MAST CELL HOPE INC

Where actions meet results.

Southington, CT   |  mastcellhope.org

Mission

The Mission of Mast Cell Hope, Inc. is to advance research to find new treatments and ultimately cures for Mast Cell Diseases and to educate care providers on treating Mast Cell Disease. We will advance frontline research into exploration of new ideas underlying the root cause of mast cell diseases. Our goal is to help patients by encouraging physicians, nurses and staff to understand Mast Cell Diseases, and to support researchers in identifying new treatment modalities.

Ruling year info

2019

President

Bonnie Sica

Main address

73 Huckleberry Lane

Southington, CT 06489 USA

Show more contact info

EIN

83-4544114

NTEE code info

Fund Raising and/or Fund Distribution (G12)

IRS filing requirement

This organization is required to file an IRS Form 990-N.

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Since we are just starting up the biggest issue is fundraising. We received a capacity building grant from Global Genes. This grant has helped us grow into a strong and active non profit. We are looking for donations and more grant opportunities to continue to achieve our mission.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Genome Study of Mast Cell patients and families.

This is a double blind study that will run a deep dive genome sequencing on patients with Systemic or Cutaneous Mastocytosis and Monoclonal or Idiopathic Mast Cell Activation Syndrome. It is our goal to identify a common genetic cause to these disease and to help find new treatment and cures with this information.

Population(s) Served

We are building continuing education credits for physicians, nurses and other medical professionals. Our goal is to train medical professionals in all types of Mast Cell diseases to improve patient outcomes in the Emergency Department, Doctors office and Hospitals.

Population(s) Served

Where we work

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

We are now working internationally and are currently supporting physicians and researchers creating new testing and treatments for mast cell diseases. We will be building our physician, pharmacist, nurse and respiratory therapist continuing education credit program. We are offering patient inspiration to our community and helping patients who need support. Also, we continue to work towards using the genome study of mast cell patients to find FDA approved medications that may work for mast cell patients as well.

We have built a full fundraising software package and will be reaching out to patients, caregivers, families, physicians, and pharma to fund our kick off genome project.

We have worked very hard to be extremely wise with our spending and can run our entire organization on only a few thousand dollars a year.

We have created our own stuffed toy named Max the mast cell for our pediatric patients and some of our young at heart adult patients. We have created T-shirts and expanded our branding and outreach to raise awareness.

We continue to build meaningful connections with other mast cell disease organizations around the world. These relationships build a stronger community and help us to use our resources and connections to move research faster.

Our capabilities are complete. We have talented nurses, Phd's and physicians willing to help make our goal a reality. We have business professionals who help keep us organized and fiscal responsible and frugal.

Looking back on our first year is amazing. We recieved our first grant, built international relationships. Mast Cell Hope feels like a household name in the mast cell community and not the new kid on the block. We have three research initiative working. We are attending three professional conferences this year and hope to continue to make connections with biotech and pharma. The sky is the limit!

We look forward to fundraising to support our research projects and our Education initiatives in the form of continuing education credits for physicians.

We are welcoming and transparent. mastcellhope.org

Financials

MAST CELL HOPE INC
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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MAST CELL HOPE INC

Board of directors
as of 2/25/2021
SOURCE: Self-reported by organization
Board chair

Bonnie Sica

Mast Cell Hope Inc

Term: 2019 - 2022

Kathryn Pagano

Mast Cell Hope Inc

Marilyn Huntley, RN

Mast Cell Hope Inc

Dr. Anthony Ciardella

MEDVIP, John Dempsey Hospital (UCONN), Mast Cell Hope

Organizational demographics

SOURCE: Self-reported; last updated 10/20/2020

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender (cisgender)
Sexual orientation
Decline to state
Disability status
Person with a disability

Race & ethnicity

No data

Gender identity

No data

 

No data

Sexual orientation

No data

Disability

No data