Disease, Disorders, Medical Disciplines

TOURETTE SYNDROME ASSOCIATION - Rocky MTN Region

aka TOURETTE SYNDROME ASSOCIATION - Rocky Mountain Region   |   Denver, CO   |  tsa-rmr.org

Mission

The Rocky Mountain Chapter of TSA supports individuals and families living with Tourette Syndrome through education and public awareness.

Notes from the nonprofit

We are a Chapter that is at it's infancy and requires funding to provides programs and services to the community. Our service area is the entire State of Colorado. At this time we are focusing on Denver and its surrounding counties. Once we have recruited a Board of Directors and some consistent funding, we will branch out even further. However, we require funds now. Many of the volunteers are utilizing their personal funds as donations to cover expenses so not to deplete the current account.

Ruling year info

1982

Executive Director

Mrs. Loli M Gonzales-Hill

Comminty Laison

Mr. Scott Turner

Main address

P.O. Box 27482

Denver, CO 80227 USA

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EIN

84-1101905

Cause area (NTEE code) info

Alliance/Advocacy Organizations (G01)

Neurology, Neuroscience (H96)

Alliance/Advocacy Organizations (O01)

IRS filing requirement

This organization is required to file an IRS Form 990-N.

Communication

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Tourette Syndrome Association - Rocky Mountain Region

Provide and promote education on TS and associated disorders (Obsessive Compulsive Disorder, ADHD, and learning disabilities) Support groups that address advocacy in the school settings or the workplace, and small or large group presentations; Establish connections to national resources;Provide access to a provider referral list that includes psychiatrists and psychologists; Create and distribute a newsletter with the latest information on TSA-RMR;Provide more details of the type of programs community is in need and organization willing to provide
Provide special event opportunities or activities for youth with Team TSA ; Recruit volunteers and provide trainings on TS

Population(s) Served
Children Only (5 - 14 years)
Disabled, General or Disability Unspecified
Other Named Groups
Budget
$20,000

The Youth Ambassador Program trains teens to advocate for themselves and for others and to provide their peers and younger children with accurate information by going into classrooms, schools and clubs to teach understanding, sensitivity and tolerance of TS and its symptoms while displacing the myths and stereotypes that are often attributed to and associated with this misunderstood and misdiagnosed disorder.
Youth Ambassadors appear in the media and assist with fundraising and awareness raising campaigns.
Youth Ambassadors will find there are many personal benefits as well, such as learning to work as team members and developing increased confidence in public speaking
Youth Ambassadors learn skills that they will use for the rest of their lives and at the same time are helping to enlighten new generations about Tourette syndrome.

Population(s) Served
Youth/Adolescents only (14 - 19 years)
Physically Disabled nec
Other Named Groups
Budget
$250

Where we work

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Charting impact

SOURCE: Self-reported by organization

Five powerful questions that require reflection about what really matters - results.

What is the organization aiming to accomplish?

To provide education on tics, associated disorders (Obsessive Compulsive Disorder, ADHD, and learning disabilities) to schools and community at large. To develop support groups for youth and families. To advocate in the school settings or the workplace, small or large group presentations. To take advantage of connections to national resources, a list of providers including psychiatrists & psychologists, & newsletters with the latest information. Distribute newsletter by email.

Two volunteers will visit 6 schools and 2 business presentations will be conducted in the fiscal year. Promotion to recruit 5 volunteer parents to begin a parent support group. Create a list of psychologists and neurologists and provide to parents requesting a provider. Utilize National's Speakers Bureau to do presentations. Distribute newsletter by email to database members monthly.

Current Steering Committee of 10 members will assist in the progress of reaching short-term & long- term goals. Recruitment of volunteers from United Way provides volunteers. Partnership with Children's Hospital of Colorado in providing office space, personnel and other resorces. Local vendors provide food & drinks for meetings.

Quantitative goals will be met by the number of meetings conducted, newsletters distributed & classrooms attended.<br/>Qualitative goals will be met through surveys conducted after each meeting. Analysis from those surveys will be consolidated. <br/>Steering Committee members will gather and analyze all information. Our targeted groups are youth, families and those being impacted by Tourette Syndrome. Improvement is always needed. If goals are met, then goals should be increased. If evaluations determine that presentations were weak in any area, then improve those areas.

Conducted presentation at one school, had a bike ride for youth and recruited one new parent for steering committee. Also setting date for Fall training on Tourette Syndrome & co-morbid disorders. Require additional funding and will have to channel attention efforts to finding funding sources. Youth are not participating in activities because we are geographically too spread out. Our service area is the entire state of Colorado. There are no support services provided other than what we provide. We have no personnel and a very small budget.

Financials

TOURETTE SYNDROME ASSOCIATION - Rocky MTN Region
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Operations

The people, governance practices, and partners that make the organization tick.

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This organization has no recorded board members.

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Not applicable
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Not applicable
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Not applicable
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Not applicable
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Not applicable

Keywords

Tourette syndrome nonprofit movement disorders youth