not Applicable

BOARD PERFORMANCE

Has the board conducted a formal, written self-assessment of its performance within the past three years?

Not Applicable