PLATINUM2024

Living With Xxy Inc

aka Living With XXY   |   SAN DIEGO, CA   |  http://www.livingwithxxy.org

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Mission

Living with XXY is changing the way the world views Klinefelter syndrome (47XXY). Focusing on community, awareness, and positive traits.

Ruling year info

2019

President

Ryan Bregante

Main address

3960 W. Point Loma Blvd # H240

SAN DIEGO, CA 92110 USA

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EIN

84-2591505

NTEE code info

Public, Society Benefit - Multipurpose and Other N.E.C. (W99)

Other Art, Culture, Humanities Organizations/Services N.E.C. (A99)

Philanthropy / Charity / Voluntarism Promotion (General) (T50)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Blog

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Living With XXY

Living with XXY is changing the way the world views Klinefelter syndrome (47XXY). Focusing on community, awareness, and positive traits.

Population(s) Served
Pregnant people

This Program is designed to help those living with Klinefelter syndrome know they are not alone in their feelings and thoughts. We help individuals around the world learn to accept themselves for who they are and be proud.

Population(s) Served
Adults
Children and youth
People with learning disabilities
Adults
Children and youth
People with learning disabilities
Pregnant people

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

"We will increase the number of direct contacts to mothers in utero facing the decision about termination by providing support, accurate information, and medical resources."

This metric is no longer tracked.
Totals By Year
Related Program

Living With XXY

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Living with XXY is changing the way the world views Klinefelter syndrome (47XXY). Focusing on community, awareness, and positive traits.

Provide a safe space for community connections and support for those with XXY and their families. Work to reduce the termination rate for in-utero diagnoses by offering hope through lived experiences. Collaborate with professionals to update information by speaking to medical and educational communities. Encourage acceptance in all ages, providing accessible resources and helping men navigate infertility.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.
  • How is your organization using feedback from the people you serve?

  • Which of the following feedback practices does your organization routinely carry out?

  • What challenges does the organization face when collecting feedback?

Financials

Living With Xxy Inc
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Operations

The people, governance practices, and partners that make the organization tick.

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lock

Connect with nonprofit leaders

Subscribe

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

Living With Xxy Inc

Board of directors
as of 01/22/2024
SOURCE: Self-reported by organization
Board chair

Ryan Bregante

Living With XXY

Janell Nash

Jennifer Voige

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Not applicable
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Not applicable
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Not applicable
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Not applicable
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Not applicable

Organizational demographics

SOURCE: Self-reported; last updated 11/1/2023

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Male, Not transgender
Sexual orientation
Heterosexual or Straight
Disability status
Person with a disability

Race & ethnicity

No data

Gender identity

No data

Transgender Identity

No data

Sexual orientation

No data

Disability

No data