NATIONAL MARROW DONOR PROGRAM

aka Be The Match   |   MINNEAPOLIS, MN   |  www.bethematch.org

Mission

We save lives through cellular therapy.

Ruling year info

1989

Chief Executive Officer

Mr. C. Randal Mills Ph.D.

Main address

500 N 5th St.

MINNEAPOLIS, MN 55401 USA

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EIN

84-0865803

NTEE code info

Organ and Tissue Bank (E65)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Center for International Blood and Marrow Transplant Research (CIBMTR)

Without research focused exclusively on transplant science, medical breakthroughs would not be possible and patients would not receive a second chance at life. Progress has been made, but more research is needed to advance the field of blood and marrow transplantation. We conduct research through our research program, CIBMTR® (Center for International Blood and Marrow Transplant Research®), in collaboration with the Medical College of Wisconsin. What makes our research program unique?

• We focus exclusively on blood and marrow transplant research
• Our research supports patients at every step in their transplant journey, including matching and recovery
• We operate the Stem Cell Therapeutic Outcomes Database: a program authorized by Congress to collect the detailed results of every allogeneic transplant performed in the U.S.
• Our extensive network of research partners includes more than 500 hospitals and research centers worldwide

Population(s) Served

Be The Match Registry® is dedicated to creating an opportunity for all patients to receive the marrow or umbilical cord blood transplant they need, when they need it. It is the largest and most diverse donor registry in the world. Our partnerships with international and cooperative registries provide doctors with access to nearly 24.5 million potential donors and more than 622,000 cord blood units worldwide.

WE STRIVE TO:
• Increase diversity
• Attract committed donors
• Fundraise to support the mission
• Add more umbilical cord blood units
• Partner with clinicians to provide optimal care

Population(s) Served

Not everyone can afford the life-saving treatment they need. Costs such as the search for a marrow donor, complex matching, travel and lodging when the transplant center is far from home, prescription co-pays and many other transplant-related costs may not be covered by insurance. Be The Match is dedicated to making transplant possible for all patients – but we can’t do it alone. We rely on generous contributions to help patients receive the transplant they need.

Population(s) Served

Where we work

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

We are a community of donors, volunteers, health care professionals and researchers who deliver cures by helping patients get the life-saving marrow or cord blood transplant they need. Our passion to save lives drives us to help more patients survive each year. We continually strive to improve access to transplant, to remove barriers to treatment and strengthen our ability to meet the growing need.

A patient's likelihood of finding a matching bone marrow donor or cord blood unit on Be The Match Registry® ranges from 66% to 97%, depending on ethnic background. Adding more members who increase the ethnic diversity of the registry increases the variety of tissue types available. This helps more patients find the match they need.

Through the formation of BioTherapiesSM, our new subsidiary, we will focus on partnering with organizations pursuing new life-saving treatments in cellular therapy. Cellular therapies, including marrow and cord blood transplant, are specialized patient treatments that are made from cells collected from the patient or an adult donor, often used to assist the patient's immune system. New types of cellular therapies can help patients for whom transplant isn't an option and address post-transplant issues such as life-threatening infection or relapse. These new therapies will treat patients with blood cancer, solid tumors and other conditions. As more is learned, much more can be done to treat cancer and other critical conditions.

Financials

NATIONAL MARROW DONOR PROGRAM
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

NATIONAL MARROW DONOR PROGRAM

Board of directors
as of 1/25/2018
SOURCE: Self-reported by organization
Board chair

John Wingard, M.D.

University of Florida – College of Medicine

Ann Berkey

The Berkey Group

Daniel Arndt

Robert Baitty

Melinda Caltabiano

New York Blood Center

Yvonne Ybarra

Gencure

Michael Davenport

Jennifer Jones

Federation of Protestant Welfare Agencies

Pankaj (P.J.) Kamani

Office Systems of CT, Inc. & ABC - Language Services

John McMannis, M.D.

Mesoblast, Inc.

Miguel-Angel Perales, M.D.

Memorial Sloan Kettering Cancer Center

David Porter, M.D

University of Pennsylvania Health System

Brian Reithel, Ph.D.

Harpreet Sandhu, M.T.

David Schubert

Accelerator Corporation

Robert Soiffer, M.D.

Dana Farber Cancer Institute

Abigail West

Lori White

McKesson Health Systems

Kimberly Kasow Wichlan, D.O.

University of North Carolina at Chapel Hill

Lynn Abrahamsen

William Pomeroy

CXtec

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? No
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? No
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? No
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? No
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No